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Published in: BMC Psychiatry 1/2018

Open Access 01-12-2018 | Research article

Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): a qualitative, consumer-led study

Authors: Karen Wells, Justin Newton Scanlan, Lisa Gomez, Scott Rutter, Nicola Hancock, Anthony Tuite, Joanna Ho, Sarah Jacek, Andrew Jones, Hassan Mehdi, Megan Still, Graeme Halliday

Published in: BMC Psychiatry | Issue 1/2018

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Abstract

Background

Electroconvulsive therapy (ECT) is one of the most controversial treatments in psychiatry. This controversy and diverse and often strongly held opinions can make decision making processes around ECT more complex.

Method

This consumer-led project explored the experiences of individuals who had received ECT in terms of the information they received, their experience of ECT and suggestions for ways that decision making processes and experiences of ECT can be improved. Interviews were conducted by consumer researchers who had also received ECT and transcripts were analysed using constant comparative techniques.

Results

Seventeen individuals participated. Four overarching categories were identified from participant interviews: Information matters; Preparation and decisions before ECT; Experience of ECT; and Suggestions for improvement. Most participants suggested that more information was required and that this information should be made available more regularly to support decision making. Additional suggestions included greater involvement of family and friends (including having a family member or friend present during the ECT procedure), opportunities to gain information from individuals who had received ECT and more support for managing memory and cognitive side effects.

Conclusion

This study provides valuable consumer-provided insights and recommendations for psychiatrists and mental health clinicians working within ECT clinics and with consumers considering or preparing for ECT.
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Metadata
Title
Decision making and support available to individuals considering and undertaking electroconvulsive therapy (ECT): a qualitative, consumer-led study
Authors
Karen Wells
Justin Newton Scanlan
Lisa Gomez
Scott Rutter
Nicola Hancock
Anthony Tuite
Joanna Ho
Sarah Jacek
Andrew Jones
Hassan Mehdi
Megan Still
Graeme Halliday
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Psychiatry / Issue 1/2018
Electronic ISSN: 1471-244X
DOI
https://doi.org/10.1186/s12888-018-1813-9

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