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Published in: Graefe's Archive for Clinical and Experimental Ophthalmology 7/2018

01-07-2018 | Retinal Disorders

Developing an item bank to measure the coping strategies of people with hereditary retinal diseases

Authors: Mallika Prem Senthil, Jyoti Khadka, John De Roach, Tina Lamey, Terri McLaren, Isabella Campbell, Eva K Fenwick, Ecosse L. Lamoureux, Konrad Pesudovs

Published in: Graefe's Archive for Clinical and Experimental Ophthalmology | Issue 7/2018

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Abstract

Purpose

Our understanding of the coping strategies used by people with visual impairment to manage stress related to visual loss is limited. This study aims to develop a sophisticated coping instrument in the form of an item bank implemented via Computerised adaptive testing (CAT) for hereditary retinal diseases.

Methods

Items on coping were extracted from qualitative interviews with patients which were supplemented by items from a literature review. A systematic multi-stage process of item refinement was carried out followed by expert panel discussion and cognitive interviews. The final coping item bank had 30 items. Rasch analysis was used to assess the psychometric properties. A CAT simulation was carried out to estimate an average number of items required to gain precise measurement of hereditary retinal disease-related coping.

Results

One hundred eighty-nine participants answered the coping item bank (median age = 58 years). The coping scale demonstrated good precision and targeting. The standardised residual loadings for items revealed six items grouped together. Removal of the six items reduced the precision of the main coping scale and worsened the variance explained by the measure. Therefore, the six items were retained within the main scale. Our CAT simulation indicated that, on average, less than 10 items are required to gain a precise measurement of coping.

Conclusions

This is the first study to develop a psychometrically robust coping instrument for hereditary retinal diseases. CAT simulation indicated that on an average, only four and nine items were required to gain measurement at moderate and high precision, respectively.
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Metadata
Title
Developing an item bank to measure the coping strategies of people with hereditary retinal diseases
Authors
Mallika Prem Senthil
Jyoti Khadka
John De Roach
Tina Lamey
Terri McLaren
Isabella Campbell
Eva K Fenwick
Ecosse L. Lamoureux
Konrad Pesudovs
Publication date
01-07-2018
Publisher
Springer Berlin Heidelberg
Published in
Graefe's Archive for Clinical and Experimental Ophthalmology / Issue 7/2018
Print ISSN: 0721-832X
Electronic ISSN: 1435-702X
DOI
https://doi.org/10.1007/s00417-018-3998-5

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