Published in:
Open Access
01-07-2012 | Poster presentation
Clinical characteristics of children with juvenile dermatomyositis recruited within the first 7 months of the CARRAnet registry
Authors:
Mark F Hoeltzel, Mara L Becker, Angela B Robinson, Brian M Feldman, Adam Huber, Ann M Reed, Juvenile Myositis CARRA Subgroup, CARRAnet Investigators
Published in:
Pediatric Rheumatology
|
Special Issue 1/2012
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Excerpt
Performing quality clinical and translational research in juvenile dermatomyositis (JDM) is difficult due to the rarity of the disease. The Childhood Arthritis and Rheumatology Research Alliance (CARRA) initiated a multi-center observational cohort study to create a foundational clinical database for the major rheumatic diseases of childhood, including JDM. Initial data from the JDM cohort (prevalent and incident cases) enrolled in the first 7 months of this ongoing study are described here. …