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Published in: Irish Journal of Medical Science (1971 -) 4/2021

01-11-2021 | COVID-19 | Original Article

Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers’ quality of life, and caregivers' fear of COVID-19 with telemedicine

Authors: Damla Cankurtaran, Nihal Tezel, Sadik Yigit Yildiz, Gulnur Celik, Ece Unlu Akyuz

Published in: Irish Journal of Medical Science (1971 -) | Issue 4/2021

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Abstract

Background

The sudden and unexpected pandemic changed the daily routine of the children with cerebral palsy (CP) and their caregivers.

Aims

This study aimed to investigate the impact of the novel coronavirus (COVID-19) pandemic on the utilization of health and rehabilitation services and the general health and physical status of children with CP. In addition, the second aim of the study was to examine the effects of the COVID-19 pandemic on caregivers’ quality of life (QOL) and their fear of COVID-19.

Methods

The utilization of children health and rehabilitation services during the pandemic, the general health and physical status of the children during the pandemic, and the children and caregivers’ history of COVID-19 infections were questioned. Furthermore, the caregivers’ level of fear of COVID-19 and their QOL were examined.

Results

One hundred twenty caregivers were contacted by phone, and 94 (78.33%) caregivers agreed to participate in the study. Sixty-three of 94 children (67.1%) did not attend their routine control check-up during the pandemic. Twelve children (12.8%) discontinued their physical therapy sessions during the pandemic. Caregivers physical and mental QOL significantly decreased during the pandemic (p < 0.05). The median of caregivers’ Fear of COVID-19 scale (FCV-19S) was 17.5 (7–35).

Conclusion

We think that more attention should be given to telerehabilitation and telemedicine services of the clinicians who deal with the children with CP, and their caregivers in order to prevent the negative effects of future pandemic periods.
Literature
8.
go back to reference Yilmaz YalÇinkaya E, KaradaĞ Saygi NE, ÖzyemİŞcİ TaŞkiran Ö et al (2020) Consensus recommendations for botulinum toxin injections in the spasticity management of children with cerebral palsy during COVID-19 outbreak. Turk J Med Sci. https://doi.org/10.3906/sag-2009-5CrossRef Yilmaz YalÇinkaya E, KaradaĞ Saygi NE, ÖzyemİŞcİ TaŞkiran Ö et al (2020) Consensus recommendations for botulinum toxin injections in the spasticity management of children with cerebral palsy during COVID-19 outbreak. Turk J Med Sci. https://​doi.​org/​10.​3906/​sag-2009-5CrossRef
21.
go back to reference Sajedi F, Alizad V, Malekkhosravi G et al (2010) Depression in mothers of children with cerebral palsy and its relation to severity and type of cerebral palsy. Acta Med Iran 48:250–254PubMed Sajedi F, Alizad V, Malekkhosravi G et al (2010) Depression in mothers of children with cerebral palsy and its relation to severity and type of cerebral palsy. Acta Med Iran 48:250–254PubMed
Metadata
Title
Evaluation of the effects of the COVID-19 pandemic on children with cerebral palsy, caregivers’ quality of life, and caregivers' fear of COVID-19 with telemedicine
Authors
Damla Cankurtaran
Nihal Tezel
Sadik Yigit Yildiz
Gulnur Celik
Ece Unlu Akyuz
Publication date
01-11-2021
Publisher
Springer International Publishing
Published in
Irish Journal of Medical Science (1971 -) / Issue 4/2021
Print ISSN: 0021-1265
Electronic ISSN: 1863-4362
DOI
https://doi.org/10.1007/s11845-021-02622-2

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