Skip to main content
Top
Published in: BMC Geriatrics 1/2023

Open Access 01-12-2023 | Care | Research

Validation of the Benefits of Being a Caregiver Scale (BBCS) – further development of an independent characteristic of informal caregiving

Authors: Anna Pendergrass, Saskia Weiß, Nicolas Rohleder, Elmar Graessel

Published in: BMC Geriatrics | Issue 1/2023

Login to get access

Abstract

Background

Although larger amounts of scientific attention have been directed toward the concept of positive aspects of caregiving (PAC) in recent years, a globally uniform definition and a suitable, scientifically valid questionnaire for all informal caregivers have yet to be developed. On the basis of the questionnaires that already exist for measuring PAC, the authors aimed to (a) concretize the concept and (b) develop a new scale by focusing only on items that show that family caregivers experience a benefit for themselves and that the benefit they experience is the result of their caregiving activities.

Methods

The Benefits of Being a Caregiver Scale (BBCS) was validated on data from 961 informal caregivers. Cronbach's alpha was calculated to assess the internal consistency of the items, and a factor analysis was conducted to determine the structure of the BBCS. The discriminatory power and item difficulties were examined. Construct validity was established by testing four hypotheses.

Results

The factor analysis confirmed the single-factor structure of the BBCS. Cronbach's alpha for the total scale was 0.922. One of the 15 items did not show good to very good discriminatory power and was excluded from the final version of the scale. A higher BBCS score was observed if the caregiver experienced more positive aspects of caregiving and tended to have better general coping skills and a positive relationship with the care-receiver. The BBCS score was not associated with the subjective burden of the caregiver. Results confirmed the validity of the BBCS.

Conclusion

The BBCS is a valid assessment instrument for measuring the benefits that caregivers experience from their caregiving work and can easily be used in research and practice. The BBCS is available free of charge in English and German (http://​www.​caregiver-benefits.​de).
Literature
1.
go back to reference García-Castro FJ, Alba A, Blanca MJ. The role of character strengths in predicting gains in informal caregivers of dementia. Aging Ment Health. 2021;25(1):32–7.CrossRef García-Castro FJ, Alba A, Blanca MJ. The role of character strengths in predicting gains in informal caregivers of dementia. Aging Ment Health. 2021;25(1):32–7.CrossRef
2.
go back to reference Pristavec T. The burden and benefits of caregiving: A latent class analysis. Gerontologist. 2019;59(6):1078–91.CrossRef Pristavec T. The burden and benefits of caregiving: A latent class analysis. Gerontologist. 2019;59(6):1078–91.CrossRef
3.
go back to reference Tarlow BJ, Wisniewski SR, Belle SH, Rubert M, Ory MG, Gallagher-Thompson D. Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Res Aging. 2004;26(4):429–53.CrossRef Tarlow BJ, Wisniewski SR, Belle SH, Rubert M, Ory MG, Gallagher-Thompson D. Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Res Aging. 2004;26(4):429–53.CrossRef
4.
go back to reference Lawton MP, Kleban MH, Moss M, Rovine M, Glicksman A. Measuring caregiving appraisal. J Gerontol. 1989;44(3):P61–71.CrossRef Lawton MP, Kleban MH, Moss M, Rovine M, Glicksman A. Measuring caregiving appraisal. J Gerontol. 1989;44(3):P61–71.CrossRef
5.
go back to reference Faba J, Villar F, Giuliani MF. Development of a measure to evaluate gains among spanish dementia caregivers: The gains associated with caregiving (GAC) scale. Arch Gerontol Geriatr. 2017;68:76–83.CrossRef Faba J, Villar F, Giuliani MF. Development of a measure to evaluate gains among spanish dementia caregivers: The gains associated with caregiving (GAC) scale. Arch Gerontol Geriatr. 2017;68:76–83.CrossRef
6.
go back to reference Zank S, Schacke C, Leipold B. Berliner Inventar zur Angehörigenbelastung-Demenz (BIZA-D). Z Klin Psychol Psychother. 2006;35(4):296–305.CrossRef Zank S, Schacke C, Leipold B. Berliner Inventar zur Angehörigenbelastung-Demenz (BIZA-D). Z Klin Psychol Psychother. 2006;35(4):296–305.CrossRef
7.
go back to reference Yap P, Luo N, Ng WY, Chionh HL, Lim J, Goh J. Gain in Alzheimer care INstrument–A new scale to measure caregiving gains in dementia. Am J Geriatr Psychiatry. 2010;18(1):68–76.CrossRef Yap P, Luo N, Ng WY, Chionh HL, Lim J, Goh J. Gain in Alzheimer care INstrument–A new scale to measure caregiving gains in dementia. Am J Geriatr Psychiatry. 2010;18(1):68–76.CrossRef
8.
go back to reference Hudson P. Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs. 2004;10(2):58–65.CrossRef Hudson P. Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs. 2004;10(2):58–65.CrossRef
9.
go back to reference Pendergrass A, Mittelman M, Graessel E, Özbe D, Karg N. Predictors of the personal benefits and positive aspects of informal caregiving. Aging Ment Health. 2018;23(11);1533–38. Pendergrass A, Mittelman M, Graessel E, Özbe D, Karg N. Predictors of the personal benefits and positive aspects of informal caregiving. Aging Ment Health. 2018;23(11);1533–38.
10.
go back to reference Semiatin AM, O’Connor MK. The relationship between self-efficacy and positive aspects of caregiving in Alzheimer’s disease caregivers. Aging Mental Health. 2012;16(6):683–8.CrossRef Semiatin AM, O’Connor MK. The relationship between self-efficacy and positive aspects of caregiving in Alzheimer’s disease caregivers. Aging Mental Health. 2012;16(6):683–8.CrossRef
11.
go back to reference Schulz R, Belle SH, Czaja SJ, McGinnis KA, Stevens A, Zhang S. Long-term care placement of dementia patients and caregiver health and well-being. JAMA. 2004;292(8):961–7.CrossRef Schulz R, Belle SH, Czaja SJ, McGinnis KA, Stevens A, Zhang S. Long-term care placement of dementia patients and caregiver health and well-being. JAMA. 2004;292(8):961–7.CrossRef
12.
go back to reference Lloyd J, Patterson T, Muers J. The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia. 2016;15(6):1534–61.CrossRef Lloyd J, Patterson T, Muers J. The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia. 2016;15(6):1534–61.CrossRef
13.
go back to reference Sanders S. Is the glass half empty or full? Reflections on strain and gain in cargivers of individuals with Alzheimer’s disease. Soc Work Health Care. 2005;40(3):57–73.CrossRef Sanders S. Is the glass half empty or full? Reflections on strain and gain in cargivers of individuals with Alzheimer’s disease. Soc Work Health Care. 2005;40(3):57–73.CrossRef
14.
go back to reference Haley WE, Allen JY, Grant JS, Clay OJ, Perkins M, Roth DL. Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke. 2009;40(6):2129–33.CrossRef Haley WE, Allen JY, Grant JS, Clay OJ, Perkins M, Roth DL. Problems and benefits reported by stroke family caregivers: results from a prospective epidemiological study. Stroke. 2009;40(6):2129–33.CrossRef
15.
go back to reference Picot SJF, Youngblut J, Zeller R. Development and testing of a measure of perceived caregiver rewards in adults. J Nurs Meas. 1997;5(1):33–52.CrossRef Picot SJF, Youngblut J, Zeller R. Development and testing of a measure of perceived caregiver rewards in adults. J Nurs Meas. 1997;5(1):33–52.CrossRef
16.
go back to reference Strawbridge WJ: The effects of social factors on adult children caring for older parents. University of Washington; 1991. Strawbridge WJ: The effects of social factors on adult children caring for older parents. University of Washington; 1991.
17.
go back to reference Farran CJ, Miller BH, Kaufman JE, Donner E, Fogg L. Finding meaning through caregiving: Development of an instrument for family caregivers of persons with Alzheimer’s disease. J Clin Psychol. 1999;55(9):1107–25.CrossRef Farran CJ, Miller BH, Kaufman JE, Donner E, Fogg L. Finding meaning through caregiving: Development of an instrument for family caregivers of persons with Alzheimer’s disease. J Clin Psychol. 1999;55(9):1107–25.CrossRef
18.
go back to reference Orbell S, Hopkins N, Gillies B. Measuring the impact of informal caring. J Community Appl Soc Psychol. 1993;3(2):149–63.CrossRef Orbell S, Hopkins N, Gillies B. Measuring the impact of informal caring. J Community Appl Soc Psychol. 1993;3(2):149–63.CrossRef
19.
go back to reference Given CW, Given B, Stommel M, Collins C, King S, Franklin S. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health. 1992;15(4):271–83.CrossRef Given CW, Given B, Stommel M, Collins C, King S, Franklin S. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health. 1992;15(4):271–83.CrossRef
20.
go back to reference Schofield HL, Murphy B, Herrman H, Bloch S, Singh B. Family caregiving: Measurement of emotional well-being and various aspects of the caregiving role. Psychol Med. 1997;27(3):647–57.CrossRef Schofield HL, Murphy B, Herrman H, Bloch S, Singh B. Family caregiving: Measurement of emotional well-being and various aspects of the caregiving role. Psychol Med. 1997;27(3):647–57.CrossRef
21.
go back to reference Kinney JM, Stephens MAP. Hassles and uplifts of giving care to a family member with dementia. Psychol Aging. 1989;4(4):402–8.CrossRef Kinney JM, Stephens MAP. Hassles and uplifts of giving care to a family member with dementia. Psychol Aging. 1989;4(4):402–8.CrossRef
22.
go back to reference Motenko AK. The frustrations, gratifications, and well-being of dementia caregivers. Gerontologist. 1989;29(2):166–72.CrossRef Motenko AK. The frustrations, gratifications, and well-being of dementia caregivers. Gerontologist. 1989;29(2):166–72.CrossRef
23.
go back to reference Kramer BJ. Gain in the caregiving experience: Where are we? What next? Gerontologist. 1997;37(2):218–32.CrossRef Kramer BJ. Gain in the caregiving experience: Where are we? What next? Gerontologist. 1997;37(2):218–32.CrossRef
24.
go back to reference Graessel E, Berth H, Lichte T, Grau H. Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s. BMC Geriatr. 2014;14(23):1–9. Graessel E, Berth H, Lichte T, Grau H. Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s. BMC Geriatr. 2014;14(23):1–9.
25.
go back to reference Carver CS. You want to measure coping but your protocol’s too long: consider the Brief COPE. Int J Behav Med. 1997;4(1):92–100.CrossRef Carver CS. You want to measure coping but your protocol’s too long: consider the Brief COPE. Int J Behav Med. 1997;4(1):92–100.CrossRef
27.
go back to reference Wimo A, Winblad B. Resource utilization in dementia: “RUD Lite.” Brain Aging. 2003;3(1):48–59. Wimo A, Winblad B. Resource utilization in dementia: “RUD Lite.” Brain Aging. 2003;3(1):48–59.
28.
go back to reference Bortz J, Döring N. Forschungsmethoden und Evaluation: für Human- und Sozialwissenschaftler. Berlin, Heidelberg: Springer; 2006.CrossRef Bortz J, Döring N. Forschungsmethoden und Evaluation: für Human- und Sozialwissenschaftler. Berlin, Heidelberg: Springer; 2006.CrossRef
29.
go back to reference Pakenham KI, Cox S. Effects of benefit finding, social support and caregiving on youth adjustment in a parental illness context. J Child Fam Stud. 2018;27(8):2491–506.CrossRef Pakenham KI, Cox S. Effects of benefit finding, social support and caregiving on youth adjustment in a parental illness context. J Child Fam Stud. 2018;27(8):2491–506.CrossRef
30.
go back to reference Solberg MA, Gridley MK, Peters RM. The factor structure of the brief cope: A systematic review. West J Nurs Res. 2022;44(6):612–27.CrossRef Solberg MA, Gridley MK, Peters RM. The factor structure of the brief cope: A systematic review. West J Nurs Res. 2022;44(6):612–27.CrossRef
31.
go back to reference Gardner MH, Mrug S, Schwebel DC, Phipps S, Whelan K, Madan-Swain A. Demographic, medical, and psychosocial predictors of benefit finding among caregivers of childhood cancer survivors. Psycho-Oncol. 2017;26(1):125–32.CrossRef Gardner MH, Mrug S, Schwebel DC, Phipps S, Whelan K, Madan-Swain A. Demographic, medical, and psychosocial predictors of benefit finding among caregivers of childhood cancer survivors. Psycho-Oncol. 2017;26(1):125–32.CrossRef
32.
go back to reference Lum HD, Lo D, Hooker S, Bekelman DB. Caregiving in heart failure: Relationship quality is associated with caregiver benefit finding and caregivber burden. Heart Lung. 2014;43(4):306–10.CrossRef Lum HD, Lo D, Hooker S, Bekelman DB. Caregiving in heart failure: Relationship quality is associated with caregiver benefit finding and caregivber burden. Heart Lung. 2014;43(4):306–10.CrossRef
33.
go back to reference Tanji H, Anderson KE, Gruber-Baldini AL, Fishman PS, Reich SG, Weiner WJ, Shulman LM. Mutuality of the marital relationship in Parkinson’s Disease. Mov Disord. 2008;23(13):1843–9.CrossRef Tanji H, Anderson KE, Gruber-Baldini AL, Fishman PS, Reich SG, Weiner WJ, Shulman LM. Mutuality of the marital relationship in Parkinson’s Disease. Mov Disord. 2008;23(13):1843–9.CrossRef
34.
go back to reference Döring N, Bortz J. Forschungsmethoden und Evaluation in den Sozial- und Humanwissenschaften. Berlin, Heidelberg: Springer; 2016.CrossRef Döring N, Bortz J. Forschungsmethoden und Evaluation in den Sozial- und Humanwissenschaften. Berlin, Heidelberg: Springer; 2016.CrossRef
35.
go back to reference Ong AD, Weiss DJ. The impact of anonymity on responses to sensitive questions. J Appl Soc Psychol. 2000;30(8):1691–708.CrossRef Ong AD, Weiss DJ. The impact of anonymity on responses to sensitive questions. J Appl Soc Psychol. 2000;30(8):1691–708.CrossRef
Metadata
Title
Validation of the Benefits of Being a Caregiver Scale (BBCS) – further development of an independent characteristic of informal caregiving
Authors
Anna Pendergrass
Saskia Weiß
Nicolas Rohleder
Elmar Graessel
Publication date
01-12-2023
Publisher
BioMed Central
Keyword
Care
Published in
BMC Geriatrics / Issue 1/2023
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-022-03650-y

Other articles of this Issue 1/2023

BMC Geriatrics 1/2023 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine