Skip to main content
Top
Published in: Journal of Public Health 8/2023

Open Access 22-12-2021 | Care | Original Article

The frequency and time point of outpatient palliative care integration for people before death: an analysis of health insurance data in Lower Saxony, Germany

Authors: Arvid Willinger, Melissa Hemmerling, Jona Theodor Stahmeyer, Nils Schneider, Stephanie Stiel

Published in: Journal of Public Health | Issue 8/2023

Login to get access

Abstract

Aim

This study aimed to analyse the number of deceased people who received different types of outpatient palliative care, the length of time prior to death that care was initiated, and their palliative care trajectory including the rate of hospital death.

Subject and methods

Data on 35,514 adults insured by the statutory health insurance who died in 2017 in Lower Saxony, Germany, were analysed. The study examined the provision of three different types of outpatient palliative care: general (GPC), intermediate (IPC) and specialised palliative care (SPC). In addition, oncological palliative care services (OS) were considered. Descriptive analyses include frequencies, timing and duration of these services, the number of inpatient hospital stays and hospital deaths.

Results

Prior to death, 31.4% of the deceased received outpatient palliative care: 21.3% GPC, 6.4% GPC with IPC and/or SPC and/or OS; and 3.7% IPC and/or SPC and/or OS, but no GPC. On average, GPC and OS were initiated 9 months and SPC 3 months prior to death. Six percent of the analytic sample received outpatient palliative care more than 2 years before death. Compared to those without outpatient palliative care, patients who received outpatient palliative care had more and longer inpatient hospital stays, but less frequently died in hospital.

Conclusion

Early outpatient palliative care took place in a minor percentage of deceased. Outpatient palliative care starts late before death for most patients, but enables more people not to die in hospital. However, significantly fewer people receive outpatient palliative care relative to current demand estimates. This is particularly true of general outpatient palliative care.
Literature
go back to reference Dasch B, Zahn P K (2021) Place of death trends and utilization of outpatient palliative Care at the end of life-analysis of death certificates (2001, 2011, 2017) and Pseudonymized data from selected palliative medicine consultation services (2017) in Westphalia, Germany. Dtsch Arztebl Int 118 (forthcoming). https://doi.org/10.3238/arztebl.m2021.0124 Dasch B, Zahn P K (2021) Place of death trends and utilization of outpatient palliative Care at the end of life-analysis of death certificates (2001, 2011, 2017) and Pseudonymized data from selected palliative medicine consultation services (2017) in Westphalia, Germany. Dtsch Arztebl Int 118 (forthcoming). https://​doi.​org/​10.​3238/​arztebl.​m2021.​0124
go back to reference Ditscheid B, Krause M, Lehmann T, Stichling K, Jansky M, Nauck F, Wedding U, Schneider W, Marschall U, Meissner W, Freytag A, die SAVOIR-Studiengruppe (2020) Palliative care at the end of life in Germany: utilization and regional distribution. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 63:1502–1510. https://doi.org/10.1007/s00103-020-03240-6CrossRef Ditscheid B, Krause M, Lehmann T, Stichling K, Jansky M, Nauck F, Wedding U, Schneider W, Marschall U, Meissner W, Freytag A, die SAVOIR-Studiengruppe (2020) Palliative care at the end of life in Germany: utilization and regional distribution. Bundesgesundheitsbl Gesundheitsforsch Gesundheitsschutz 63:1502–1510. https://​doi.​org/​10.​1007/​s00103-020-03240-6CrossRef
go back to reference Hui D, Kim S H, Roquemore J, Dev R, Chisholm G, Bruera E (2014) Impact of timing and setting of palliative care referral on quality of end-of-life care in cancer patients. Wiley Online Library https://doi.org/10.1002/cncr.28628. Accessed 6 Sept 2021 Hui D, Kim S H, Roquemore J, Dev R, Chisholm G, Bruera E (2014) Impact of timing and setting of palliative care referral on quality of end-of-life care in cancer patients. Wiley Online Library https://​doi.​org/​10.​1002/​cncr.​28628. Accessed 6 Sept 2021
go back to reference Murray SA, Firth A, Schneider N, Van den Eynden B, Gomez-Batiste X, Brogaard T, Villanueva T, Abela J, Eychmuller S, Mitchell G, Downing J, Sallnow L, van Rijswijk E, Barnard A, Lynch M, Fogen F, Moine S (2015) Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care. Palliat Med 29:101–111. https://doi.org/10.1177/0269216314545006CrossRefPubMed Murray SA, Firth A, Schneider N, Van den Eynden B, Gomez-Batiste X, Brogaard T, Villanueva T, Abela J, Eychmuller S, Mitchell G, Downing J, Sallnow L, van Rijswijk E, Barnard A, Lynch M, Fogen F, Moine S (2015) Promoting palliative care in the community: production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care. Palliat Med 29:101–111. https://​doi.​org/​10.​1177/​0269216314545006​CrossRefPubMed
go back to reference Oishi A, Murtagh FE (2014) The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: a systematic review of views from patients, carers and health-care professionals. Palliat Med 28(1081-1098). https://doi.org/10.1177/0269216314531999 Oishi A, Murtagh FE (2014) The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: a systematic review of views from patients, carers and health-care professionals. Palliat Med 28(1081-1098). https://​doi.​org/​10.​1177/​0269216314531999​
go back to reference Soziale Pflegeversicherung (2021) Sozialgesetzbuch (SGB) - Elftes Buch (XI) §14 Begriff der Pflegebedürftigkeit. Bundesamt für Justiz, Germany Soziale Pflegeversicherung (2021) Sozialgesetzbuch (SGB) - Elftes Buch (XI) §14 Begriff der Pflegebedürftigkeit. Bundesamt für Justiz, Germany
go back to reference Spezialisierte Ambulante Palliatvversorgung (2019) Social Security Code V §37b Sozialgesetzbuch V, Germany Spezialisierte Ambulante Palliatvversorgung (2019) Social Security Code V §37b Sozialgesetzbuch V, Germany
go back to reference Stiel S, Ewertowski H, Krause O, Schneider N (2020) What do positive and negative experiences of patients, relatives, general practitioners, medical assistants, and nurses tell us about barriers and supporting factors in outpatient palliative care? A critical incident interview study. Ger Med Sci 18:Doc08. https://doi.org/10.3205/000284 Stiel S, Ewertowski H, Krause O, Schneider N (2020) What do positive and negative experiences of patients, relatives, general practitioners, medical assistants, and nurses tell us about barriers and supporting factors in outpatient palliative care? A critical incident interview study. Ger Med Sci 18:Doc08. https://​doi.​org/​10.​3205/​000284
Metadata
Title
The frequency and time point of outpatient palliative care integration for people before death: an analysis of health insurance data in Lower Saxony, Germany
Authors
Arvid Willinger
Melissa Hemmerling
Jona Theodor Stahmeyer
Nils Schneider
Stephanie Stiel
Publication date
22-12-2021
Publisher
Springer Berlin Heidelberg
Published in
Journal of Public Health / Issue 8/2023
Print ISSN: 2198-1833
Electronic ISSN: 1613-2238
DOI
https://doi.org/10.1007/s10389-021-01672-1

Other articles of this Issue 8/2023

Journal of Public Health 8/2023 Go to the issue