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Open Access 15-04-2024 | Review Article

(Data-) Cooperatives in health and social care: a scoping review

Authors: Romy Lauer, Sebastian Merkel, Jennifer Bosompem, Henrike Langer, Peter Naeve, Benjamin Herten, Anja Burmann, Horst Christian Vollmar, Ina Otte, on behalf of the Coop4Health.NRW Consortium

Published in: Journal of Public Health

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Abstract

Aim

To gather information about the structure of cooperatives in health and social care, in general, and data cooperatives, in particular, to derive implications for their future implementation.

Subject and methods

Health and social care systems are currently under pressure due to rising costs and demands. Many hopes lie on digitization, digitalization, and the potentials of health data. A scoping review was conducted searching nine databases and grey literature. Data on information about aim, type, and structure of the cooperatives, member structure, founding process, and their way of financing were extracted.

Results

All searches resulted in 9080 articles and websites. Overall, we included 26 cooperatives and categorized them as follows: (1) worker cooperatives with focus on workers’ rights and service provision to clients, (2) consumer cooperatives, (3) consumer and worker cooperatives, (4) cooperatives of institutions, (5) general practitioner (GP) cooperatives, (6) cooperatives as health insurance models, and (7) health data cooperatives.

Conclusions

Information provided on (data) cooperatives differed greatly in detail. Their common goal is to tackle and overcome existing barriers in their field such as working conditions or unequal health care. We identified five challenges: (1) salary structures; (2) cooperating with other providers and surrounding institutions; (3) building an identity and recruiting potential members; (4) motivation of members to participate actively; and (5) distinction from other types. Benefits are: (1) improvement of conditions; (2) being stronger together; (3) support of research; and (4) data governance. When successful and competent, (data) cooperatives can be powerful tools on public, scientific, and political levels.
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Metadata
Title
(Data-) Cooperatives in health and social care: a scoping review
Authors
Romy Lauer
Sebastian Merkel
Jennifer Bosompem
Henrike Langer
Peter Naeve
Benjamin Herten
Anja Burmann
Horst Christian Vollmar
Ina Otte
on behalf of the Coop4Health.NRW Consortium
Publication date
15-04-2024
Publisher
Springer Berlin Heidelberg
Published in
Journal of Public Health
Print ISSN: 2198-1833
Electronic ISSN: 1613-2238
DOI
https://doi.org/10.1007/s10389-024-02226-x