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Published in: International Journal for Equity in Health 1/2020

01-12-2020 | Care | Research

The inter-relationship of diversity principles for the enhanced participation of older people in their care: a qualitative study

Authors: Rajna Ogrin, Claudia Meyer, Arti Appannah, Sally McMillan, Colette Browning

Published in: International Journal for Equity in Health | Issue 1/2020

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Abstract

Background

The health and aged care workforce must understand and support the diverse needs of older people to enhance their care experience. We previously identified five principles of diversity training for this workforce: awareness of unconscious bias and prejudice; promotion of inclusion; access and equity; appropriate engagement; and intersectionality. This study aims to explore how these principles are considered from the perspectives of older Australians.

Methods

Older people (≥65 years) receiving home care and nursing services based in Victoria, Australia were invited to participate in a home-based semi-structured interview about their experience of, or with, diversity. Interviews were thematically analysed using a priori categories based on our previous work on principles of diversity training, and themes were interpreted and expanded upon based on the participants’ experiences and understanding of diversity concepts and their care needs.

Results

Fifteen older people (seven female, eight male), mean age 76 years (range 71–85 years), were interviewed. Five themes were drawn from the data. It was found that human connection through building (1) trust and rapport was highly valued as an approach by older people, crucial as a first step to understanding what is important to the older person. Identifying with (2) intersectionality, that is, the different intersecting aspects of who they are and their experiences was understood by the participants as an important framework to meet their needs. The participants were aware of (3) unconscious bias and prejudice by health professionals and its impact on their care. Participants also noted that (4) promotion of inclusion through language was important to for a positive relationship with the healthcare worker. The participants understood that to facilitate human connection, these four principles of human interaction were critical, underpinned by (5) access and equity of the system. A model articulating these relationships was developed.

Conclusion

Health and aged care training should incorporate the five diversity principles to support older people to participate in their own care.
Literature
1.
go back to reference WHO. World Report on Ageing and Health. Geneva: World Health Organisation; 2015. WHO. World Report on Ageing and Health. Geneva: World Health Organisation; 2015.
2.
go back to reference Olsberg D, Winters M. Ageing in place: intergenerational and intrafamilial housing transfers and shifts in later life. Melbourne: AHURI; 2005. Olsberg D, Winters M. Ageing in place: intergenerational and intrafamilial housing transfers and shifts in later life. Melbourne: AHURI; 2005.
3.
go back to reference Allen RES, Wiles JL, Leibing A, Guberman N, Reeve J. The meaning of “aging in place” to older people. The Gerontologist. 2011;52(3):357–66.PubMed Allen RES, Wiles JL, Leibing A, Guberman N, Reeve J. The meaning of “aging in place” to older people. The Gerontologist. 2011;52(3):357–66.PubMed
5.
go back to reference Productivity Commission, An Ageing Australia: Preparing for the Future, Commission Research Paper, Canberra; 2013. Productivity Commission, An Ageing Australia: Preparing for the Future, Commission Research Paper, Canberra; 2013.
6.
go back to reference WHO. People-centred and integrated health services: an overview of the evidence: Interim report. 2015. WHO. People-centred and integrated health services: an overview of the evidence: Interim report. 2015.
7.
go back to reference The Benevolent Society. The drivers of ageism. Melbourne: The Benevolent Society; 2017. The Benevolent Society. The drivers of ageism. Melbourne: The Benevolent Society; 2017.
8.
go back to reference Simkins C. Ageism’s Influence on Health Care Delivery and Nursing Practice. J Stud Nurs Res. 2008;1(1):24–28. Simkins C. Ageism’s Influence on Health Care Delivery and Nursing Practice. J Stud Nurs Res. 2008;1(1):24–28.
9.
go back to reference Dow B, Sparrow P, Moore K, Gaffy E, Yates I. What do older Australians want? Australasian J Ageing. 2013;32(4):236–40.CrossRef Dow B, Sparrow P, Moore K, Gaffy E, Yates I. What do older Australians want? Australasian J Ageing. 2013;32(4):236–40.CrossRef
10.
go back to reference WHO. Global strategy and action plan on ageing and health. Geneva: World Health Organisation; 2017. Contract No.: CC BY-NC-SA 3.0 IGO WHO. Global strategy and action plan on ageing and health. Geneva: World Health Organisation; 2017. Contract No.: CC BY-NC-SA 3.0 IGO
11.
go back to reference WHO. Integrated care for older people: guidelines on community-level interventions to manage declines in intrinsic capacity. Geneva: World Health Organization; 2017. Geneva: World Health Organisation. Contract No.: CC BY-NC-SA 3.0 IGO WHO. Integrated care for older people: guidelines on community-level interventions to manage declines in intrinsic capacity. Geneva: World Health Organization; 2017. Geneva: World Health Organisation. Contract No.: CC BY-NC-SA 3.0 IGO
12.
go back to reference Cheung NW, Crampton M, Nesire V, Hng T-M, Chow CK. obotWSICPI. Model for integrated care for chronic disease in the Australian context: Western Sydney integrated care program. Aust Health Rev. 2019;43(5):565–71. Cheung NW, Crampton M, Nesire V, Hng T-M, Chow CK. obotWSICPI. Model for integrated care for chronic disease in the Australian context: Western Sydney integrated care program. Aust Health Rev. 2019;43(5):565–71.
13.
go back to reference WHO launches digital app to improve care for older people [press release]. Geneva: World Health Organisation, 2019. WHO launches digital app to improve care for older people [press release]. Geneva: World Health Organisation, 2019.
14.
go back to reference Thiyagarajan JA, Araujo de Carvalho I, Peña-Rosas JP, Chadha S, Mariotti SP, Dua T, et al. Redesigning care for older people to preserve physical and mental capacity: WHO guidelines on community-level interventions in integrated care. PLOS Med. 2019;16(10):e1002948.PubMedPubMedCentralCrossRef Thiyagarajan JA, Araujo de Carvalho I, Peña-Rosas JP, Chadha S, Mariotti SP, Dua T, et al. Redesigning care for older people to preserve physical and mental capacity: WHO guidelines on community-level interventions in integrated care. PLOS Med. 2019;16(10):e1002948.PubMedPubMedCentralCrossRef
15.
go back to reference Australian Government. The aged care roadmap. In: health do, editor. Canberra: Australian Government; 2016. Australian Government. The aged care roadmap. In: health do, editor. Canberra: Australian Government; 2016.
16.
go back to reference Health Foundation. Evidence scan: personal health budgets. 2010. Health Foundation. Evidence scan: personal health budgets. 2010.
17.
go back to reference van Ginneken E, Groenewegen PP, McKee M. Personal healthcare budgets: what can England learn from the Netherlands? BMJ. 2012;344:e1383.PubMedCrossRef van Ginneken E, Groenewegen PP, McKee M. Personal healthcare budgets: what can England learn from the Netherlands? BMJ. 2012;344:e1383.PubMedCrossRef
18.
go back to reference Department of Social Services. Home Care Packages Programme Guidelines. In: Department of Social Services. Canberra: Australian Government; 2014. Department of Social Services. Home Care Packages Programme Guidelines. In: Department of Social Services. Canberra: Australian Government; 2014.
19.
go back to reference Aged Care Sector Committee Diversity Sub-group. Aged care diversity framework. Canberra: Department of Health; 2017. Aged Care Sector Committee Diversity Sub-group. Aged care diversity framework. Canberra: Department of Health; 2017.
20.
go back to reference Australian Government. In: Department of Health, editor. Future reform – an integrated care at home program to support older Australians. Canberra: Australian Government; 2017. Australian Government. In: Department of Health, editor. Future reform – an integrated care at home program to support older Australians. Canberra: Australian Government; 2017.
21.
go back to reference Meyer C, Ogrin R, Al-Zubaidi H, Appannah A, McMillan S, Barrett E, et al. Diversity training for community aged care workers: an interdisciplinary meta-narrative review. Educ Gerontol. 2017;43(7):365–78.CrossRef Meyer C, Ogrin R, Al-Zubaidi H, Appannah A, McMillan S, Barrett E, et al. Diversity training for community aged care workers: an interdisciplinary meta-narrative review. Educ Gerontol. 2017;43(7):365–78.CrossRef
22.
go back to reference Pendry L, Driscoll D, Field S. Diversity training: putting theory into practice. J Occup Organ Psychol. 2007;80(1):27–50.CrossRef Pendry L, Driscoll D, Field S. Diversity training: putting theory into practice. J Occup Organ Psychol. 2007;80(1):27–50.CrossRef
23.
go back to reference WHO. Closing the gap in a generation: Health equity through action on the social determinants of health. Geneva: Commission on Social Determinants of Health, World Health Organization; 2008. WHO. Closing the gap in a generation: Health equity through action on the social determinants of health. Geneva: Commission on Social Determinants of Health, World Health Organization; 2008.
24.
go back to reference Qin J, Muenjohn N, Chhetri P. A review of diversity conceptualizations: variety, trends, and a framework. Hum Resour Dev Rev. 2014;13(2):133–57.CrossRef Qin J, Muenjohn N, Chhetri P. A review of diversity conceptualizations: variety, trends, and a framework. Hum Resour Dev Rev. 2014;13(2):133–57.CrossRef
25.
go back to reference Vinz D, Doren M. Diversity policies and practices - a new perspective for health care. J Public Health. 2007;15(5):369–76.CrossRef Vinz D, Doren M. Diversity policies and practices - a new perspective for health care. J Public Health. 2007;15(5):369–76.CrossRef
26.
go back to reference Commonwealth Government of Australia. Aged Care Act. Canberra: Commonwealth Government of Australia; 1997. Commonwealth Government of Australia. Aged Care Act. Canberra: Commonwealth Government of Australia; 1997.
27.
go back to reference Thórarinsdóttir K, Kristjánsson K. Patients' perspectives on person-centred participation in healthcare: a framework analysis. Nurs Ethics. 2014;21(2):129–47.PubMedCrossRef Thórarinsdóttir K, Kristjánsson K. Patients' perspectives on person-centred participation in healthcare: a framework analysis. Nurs Ethics. 2014;21(2):129–47.PubMedCrossRef
28.
go back to reference Hankivsky O, Grace D, Hunting G, Giesbrecht M, Fridkin A, Rudrum S, et al. An intersectionality-based policy analysis framework: Critical reflections on a methodology for advancing equity. Int J Equity Health. 2014;13:119.PubMedPubMedCentralCrossRef Hankivsky O, Grace D, Hunting G, Giesbrecht M, Fridkin A, Rudrum S, et al. An intersectionality-based policy analysis framework: Critical reflections on a methodology for advancing equity. Int J Equity Health. 2014;13:119.PubMedPubMedCentralCrossRef
29.
go back to reference Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.CrossRef Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.CrossRef
30.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef
31.
go back to reference QSR International Pty Ltd. NVivo. 11 ed 2016. QSR International Pty Ltd. NVivo. 11 ed 2016.
32.
33.
go back to reference de São JJ, Barros R, Samitca S, Teixeira A. Older persons’ experiences and perspectives of receiving social care: a systematic review of the qualitative literature. Health Soc Care Commun. 2016;24(1):1–11.CrossRef de São JJ, Barros R, Samitca S, Teixeira A. Older persons’ experiences and perspectives of receiving social care: a systematic review of the qualitative literature. Health Soc Care Commun. 2016;24(1):1–11.CrossRef
34.
go back to reference de Jonge DM, Jones A, Phillips R, Chung M. Understanding the essence of home: older people's experience of home in Australia. Occup Ther Int. 2011;18(1):39–47.PubMedCrossRef de Jonge DM, Jones A, Phillips R, Chung M. Understanding the essence of home: older people's experience of home in Australia. Occup Ther Int. 2011;18(1):39–47.PubMedCrossRef
35.
go back to reference Gregory A, Mackintosh S, Kumar S, Grech C. Experiences of health care for older people who need support to live at home: a systematic review of the qualitative literature. Geriatr Nurs. 2017;38(4):315–24.PubMedCrossRef Gregory A, Mackintosh S, Kumar S, Grech C. Experiences of health care for older people who need support to live at home: a systematic review of the qualitative literature. Geriatr Nurs. 2017;38(4):315–24.PubMedCrossRef
36.
go back to reference Themessl-Huber M, Hubbard G, Munro PAT. Frail older people's experiences and use of health and social care services. J Nurs Manag. 2007;15(2):222–9.PubMedCrossRef Themessl-Huber M, Hubbard G, Munro PAT. Frail older people's experiences and use of health and social care services. J Nurs Manag. 2007;15(2):222–9.PubMedCrossRef
37.
go back to reference Street RL, Makoul G, Arora NK, Epstein RM. How does communication heal? Pathways linking clinician–patient communication to health outcomes. Patient Educ Couns. 2009;74(3):295–301.PubMedCrossRef Street RL, Makoul G, Arora NK, Epstein RM. How does communication heal? Pathways linking clinician–patient communication to health outcomes. Patient Educ Couns. 2009;74(3):295–301.PubMedCrossRef
38.
go back to reference Meyer C, Appannah A, McMillan S, Browning C, Ogrin R. “One size does not fit all”: Perspectives on diversity in community aged care. Australasian J Ageing. 2018;37:268–74.CrossRef Meyer C, Appannah A, McMillan S, Browning C, Ogrin R. “One size does not fit all”: Perspectives on diversity in community aged care. Australasian J Ageing. 2018;37:268–74.CrossRef
39.
go back to reference Malatzky C, Mitchell O, Bourke L. Improving inclusion in rural health services for marginalised community members: developing a process for change. J Soc Incl. 2018;9(1):21–36. Malatzky C, Mitchell O, Bourke L. Improving inclusion in rural health services for marginalised community members: developing a process for change. J Soc Incl. 2018;9(1):21–36.
40.
go back to reference Meyer C, McMillan S, Browning C, Appannah A, Ogrin R. Design of an evidence-based diversity workshop to support participation of older people in their community care Educational. Gerontology. 2018;44(5–6):391–402. Meyer C, McMillan S, Browning C, Appannah A, Ogrin R. Design of an evidence-based diversity workshop to support participation of older people in their community care Educational. Gerontology. 2018;44(5–6):391–402.
41.
go back to reference Bastemeijer CM, Voogt L, van Ewijk JP, Hazelzet JA. What do patient values and preferences mean? A taxonomy based on a systematic review of qualitative papers. Patient Educ Couns. 2017;100(5):871–81.PubMedCrossRef Bastemeijer CM, Voogt L, van Ewijk JP, Hazelzet JA. What do patient values and preferences mean? A taxonomy based on a systematic review of qualitative papers. Patient Educ Couns. 2017;100(5):871–81.PubMedCrossRef
42.
go back to reference Lewin G, De San MK, Knuiman M, Alan J, Boldy D, Hendrie D, et al. A randomised controlled trial of the home Independence program, an Australian restorative home-care programme for older adults. Health Soc Care Commun. 2013;21(1):69–78.CrossRef Lewin G, De San MK, Knuiman M, Alan J, Boldy D, Hendrie D, et al. A randomised controlled trial of the home Independence program, an Australian restorative home-care programme for older adults. Health Soc Care Commun. 2013;21(1):69–78.CrossRef
43.
go back to reference Metzelthin SF, Zijlstra GA. Rossum Ev, de man-van Ginkel JM, Resnick B, Lewin G, et al. ‘doing with … ’ rather than ‘doing for … ’ older adults: rationale and content of the ‘stay active at home’ programme. Clin Rehabil. 2017;31(11):1419–30.PubMedPubMedCentralCrossRef Metzelthin SF, Zijlstra GA. Rossum Ev, de man-van Ginkel JM, Resnick B, Lewin G, et al. ‘doing with … ’ rather than ‘doing for … ’ older adults: rationale and content of the ‘stay active at home’ programme. Clin Rehabil. 2017;31(11):1419–30.PubMedPubMedCentralCrossRef
44.
go back to reference World Health Organization. Social determinants of health: the solid facts. Geneva: World Health Organization; 2003. World Health Organization. Social determinants of health: the solid facts. Geneva: World Health Organization; 2003.
45.
go back to reference Westerberg K, Hjelte J, Josefsson S. Understanding eldercare users' views on quality of care and strategies for dealing with problems in Swedish home help services. Health Soc Care Commun. 2017;25(2):621–9.CrossRef Westerberg K, Hjelte J, Josefsson S. Understanding eldercare users' views on quality of care and strategies for dealing with problems in Swedish home help services. Health Soc Care Commun. 2017;25(2):621–9.CrossRef
46.
go back to reference Leininger M. Leininger's theory of nursing: cultural care diversity and universality. Nurs Sci Q. 1988;1(4):152–60.PubMedCrossRef Leininger M. Leininger's theory of nursing: cultural care diversity and universality. Nurs Sci Q. 1988;1(4):152–60.PubMedCrossRef
Metadata
Title
The inter-relationship of diversity principles for the enhanced participation of older people in their care: a qualitative study
Authors
Rajna Ogrin
Claudia Meyer
Arti Appannah
Sally McMillan
Colette Browning
Publication date
01-12-2020
Publisher
BioMed Central
Keyword
Care
Published in
International Journal for Equity in Health / Issue 1/2020
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/s12939-020-1124-x

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