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Published in: Journal of Cancer Education 4/2010

01-12-2010

Evaluation of a Survivorship Educational Program for Adolescent and Young Adult Survivors of Childhood Cancer

Authors: Kristin Bingen, Mary Jo Kupst

Published in: Journal of Cancer Education | Issue 4/2010

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Abstract

Educational programs to address specific needs of adolescent and young adult (AYA) childhood cancer survivors are scarce. A quarterly speaker series and 1-day conference involved presentations by oncology experts to increase knowledge of AYA cancer survivorship issues and awareness of community programs and resources. Pre- and post-evaluations were administered to determine the program's efficacy. Most rated program satisfaction as “moderately high” to “high” and having met expectations. Self-report ratings indicated a significant increase in perceived knowledge of survivorship topics and resource awareness for AYA childhood cancer survivors and caregivers. Nearly one third attended more than one presentation, indicating that the educational program was beneficial to them. This program was effective in increasing self-reported survivorship education for AYA survivors of childhood cancer, families, and health care providers.
Literature
1.
2.
go back to reference Institute of Medicine & National Research Council (2003) Childhood cancer survivorship: improving care and quality of life. National Academies, Washington Institute of Medicine & National Research Council (2003) Childhood cancer survivorship: improving care and quality of life. National Academies, Washington
3.
go back to reference Oeffinger KC, Mertens AC, Sklar CA et al (2006) Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 355:1572–1582CrossRefPubMed Oeffinger KC, Mertens AC, Sklar CA et al (2006) Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 355:1572–1582CrossRefPubMed
4.
go back to reference Hudson MM, Mertens AC, Yasui Y et al (2003) Health status of adult long-term childhood cancer survivors: a report from the Childhood Cancer Survivor Study. JAMA 290:1583–1592CrossRefPubMed Hudson MM, Mertens AC, Yasui Y et al (2003) Health status of adult long-term childhood cancer survivors: a report from the Childhood Cancer Survivor Study. JAMA 290:1583–1592CrossRefPubMed
5.
go back to reference Kadan-Lottick NS, Robison LL, Gurney JG et al (2002) Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA 287:1832–1839CrossRefPubMed Kadan-Lottick NS, Robison LL, Gurney JG et al (2002) Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA 287:1832–1839CrossRefPubMed
6.
go back to reference Mertons AC, Cotter KL, Foster BM et al (2004) Improving healthcare for adult survivors of childhood cancer: recommendations from a Delphi panel of health policy experts. Health Policy 69(2):169–178CrossRef Mertons AC, Cotter KL, Foster BM et al (2004) Improving healthcare for adult survivors of childhood cancer: recommendations from a Delphi panel of health policy experts. Health Policy 69(2):169–178CrossRef
7.
go back to reference Centers for Disease Control and Prevention and Lance Armstrong Foundation (2004) A National Action Plan for cancer survivorship: advancing public health strategies Centers for Disease Control and Prevention and Lance Armstrong Foundation (2004) A National Action Plan for cancer survivorship: advancing public health strategies
8.
go back to reference Bleyer A (2005) The adolescent and young adult gap in cancer care and outcome. Curr Probl Pediatr Adolesc Health Care 35:182–217CrossRefPubMed Bleyer A (2005) The adolescent and young adult gap in cancer care and outcome. Curr Probl Pediatr Adolesc Health Care 35:182–217CrossRefPubMed
9.
go back to reference Roberts CS, Severinsen C et al (1997) Life changes and problems experienced by young adults with cancer. J Psychosoc Oncol 15:15–25CrossRef Roberts CS, Severinsen C et al (1997) Life changes and problems experienced by young adults with cancer. J Psychosoc Oncol 15:15–25CrossRef
10.
go back to reference Levi R (2006) Quality of life in childhood cancer. In: Brown RT (ed) Pediatric hematology/oncology: a biopsychosocial approach. Oxford University Press, New York Levi R (2006) Quality of life in childhood cancer. In: Brown RT (ed) Pediatric hematology/oncology: a biopsychosocial approach. Oxford University Press, New York
11.
go back to reference Marsland A, Ewing L, Thompson A (2006) Psychological and social effects of surviving childhood cancer. In: Brown RT (ed) Pediatric hematology/oncology: a biopsychosocial approach. Oxford University Press, New York Marsland A, Ewing L, Thompson A (2006) Psychological and social effects of surviving childhood cancer. In: Brown RT (ed) Pediatric hematology/oncology: a biopsychosocial approach. Oxford University Press, New York
12.
go back to reference Florin TA, Fryer GE, Miyoshi T et al (2007) Physical inactivity in adult survivors of childhood acute lymphoblastic leukemia: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev 16(7):1356–1363CrossRefPubMed Florin TA, Fryer GE, Miyoshi T et al (2007) Physical inactivity in adult survivors of childhood acute lymphoblastic leukemia: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev 16(7):1356–1363CrossRefPubMed
13.
go back to reference Tercyak KP, Donze JR, Prahlad S et al (2006) Multiple behavioral risk factors among adolescent survivors of childhood cancer in the Survivor Health and Resilience Education (SHARE) program. Pediatr Blood Cancer 47(6):825–830CrossRefPubMed Tercyak KP, Donze JR, Prahlad S et al (2006) Multiple behavioral risk factors among adolescent survivors of childhood cancer in the Survivor Health and Resilience Education (SHARE) program. Pediatr Blood Cancer 47(6):825–830CrossRefPubMed
14.
go back to reference Oeffinger KC, Mertens AC, Hudson MM et al (2004) Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med 2:61–70CrossRefPubMed Oeffinger KC, Mertens AC, Hudson MM et al (2004) Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med 2:61–70CrossRefPubMed
15.
go back to reference Nathan PC, Greenberg ML, Ness KK et al (2008) Medical care in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. J Clin Oncol 26:4401–4409CrossRefPubMed Nathan PC, Greenberg ML, Ness KK et al (2008) Medical care in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. J Clin Oncol 26:4401–4409CrossRefPubMed
16.
go back to reference Lee YL, Santacroce SJ, Sadler L (2007) Predictors of healthy behaviour in long-term survivors of childhood cancer. J Clin Nurs 16(11c):285–295CrossRefPubMed Lee YL, Santacroce SJ, Sadler L (2007) Predictors of healthy behaviour in long-term survivors of childhood cancer. J Clin Nurs 16(11c):285–295CrossRefPubMed
17.
go back to reference Kyngas H, Mikkonen R, Nouisiainen E et al (2001) Coping with the onset of cancer: coping strategies and resources of young people with cancer. Eur J Cancer Care (Engl) 10:6–11CrossRef Kyngas H, Mikkonen R, Nouisiainen E et al (2001) Coping with the onset of cancer: coping strategies and resources of young people with cancer. Eur J Cancer Care (Engl) 10:6–11CrossRef
18.
go back to reference Hudson MM, Tyc VL, Jayawardene DA et al (1999) Feasability of implementing health promotion interventions to improve health-related quality of life. Int J Cancer Suppl 12:138–142CrossRefPubMed Hudson MM, Tyc VL, Jayawardene DA et al (1999) Feasability of implementing health promotion interventions to improve health-related quality of life. Int J Cancer Suppl 12:138–142CrossRefPubMed
19.
go back to reference Hudson MM, Tyc VL, Srivastava DK et al (2002) Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: the protect study. Med Pediatr Oncol 39:2–11CrossRefPubMed Hudson MM, Tyc VL, Srivastava DK et al (2002) Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: the protect study. Med Pediatr Oncol 39:2–11CrossRefPubMed
20.
go back to reference Cox CL, McLaughlin RA, Rai SN et al (2005) Adolescent survivors: a secondary analysis of a clinical trial targeting behavior change. Pediatr Blood Cancer 45(2):144–154CrossRefPubMed Cox CL, McLaughlin RA, Rai SN et al (2005) Adolescent survivors: a secondary analysis of a clinical trial targeting behavior change. Pediatr Blood Cancer 45(2):144–154CrossRefPubMed
21.
go back to reference Park ER, Puleo E, Butterfield RM et al (2006) A process evaluation of a telephone-based peer-delivered smoking cessation intervention for adult survivors of childhood cancer: the partnership for health study. Prev Med 42(6):435–442CrossRefPubMed Park ER, Puleo E, Butterfield RM et al (2006) A process evaluation of a telephone-based peer-delivered smoking cessation intervention for adult survivors of childhood cancer: the partnership for health study. Prev Med 42(6):435–442CrossRefPubMed
Metadata
Title
Evaluation of a Survivorship Educational Program for Adolescent and Young Adult Survivors of Childhood Cancer
Authors
Kristin Bingen
Mary Jo Kupst
Publication date
01-12-2010
Publisher
Springer-Verlag
Published in
Journal of Cancer Education / Issue 4/2010
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-010-0077-y

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