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Published in: Health and Quality of Life Outcomes 1/2019

Open Access 01-12-2019 | Care | Research

Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care

Authors: Maja Holm, Anette Alvariza, Carl-Johan Fürst, Joakim Öhlen, Kristofer Årestedt

Published in: Health and Quality of Life Outcomes | Issue 1/2019

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Abstract

Introduction

In palliative care, family caregivers are often faced with experiences of grief in anticipation of the loss of a close person. An instrument designed to measure this form of grief is the Anticipatory Grief Scale, which includes 27 items and has been used in several studies in various contexts. However, the instrument has not been validated.

Aim

The aim was to evaluate the psychometric properties, focusing on the factor structure, of the Anticipatory Grief Scale in a sample of family caregivers in palliative care.

Methods

The study had a cross-sectional design. Data were collected from an intervention study in palliative home care that took place between 2013 and 2014. In total, 270 family caregivers in palliative care completed a baseline questionnaire, including the Anticipatory Grief Scale. The factor structure of the scale was evaluated using exploratory factor analysis.

Results

The initial factor analysis suggested a four-factor solution, but, due to weak communalities, extensive crossloadings, and item inconsistencies, the model was problematic. Further analysis supported that the scale should be reduced to 13 items and two factors. The two subscales captured the behavioral and emotional reactions of grief in family caregivers in palliative care and were named Behavioral reactions and Emotional reactions. This modified version will hereafter be named AGS-13.

Conclusions

This validation study of the Anticipatory Grief Scale resulted in a revised two-factor model, AGS-13, that appears to be promising for use in palliative care but needs to be tested further.
Literature
1.
go back to reference Jordan A, Litz B. Prolonged grief disorder: diagnostic, assessment, and treatment considerations. Prof Psychol Res Pract. 2014;45:180–7. Jordan A, Litz B. Prolonged grief disorder: diagnostic, assessment, and treatment considerations. Prof Psychol Res Pract. 2014;45:180–7.
2.
go back to reference Parkes, C.M.P, H Bereavement: Studies of grief in adult life, Fourth Edition., New York: Routledge 2010. Parkes, C.M.P, H Bereavement: Studies of grief in adult life, Fourth Edition., New York: Routledge 2010.
3.
go back to reference Lindemann E. Symptomatology and management of acute grief. Am J Psychiatry. 1944;151(6 Suppl):155–60. Lindemann E. Symptomatology and management of acute grief. Am J Psychiatry. 1944;151(6 Suppl):155–60.
4.
go back to reference Rowland C, et al. The contributions of family care-givers at end of life: a national post-bereavement census survey of cancer carers' hours of care and expenditures. Palliat Med. 2017;31(4):346–55.PubMedCentral Rowland C, et al. The contributions of family care-givers at end of life: a national post-bereavement census survey of cancer carers' hours of care and expenditures. Palliat Med. 2017;31(4):346–55.PubMedCentral
5.
go back to reference Grande G, et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med. 2009;23(4):339–44. Grande G, et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med. 2009;23(4):339–44.
6.
go back to reference Moon PJ. Anticipatory grief: a mere concept? Am J Hosp Palliat Care. 2016;33(5):417–20. Moon PJ. Anticipatory grief: a mere concept? Am J Hosp Palliat Care. 2016;33(5):417–20.
7.
go back to reference Johansson AK, Grimby A. Anticipatory grief among close relatives of patients in hospice and palliative wards. Am J Hosp Palliat Care. 2012;29(2):134–8. Johansson AK, Grimby A. Anticipatory grief among close relatives of patients in hospice and palliative wards. Am J Hosp Palliat Care. 2012;29(2):134–8.
8.
go back to reference Nielsen MK, et al. Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement. Clin Psychol Rev. 2016;44:75–93. Nielsen MK, et al. Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement. Clin Psychol Rev. 2016;44:75–93.
9.
go back to reference Lindauer A, Harvath TA. Pre-death grief in the context of dementia caregiving: a concept analysis. J Adv Nurs. 2014;70(10):2196–207. Lindauer A, Harvath TA. Pre-death grief in the context of dementia caregiving: a concept analysis. J Adv Nurs. 2014;70(10):2196–207.
10.
go back to reference Coelho A, Barbosa A. Family anticipatory grief: an integrative literature review. Am J Hosp Palliat Care. 2016;34(8)774–785. Coelho A, Barbosa A. Family anticipatory grief: an integrative literature review. Am J Hosp Palliat Care. 2016;34(8)774–785.
11.
go back to reference Rando TA. Anticipatory grief: the term is a misnomer but the phenomenon exists. J Palliat Care. 1988;4(1–2):70–3. Rando TA. Anticipatory grief: the term is a misnomer but the phenomenon exists. J Palliat Care. 1988;4(1–2):70–3.
12.
go back to reference Stroebe W, Schut H, Stroebe MS. Grief work, disclosure and counseling: do they help the bereaved? Clin Psychol Rev. 2005;25(4):395–414. Stroebe W, Schut H, Stroebe MS. Grief work, disclosure and counseling: do they help the bereaved? Clin Psychol Rev. 2005;25(4):395–414.
13.
go back to reference Nielsen MK, et al. Pre-loss grief in family caregivers during end-of-life cancer care: a nationwide population-based cohort study. Psychooncology. 2017. Nielsen MK, et al. Pre-loss grief in family caregivers during end-of-life cancer care: a nationwide population-based cohort study. Psychooncology. 2017.
14.
go back to reference Nielsen MK, et al. Predictors of complicated grief and depression in bereaved caregivers: a Nationwide prospective cohort study. J Pain Symptom Manag. 2017;53(3):540–50. Nielsen MK, et al. Predictors of complicated grief and depression in bereaved caregivers: a Nationwide prospective cohort study. J Pain Symptom Manag. 2017;53(3):540–50.
15.
go back to reference Tomarken A, et al. Factors of complicated grief pre-death in caregivers of cancer patients. Psychooncology. 2008;17(2):105–11.PubMedCentral Tomarken A, et al. Factors of complicated grief pre-death in caregivers of cancer patients. Psychooncology. 2008;17(2):105–11.PubMedCentral
16.
go back to reference Thomas K, et al. Risk factors for developing prolonged grief during bereavement in family carers of cancer patients in palliative care: a longitudinal study. J Pain Symptom Manag. 2014;47(3):531–41. Thomas K, et al. Risk factors for developing prolonged grief during bereavement in family carers of cancer patients in palliative care: a longitudinal study. J Pain Symptom Manag. 2014;47(3):531–41.
17.
go back to reference Faschingbauer T. Texas revised inventory of grief manual. Houston, Texas: Honeycomb Publishing Co; 1981. Faschingbauer T. Texas revised inventory of grief manual. Houston, Texas: Honeycomb Publishing Co; 1981.
18.
go back to reference Liu NC, Lai EY. Find a way out: bereavement support in Taiwan hospice. Support Care Cancer. 2006;14(1):4–10. Liu NC, Lai EY. Find a way out: bereavement support in Taiwan hospice. Support Care Cancer. 2006;14(1):4–10.
19.
go back to reference Johansson UE, Grimby A. Anticipatory grief among close relatives of patients with Parkinson's disease. Behavioral sciences. 2014;3(5):179–84. Johansson UE, Grimby A. Anticipatory grief among close relatives of patients with Parkinson's disease. Behavioral sciences. 2014;3(5):179–84.
20.
go back to reference Burke LA, et al. Risk factors for anticipatory grief in family members of terminally ill veterans receiving palliative care services. J Soc Work End Life Palliat Care. 2015;11(3–4):244–66. Burke LA, et al. Risk factors for anticipatory grief in family members of terminally ill veterans receiving palliative care services. J Soc Work End Life Palliat Care. 2015;11(3–4):244–66.
21.
go back to reference Lisspers J, Nygren A, Soderman E. Hospital anxiety and depression scale (HAD): some psychometric data for a Swedish sample. Acta Psychiatr Scand. 1997;96(4):281–6. Lisspers J, Nygren A, Soderman E. Hospital anxiety and depression scale (HAD): some psychometric data for a Swedish sample. Acta Psychiatr Scand. 1997;96(4):281–6.
22.
go back to reference Holm M, et al. Psychometric evaluation of the Texas revised inventory of grief in a sample of bereaved family caregivers. Res Nurs Health. 2018;41(5):480–8. Holm M, et al. Psychometric evaluation of the Texas revised inventory of grief in a sample of bereaved family caregivers. Res Nurs Health. 2018;41(5):480–8.
23.
go back to reference Clark LA, Watson D. Constructing validity: basic issues in objective scale development. Psychol Assess. 1995;7(3):309–19. Clark LA, Watson D. Constructing validity: basic issues in objective scale development. Psychol Assess. 1995;7(3):309–19.
24.
go back to reference Jöreskog KG. Structural equation modelling with ordinal varaibles using LISREL. Skokie, IL: Scientific Software International; 2005. Jöreskog KG. Structural equation modelling with ordinal varaibles using LISREL. Skokie, IL: Scientific Software International; 2005.
25.
go back to reference Pett MA, Lackey NR, Sullivan JJ. Making sense of factor analysis: the use of factor analysis for instrument development in healt. Thousand Oaks, CA: Sage; 2003. Pett MA, Lackey NR, Sullivan JJ. Making sense of factor analysis: the use of factor analysis for instrument development in healt. Thousand Oaks, CA: Sage; 2003.
26.
go back to reference Gadermann AM. G.M., Zumbo BD, Estimating ordinal reliability for Likert-type and ordinal item response data: a conceptual, empirical, and practical guide. . Practical assessment. Research & Evaluation. 2012;17(3):1–13. Gadermann AM. G.M., Zumbo BD, Estimating ordinal reliability for Likert-type and ordinal item response data: a conceptual, empirical, and practical guide. . Practical assessment. Research & Evaluation. 2012;17(3):1–13.
27.
go back to reference Nunally, J.C.B, I. Psychometric theory. 3 rd edition, New York, Ny: McGraw-Hill 1994. Nunally, J.C.B, I. Psychometric theory. 3 rd edition, New York, Ny: McGraw-Hill 1994.
28.
go back to reference Fayers P, Machin D. Quality of life: the assessment, analysis, and interpretation of patient-reported outcomes. 2nd ed. Chichester: Wiley; 2007. Fayers P, Machin D. Quality of life: the assessment, analysis, and interpretation of patient-reported outcomes. 2nd ed. Chichester: Wiley; 2007.
29.
go back to reference Solis Salazar M. The dilemma of combining positive and negative items in scales. Psicothema. 2015;27(2):192–200. Solis Salazar M. The dilemma of combining positive and negative items in scales. Psicothema. 2015;27(2):192–200.
30.
go back to reference Theut SK, et al. Caregiver's anticipatory grief in dementia: a pilot study. Int J Aging Hum Dev. 1991;33(2):113–8. Theut SK, et al. Caregiver's anticipatory grief in dementia: a pilot study. Int J Aging Hum Dev. 1991;33(2):113–8.
31.
go back to reference Sawatzky R, et al. Modern perspectives of measurement validation emphasize justification of inferences based on patient-reported outcome scores: seventh paper in a series on patient reported outcomes. J Clin Epidemiol. 2016. Sawatzky R, et al. Modern perspectives of measurement validation emphasize justification of inferences based on patient-reported outcome scores: seventh paper in a series on patient reported outcomes. J Clin Epidemiol. 2016.
32.
go back to reference Stroebe M, Schut H. The dual process model of coping with bereavement: rationale and description. Death Stud. 1999;23(3):197–224. Stroebe M, Schut H. The dual process model of coping with bereavement: rationale and description. Death Stud. 1999;23(3):197–224.
33.
go back to reference Roszkowski MJS. M., Shifting gears: consequences of including two negatively worded items in the middle of a positively worded questionnaire. Assess Eval High Educ. 2010;35(1):117–34. Roszkowski MJS. M., Shifting gears: consequences of including two negatively worded items in the middle of a positively worded questionnaire. Assess Eval High Educ. 2010;35(1):117–34.
34.
go back to reference Weijters B, Baumgartner H. Misresponse to reversed and negated items in surveys: a review. J Mark Res. 2012;49(5):737–47. Weijters B, Baumgartner H. Misresponse to reversed and negated items in surveys: a review. J Mark Res. 2012;49(5):737–47.
35.
go back to reference Hudson PL, et al. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010;24(7):656–68. Hudson PL, et al. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010;24(7):656–68.
36.
go back to reference Streiner D, Norman G. Health measurement scales: a practical guide to their development and use. 2nd ed. Oxford: Oxford University Press; 2015. Streiner D, Norman G. Health measurement scales: a practical guide to their development and use. 2nd ed. Oxford: Oxford University Press; 2015.
37.
go back to reference Olsson U. Maximum likelihood estimation of the polychoric correlation coefficient. Psykometrika. 1979;44:443–4. Olsson U. Maximum likelihood estimation of the polychoric correlation coefficient. Psykometrika. 1979;44:443–4.
38.
go back to reference Brown AB. Confirmatory factor analysis for applied research. 2nd ed. New York: The Guilford Press; 2015. Brown AB. Confirmatory factor analysis for applied research. 2nd ed. New York: The Guilford Press; 2015.
39.
go back to reference Forero CG, Maydeu-Olivares A, Gallardo-Pujol D. Factor analysis with ordinal indicators: a Monte Carlo study comparing DWLS and ULS estimation. Structural Equation Modeling-a Multidisciplinary Journal. 2009;16(4):625–41. Forero CG, Maydeu-Olivares A, Gallardo-Pujol D. Factor analysis with ordinal indicators: a Monte Carlo study comparing DWLS and ULS estimation. Structural Equation Modeling-a Multidisciplinary Journal. 2009;16(4):625–41.
40.
go back to reference Hair J, RL ART, Black WC. Multivariate data analysis. 4th ed. New Jersey: Prentice-Hall Inc; 1995. Hair J, RL ART, Black WC. Multivariate data analysis. 4th ed. New Jersey: Prentice-Hall Inc; 1995.
41.
go back to reference Costello A, Osborne J. Best practices in exploratory factor analysis: four recommendations for getting the Most from your analysis. Pract Assess Res Eval. 2005;10(7). Costello A, Osborne J. Best practices in exploratory factor analysis: four recommendations for getting the Most from your analysis. Pract Assess Res Eval. 2005;10(7).
Metadata
Title
Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care
Authors
Maja Holm
Anette Alvariza
Carl-Johan Fürst
Joakim Öhlen
Kristofer Årestedt
Publication date
01-12-2019
Publisher
BioMed Central
Keyword
Care
Published in
Health and Quality of Life Outcomes / Issue 1/2019
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-019-1110-4

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