Skip to main content
Top
Published in: BMC Health Services Research 1/2016

Open Access 01-12-2016 | Research article

Do informal caregivers for elderly in the community use support measures? A qualitative study in five European countries

Authors: Evi Willemse, Sibyl Anthierens, Maria Isabel Farfan-Portet, Olivier Schmitz, Jean Macq, Hilde Bastiaens, Tinne Dilles, Roy Remmen

Published in: BMC Health Services Research | Issue 1/2016

Login to get access

Abstract

Background

Informal caregivers are essential figures for maintaining frail elderly at home. Providing informal care can affect the informal caregivers’ physical and psychological health and labour market participation capabilities. They need support to prevent caregiver burden. A variety of existing support measures can help the caregiver care for the elderly at home, but with some limitations. The objective of this review was to explore the experiences of informal caregivers caring for elderly in the community with the use of supportive policy measures in Belgium and compare these to the experiences in other European countries.

Methods

An empirical qualitative case study research was conducted in five European countries (Belgium, The Netherlands, Luxembourg, France and Germany). Semi-structured interviews were conducted with informal caregivers and their dependent elderly. Interview data from the different cases were analysed. In particular data from Belgium was compared to data from the cases abroad.

Results

Formal services (e.g. home care) were reported to have the largest impact on allowing the caregiver to care for the dependent elderly at home. One of the key issues in Belgium is the lack of timely access to reliable information about formal and informal services in order to proactively support the informal caregiver. Compared to the other countries, informal caregivers in Belgium expressed more difficulties in accessing support measures and navigating through the health system. In the other countries information seemed to be given more timely when home care was provided via care packages.

Conclusion

To support the informal caregiver, who is the key person to support the frail elderly, fragmentation of information regarding supportive policy measures is an important issue of concern.
Appendix
Available only for authorised users
Literature
2.
go back to reference Van Durme TMJ, Anthierens S, Symons L, Schmitz O, Paulus D, den Heede V, Remmen R. Stakeholders' perception on the organization of chronic care: a SWOT analysis to draft avenues for health care reforms. BMC Health Serv Res. 2014;14:1.CrossRef Van Durme TMJ, Anthierens S, Symons L, Schmitz O, Paulus D, den Heede V, Remmen R. Stakeholders' perception on the organization of chronic care: a SWOT analysis to draft avenues for health care reforms. BMC Health Serv Res. 2014;14:1.CrossRef
3.
4.
go back to reference Criel B, Vanderberghe V, De Koker B, Decraene BEE, Waltens R. Informal home care for elderly in Belgium: A study on the Features and challenges of informal care at local level. Community Ment Health J. 2014;50:1. doi:10.1007/s10597-014-9696-9.CrossRef Criel B, Vanderberghe V, De Koker B, Decraene BEE, Waltens R. Informal home care for elderly in Belgium: A study on the Features and challenges of informal care at local level. Community Ment Health J. 2014;50:1. doi:10.​1007/​s10597-014-9696-9.CrossRef
7.
go back to reference Anthierens S, Willemse E, Remmen R, Schmitz O, Macq J, Declercq A, Arnaut C, Forest M, Denis A, Vinck I, Defourny N, Farfan-Portet MI. Support for informal caregivers – an exploratory analysis. Health Services Research (HSR). Brussels: Belgian Health Care Knowledge Centre (KCE); 2014. KCE Reports 223. D/2014/10.273/40. Anthierens S, Willemse E, Remmen R, Schmitz O, Macq J, Declercq A, Arnaut C, Forest M, Denis A, Vinck I, Defourny N, Farfan-Portet MI. Support for informal caregivers – an exploratory analysis. Health Services Research (HSR). Brussels: Belgian Health Care Knowledge Centre (KCE); 2014. KCE Reports 223. D/2014/10.273/40.
8.
go back to reference Lopez-Hartmann M, Wens J, Verhoeven V, Remmen R. The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: a systematic review. Int J Integr Care. 2012;12:16. doi: 10-1-113108 / ijic2012-133. Lopez-Hartmann M, Wens J, Verhoeven V, Remmen R. The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: a systematic review. Int J Integr Care. 2012;12:16. doi: 10-1-113108 / ijic2012-133.
10.
go back to reference Yin RK. Case study research: Design and methods (Fourth edition ed. Vol. 5). United States of America: Sage; 2009. p. 1–214. Yin RK. Case study research: Design and methods (Fourth edition ed. Vol. 5). United States of America: Sage; 2009. p. 1–214.
11.
go back to reference Bleichrodt H, van den Berg B, Eeckhoudt L. The Economic Value of Informal Care: A Study of Informal Caregivers' and Patients' Willingness to Pay and Willingness to Accept for Informal Care. Health Econ. 2005;14:13. Bleichrodt H, van den Berg B, Eeckhoudt L. The Economic Value of Informal Care: A Study of Informal Caregivers' and Patients' Willingness to Pay and Willingness to Accept for Informal Care. Health Econ. 2005;14:13.
14.
go back to reference Geerts J, Van den Bosch K. Transitions in formal and informal care utilisation amongst older Europeans: the impact of national contexts. Eur J Ageing. 2012;9:27–37.CrossRef Geerts J, Van den Bosch K. Transitions in formal and informal care utilisation amongst older Europeans: the impact of national contexts. Eur J Ageing. 2012;9:27–37.CrossRef
15.
go back to reference Walters C, Iliffe S, Orrell M. An exploration of help-seeking behaviour in older people with unmet needs. Fam Pract. 2001;18:277–82.CrossRefPubMed Walters C, Iliffe S, Orrell M. An exploration of help-seeking behaviour in older people with unmet needs. Fam Pract. 2001;18:277–82.CrossRefPubMed
17.
go back to reference Sansoni J, Anderson KH, Varona LM, Varela G. Caregivers of Alzheimer's patients and factors influencing institutionalization of loved ones: some considerations on existing literature. Annale di inguini. 2013;25(3):235–46. Sansoni J, Anderson KH, Varona LM, Varela G. Caregivers of Alzheimer's patients and factors influencing institutionalization of loved ones: some considerations on existing literature. Annale di inguini. 2013;25(3):235–46.
Metadata
Title
Do informal caregivers for elderly in the community use support measures? A qualitative study in five European countries
Authors
Evi Willemse
Sibyl Anthierens
Maria Isabel Farfan-Portet
Olivier Schmitz
Jean Macq
Hilde Bastiaens
Tinne Dilles
Roy Remmen
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2016
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-016-1487-2

Other articles of this Issue 1/2016

BMC Health Services Research 1/2016 Go to the issue