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Published in: BMC Public Health 1/2021

Open Access 01-12-2021 | Research

Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach

Authors: Anne Perrocheau, Hannah Brindle, Chrissy Roberts, Srinivas Murthy, Sharmila Shetty, Antonio Isidro Carrion Martin, Michael Marks, Karl Schenkel, the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”

Published in: BMC Public Health | Issue 1/2021

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Abstract

Background

Timely but accurate data collection is needed during health emergencies to inform public health responses. Often, an abundance of data is collected but not used. When outbreaks and other health events occur in remote and complex settings, operatives on the ground are often required to cover multiple tasks whilst working with limited resources. Tools that facilitate the collection of essential data during the early investigations of a potential public health event can support effective public health decision-making. We proposed to define the minimum set of quantitative information to collect whilst using electronic device or not. Here we present the process used to select the minimum information required to describe an outbreak of any cause during its initial stages and occurring in remote settings.

Methods

A working group of epidemiologists took part in two rounds of a Delphi process to categorise the variables to be included in an initial outbreak investigation form. This took place between January–June 2019 using an online survey.

Results

At a threshold of 75 %, consensus was reached for nineteen (23.2%) variables which were all classified as ‘essential’. This increased to twenty-six (31.7%) variables when the threshold was reduced to 60% with all but one variable classified as ‘essential’. Twenty-five of these variables were included in the ‘Time zero initial case investigation’ ‘(T0)’ form which was shared with the members of the Rapid Response Team Knowledge Network for field testing and feedback. The form has been readily available online by WHO since September 2019.

Conclusion

This is the first known Delphi process used to determine the minimum variables needed for an outbreak investigation. The subsequent development of the T0 form should help to improve the efficiency and standardisation of data collection during emergencies and ultimately the quality of the data collected during field investigation.
Appendix
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Footnotes
1
A public health event is any event that may have negative consequences for human health. The term includes events that have not yet led to disease in humans but have the potential to cause human disease through exposure to infected or contaminated food, water, animals, manufactured products or environments. In contrast, an outbreak denotes that the event has already caused disease (WHO definition).
 
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Metadata
Title
Data collection for outbreak investigations: process for defining a minimal data set using a Delphi approach
Authors
Anne Perrocheau
Hannah Brindle
Chrissy Roberts
Srinivas Murthy
Sharmila Shetty
Antonio Isidro Carrion Martin
Michael Marks
Karl Schenkel
the “Minimum Variables for Outbreak Investigation Working Group of the WHO Outbreak Toolkit project”
Publication date
01-12-2021
Publisher
BioMed Central
Published in
BMC Public Health / Issue 1/2021
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/s12889-021-12206-5

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