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Health and Quality of Life Outcomes
Published in: Health and Quality of Life Outcomes 1/2020

Open Access 01-12-2020 | Research

Development of a measure for patients preparing to start dialysis and their partners: The Starting Dialysis Questionnaire (SDQ)

Authors: Currie Moore, Alison Wearden, Lesley-Anne Carter, Sandip Mitra, Suzanne M. Skevington

Published in: Health and Quality of Life Outcomes | Issue 1/2020

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Abstract

Background

The transition onto dialysis is a stressful time that affects both patients and their partners. Research suggests that psychological and interpersonal characteristics within the couple are related to how well they adapt to dialysis. The aim of this multi-phase, mixed methods study was to develop a measure, the Starting Dialysis Questionnaire (SDQ), that is applicable to both patients and their partners and assesses their own thoughts and feelings about these constructs.

Methods

Data from semi-structured interviews with patients and their partners (n = 22 couples) were analysed using theoretical thematic analysis to identify and define constructs related to quality of life (QOL). Next, items addressing these constructs were derived from the interviews. Then, cognitive interviews were conducted with patients with chronic kidney disease and their partners (n = 5 couples) to assess the face validity and comprehensibility of the items. Lastly, preliminary psychometric properties were evaluated in a sample of patients preparing to start dialysis and their partners (n = 83 couples).

Results

Three themes related to QOL were identified, namely dialysis expectations, accepting dialysis and dyadic relationship characteristics. The cognitive interviews refined the SDQ and established its face validity. Psychometric assessments indicated that overall the items performed well and did not show significant floor or ceiling effects. Good internal consistency was found within the three domains, and items correlated within the domains.

Conclusions

The SDQ is a measure (34 items) that assesses key psychological and interpersonal factors in patients and their partners as they start dialysis. It shows good preliminary psychometric properties; however, a large-scale field trial is needed to establish its validity. Once validated, it could offer a clinically useful tool to assist clinicians in preparing patients and partners for dialysis.
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Literature
1.
Jablonski A. The illness trajectory of end-stage renal disease dialysis patients. Res Theory Nurs Pract. 2004;18(1):51–72.CrossRefPubMed
2.
Revenson TA, Griva K, Luszczynska A, Morrison V, Panagopoulou E, Vilchinsky N, et al. Caregiving as a dyadic process. Caregiving in the illness context. Basingstoke: Palgrave Macmillan; 2016a. p. 25–37.
3.
Moore C, Skevington S, Wearden A, Mitra S. Impact of dialysis on the dyadic relationship between male patients and their female partners. Qual Health Res. 2019;30(3):1049732319869908.
4.
Arden-Close E, Moss-Morris R, Dennison L, Bayne L, Gidron Y. The Couples’ illness communication scale (CICS): Development and evaluation of a brief measure assessing illness-related couple communication. Br J Health Psychol. 2010;15(Pt 3):543–59.CrossRefPubMed
5.
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef
6.
Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. London, UK: Sage Publications Ltd; 2013.
7.
Eisikovits Z, Koren C. Approaches to and outcomes of dyadic interview analysis. Qual Health Res. 2010;20(12):1642–55.CrossRefPubMed
8.
Willis GB. Cognitive interviewing: A tool for improving questionnaire design. Thousand Oaks: Sage Publications; 2005.CrossRef
9.
Willis GB, Artino AR Jr. What do our respondents think we’re asking? Using cognitive interviewing to improve medical education surveys. J Grad Med Educ. 2013;5(3):353–6.CrossRefPubMedPubMedCentral
10.
Mason VL, Skevington SM, Osborn M. The quality of life of people in chronic pain: Developing a pain and discomfort module for use with the WHOQOL. Psychol Health. 2008;23(2):135–54.CrossRefPubMed
11.
Moore C, Carter L-A, Mitra S, Skevington S, Wearden A. Quality of life improved for patients after starting dialysis but is impaired, initially, for their partners: a multi-centre, longitudinal study. BMC Nephrol. 2020;21(1):185.CrossRefPubMedPubMedCentral
12.
Revenson TA, Griva K, Luszczynska A, Morrison V, Panagopoulou E, Vilchinsky N, et al. What is caregiving and how should we study it? Caregiving in the illness context. London: Palgrave Macmillan; 2016b. p. 1–14.
13.
Skevington SM, Lotfy M, O’Connell K. The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial—a report from the WHOQOL group. Qual Life Res. 2004;13(2):299–310.CrossRefPubMed
14.
Streiner DL, Norman GR. Health measurement scales: a practical guide to their development and use. 4th ed. Oxford: Oxford University Press; 2008. p. 2015–101.CrossRef
15.
Skevington SM, Tucker C. Designing response scales for cross-cultural use in health care: data from the development of the UK WHOQOL. Br J Med Psychol. 1999;72(1):51–61.CrossRefPubMed
16.
Wise M, Schatell D, Klicko K, Burdan A, Showers M. Successful daily home hemodialysis patient-care partner dyads: benefits outweigh burdens. Hemodial Int. 2010;14(3):278–88.CrossRefPubMed
17.
Monaro S, Stewart G, Gullick J. A “lost life”: coming to terms with haemodialysis. J Clin Nurs. 2014;23(21–22):3262–73.CrossRefPubMed
18.
Stringer S, Baharani J. Why did I start dialysis? A qualitative study on views and expectations from an elderly cohort of patients with end-stage renal failure starting haemodialysis in the United Kingdom. Int Urol Nephrol. 2012;44(1):295–300.CrossRefPubMed
19.
Chan R. The effect of acceptance on health outcomes in patients with chronic kidney disease. Nephrol Dial Transplant. 2012;28(1):11–4.CrossRefPubMed
20.
Poppe C, Crombez G, Hanoulle I, Vogelaers D, Petrovic M. Improving quality of life in patients with chronic kidney disease: influence of acceptance and personality. Nephrol Dial Transplant. 2013;28(1):116–21.CrossRefPubMed
21.
Chan R, Brooks R, Steel Z, Heung T, Erlich J, Chow J, et al. The psychosocial correlates of quality of life in the dialysis population: a systematic review and meta-regression analysis. Qual Life Res. 2012;21(4):563–80.CrossRefPubMed
22.
Gilbertson EL, Krishnasamy R, Foote C, Kennard AL, Jardine MJ, Gray NA. Burden of care and quality of life among caregivers for adults receiving maintenance dialysis: a systematic review. Am J Kidney Dis. 2019;73(3):332–43.CrossRefPubMed
23.
Weldring T, Smith SMS. Patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs). Health Serv Insights. 2013;6:61–8.PubMedPubMedCentral
Metadata
Title
Development of a measure for patients preparing to start dialysis and their partners: The Starting Dialysis Questionnaire (SDQ)
Authors
Currie Moore
Alison Wearden
Lesley-Anne Carter
Sandip Mitra
Suzanne M. Skevington
Publication date
01-12-2020
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2020
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-020-01610-x

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