Skip to main content
Top
Published in: BMC Health Services Research 1/2019

Open Access 01-12-2019 | Care | Research article

How is patient involvement measured in patient centeredness scales for health professionals? A systematic review of their measurement properties and content

Authors: Eline Ree, Siri Wiig, Tanja Manser, Marianne Storm

Published in: BMC Health Services Research | Issue 1/2019

Login to get access

Abstract

Background

Patient centeredness is an important component of patient care and healthcare quality. Several scales exist to measure patient centeredness, and previous literature provides a critical appraisal of their measurement properties. However, limited knowledge exists regarding the content of the various scales in terms of what type of patient centeredness they represent and how they can be used for quality improvement. The aim of this study was to explore the measurement properties of patient centeredness scales and their content with a special focus on patient involvement, and assess whether and how they can be used for quality improvement.

Methods

A systematic review of patient centeredness scales was conducted in Medline, CINAHL, Embase, and SCOPUS in April and May 2017. Inclusion criteria were limited to articles written in English published from 2005 to 2017. Eligible studies were critically appraised in terms of internal consistency and reliability, as well as their content, structural, and cross-cultural validity. Type of studies included were scale-development articles and validation studies of relevant scales, with healthcare personnel as respondents. We used directed content analysis to categorize the scales and items according to Tritter’s conceptual framework for patient and public involvement.

Results

Eleven scales reported in 22 articles were included. Most scales represented individual, indirect, and reactive patient involvement. Most scales included items that did not reflect patient centeredness directly, but rather organizational preconditions for patient centered practices. None of the scales included items explicitly reflecting the use of patient experiences of quality improvement.

Conclusions

There is a lack of patient centeredness scales focusing on direct and proactive involvement of patients in quality improvement. It would be useful to develop such instruments to further study the role of patient involvement in quality improvement in healthcare. Furthermore, they could be used as important tools in quality improvement interventions.
Appendix
Available only for authorised users
Footnotes
1
Negatively worded so that lower scores represent better practices
 
Literature
1.
go back to reference Institute of Medicine: Crossing the quality chasm: a new health system for the 21st century. Washington (DC): National Academies Press (US); 2001. Institute of Medicine: Crossing the quality chasm: a new health system for the 21st century. Washington (DC): National Academies Press (US); 2001.
3.
go back to reference Groene O. Patient centredness and quality improvement efforts in hospitals: rationale, measurement, implementation. Int J Qual Health Care. 2011;23(5):531–7.CrossRef Groene O. Patient centredness and quality improvement efforts in hospitals: rationale, measurement, implementation. Int J Qual Health Care. 2011;23(5):531–7.CrossRef
4.
go back to reference Ministry of Health and Care Services. Pasient- og brukerrettighetsloven. Oslo: Ministry of Health and Care Services; 2001. Ministry of Health and Care Services. Pasient- og brukerrettighetsloven. Oslo: Ministry of Health and Care Services; 2001.
5.
go back to reference Department of Health. Strengthening Accountability: Involving Patients and the Public: Policy Guidance. London: 2003. Department of Health. Strengthening Accountability: Involving Patients and the Public: Policy Guidance. London: 2003.
6.
go back to reference Kohn LT, Corrigan JM, Donaldson MS, editors. To err is human: building a safer health system. Washington DC: Institute of Medicine; 2000. Kohn LT, Corrigan JM, Donaldson MS, editors. To err is human: building a safer health system. Washington DC: Institute of Medicine; 2000.
7.
go back to reference Secretary of State for Health. The NHS plan: a plan for investment, a plan for reform. In: London; 2000. Secretary of State for Health. The NHS plan: a plan for investment, a plan for reform. In: London; 2000.
8.
go back to reference Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Qual Saf. 2016;25(8):626–32.CrossRef Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Qual Saf. 2016;25(8):626–32.CrossRef
10.
go back to reference Castro EM, Van Regenmortel T, Vanhaecht K, Sermeus W, Van Hecke A. Patient empowerment, patient participation and patient-centeredness in hospital care: a concept analysis based on a literature review. Patient Educ Couns. 2016;99(12):1923–39.CrossRef Castro EM, Van Regenmortel T, Vanhaecht K, Sermeus W, Van Hecke A. Patient empowerment, patient participation and patient-centeredness in hospital care: a concept analysis based on a literature review. Patient Educ Couns. 2016;99(12):1923–39.CrossRef
12.
go back to reference Köberich S, Farin E. A systematic review of instruments measuring patients′ perceptions of patient-centred nursing care. Nurs Inq. 2015;22(2):106–20.CrossRef Köberich S, Farin E. A systematic review of instruments measuring patients′ perceptions of patient-centred nursing care. Nurs Inq. 2015;22(2):106–20.CrossRef
14.
go back to reference de Silva D. Helping measure person-centred care. A review of evidence about commonly used approaches and tools used to help measure person-centred care. London: The Health Foundation; 2014. de Silva D. Helping measure person-centred care. A review of evidence about commonly used approaches and tools used to help measure person-centred care. London: The Health Foundation; 2014.
15.
go back to reference Edvardsson D, Innes A. Measuring person-centered care: a critical comparative review of published tools. Gerontologist. 2010;50(6):834–46.CrossRef Edvardsson D, Innes A. Measuring person-centered care: a critical comparative review of published tools. Gerontologist. 2010;50(6):834–46.CrossRef
16.
go back to reference Tritter JQ. Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expect. 2009;12(3):275–87.CrossRef Tritter JQ. Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expect. 2009;12(3):275–87.CrossRef
18.
go back to reference Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Int J Surg. 2010;8:336–41.CrossRef Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Int J Surg. 2010;8:336–41.CrossRef
19.
go back to reference Netemeyer RG, Bearden WO, Sharma S. Scaling procedures: issues and applications. London: Sage Publications; 2003.CrossRef Netemeyer RG, Bearden WO, Sharma S. Scaling procedures: issues and applications. London: Sage Publications; 2003.CrossRef
20.
go back to reference Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRef Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRef
21.
go back to reference Suhonen R, Gustafsson ML, Katajisto J, Valimaki M, Leino-Kilpi H. Individualized care scale - nurse version: a Finnish validation study. J Eval Clin Pract. 2010;16(1):145–54.CrossRef Suhonen R, Gustafsson ML, Katajisto J, Valimaki M, Leino-Kilpi H. Individualized care scale - nurse version: a Finnish validation study. J Eval Clin Pract. 2010;16(1):145–54.CrossRef
22.
go back to reference Edvardsson D, Sandman PO, Rasmussen B. Construction and psychometric evaluation of the Swedish language person-centred climate questionnaire - staff version. J Nurs Manag. 2009;17(7):790–5.CrossRef Edvardsson D, Sandman PO, Rasmussen B. Construction and psychometric evaluation of the Swedish language person-centred climate questionnaire - staff version. J Nurs Manag. 2009;17(7):790–5.CrossRef
23.
go back to reference Sidani S, Collins L, Harbman P, MacMillan K, Reeves S, Hurlock-Chorostecki C, et al. Development of a measure to assess healthcare providers’ implementation of patient-centered care. Worldviews Evid-Based Nurs. 2014;11(4):248–57.CrossRef Sidani S, Collins L, Harbman P, MacMillan K, Reeves S, Hurlock-Chorostecki C, et al. Development of a measure to assess healthcare providers’ implementation of patient-centered care. Worldviews Evid-Based Nurs. 2014;11(4):248–57.CrossRef
24.
go back to reference Edvardsson D, Fetherstonhaugh D, Nay R, Gibson S. Development and initial testing of the person-centered care assessment tool (P-CAT). Int Psychogeriatr. 2010;22(1):101–8.CrossRef Edvardsson D, Fetherstonhaugh D, Nay R, Gibson S. Development and initial testing of the person-centered care assessment tool (P-CAT). Int Psychogeriatr. 2010;22(1):101–8.CrossRef
25.
go back to reference Dow B, Fearn M, Haralambous B, Tinney J, Hill K, Gibson S. Development and initial testing of the person-centred health care for older adults survey. Int Psychogeriatr. 2013;25(07):1065–76.CrossRef Dow B, Fearn M, Haralambous B, Tinney J, Hill K, Gibson S. Development and initial testing of the person-centred health care for older adults survey. Int Psychogeriatr. 2013;25(07):1065–76.CrossRef
26.
go back to reference Zimmerman S, Allen J, Cohen LW, Pinkowitz J, Reed D, Coffey WO, et al. A measure of person-centered practices in assisted living: the PC-PAL. J Am Med Dir Assoc. 2015;16(2):132–7.CrossRef Zimmerman S, Allen J, Cohen LW, Pinkowitz J, Reed D, Coffey WO, et al. A measure of person-centered practices in assisted living: the PC-PAL. J Am Med Dir Assoc. 2015;16(2):132–7.CrossRef
27.
go back to reference O'Rourke N, Chappell NL, Caspar S. Measurement and analysis of individualized care inventory responses comparing long-term care nurses and care aides. Gerontologist. 2009;49(6):839–46.CrossRef O'Rourke N, Chappell NL, Caspar S. Measurement and analysis of individualized care inventory responses comparing long-term care nurses and care aides. Gerontologist. 2009;49(6):839–46.CrossRef
28.
go back to reference Sullivan JL, Meterko M, Baker E, Stolzmann K, Adjognon O, Ballah K, et al. Reliability and validity of a person-centered care staff survey in veterans health administration community living centers. Gerontologist. 2013;53(4):596–607.CrossRef Sullivan JL, Meterko M, Baker E, Stolzmann K, Adjognon O, Ballah K, et al. Reliability and validity of a person-centered care staff survey in veterans health administration community living centers. Gerontologist. 2013;53(4):596–607.CrossRef
29.
go back to reference Berg A, Idvall E, Katajisto J, Suhonen R. A comparison between orthopaedic nurses’ and patients’ perception of individualised care. Int J Orthop Trauma Nurs. 2012;16(3):136–46.CrossRef Berg A, Idvall E, Katajisto J, Suhonen R. A comparison between orthopaedic nurses’ and patients’ perception of individualised care. Int J Orthop Trauma Nurs. 2012;16(3):136–46.CrossRef
30.
go back to reference Chappell NL, Reid RC, Gish JA. Staff-based measures of individualized care for persons with dementia in long-term care facilities. Dementia. 2007;6(4):527–47.CrossRef Chappell NL, Reid RC, Gish JA. Staff-based measures of individualized care for persons with dementia in long-term care facilities. Dementia. 2007;6(4):527–47.CrossRef
31.
go back to reference White DL, Newton-Curtis L, Lyons KS. Development and initial testing of a measure of person-directed care. Gerontologist. 2008;48(suppl 1):114–23.CrossRef White DL, Newton-Curtis L, Lyons KS. Development and initial testing of a measure of person-directed care. Gerontologist. 2008;48(suppl 1):114–23.CrossRef
32.
go back to reference Zachariae R, O’Connor M, Lassesen B, Olesen M, Kjær LB, Thygesen M, et al. The self-efficacy in patient-centeredness questionnaire–a new measure of medical student and physician confidence in exhibiting patient-centered behaviors. BMC Med Educ. 2015. https://doi.org/10.1186/s12909-015-0427-x. Zachariae R, O’Connor M, Lassesen B, Olesen M, Kjær LB, Thygesen M, et al. The self-efficacy in patient-centeredness questionnaire–a new measure of medical student and physician confidence in exhibiting patient-centered behaviors. BMC Med Educ. 2015. https://​doi.​org/​10.​1186/​s12909-015-0427-x.
33.
go back to reference Rokstad AMM, Engedal K, Edvardsson D, Selbæk G. Psychometric evaluation of the Norwegian version of the person-centred care assessment tool. Int J Nur Pract. 2012;18(1):99–105.CrossRef Rokstad AMM, Engedal K, Edvardsson D, Selbæk G. Psychometric evaluation of the Norwegian version of the person-centred care assessment tool. Int J Nur Pract. 2012;18(1):99–105.CrossRef
34.
go back to reference Martínez T, Suárez-Álvarez J, Yanguas J, Muñiz J. Spanish validation of the person-centered care assessment tool (P-CAT). Aging Ment Health. 2016;20(5):550–8.CrossRef Martínez T, Suárez-Álvarez J, Yanguas J, Muñiz J. Spanish validation of the person-centered care assessment tool (P-CAT). Aging Ment Health. 2016;20(5):550–8.CrossRef
35.
go back to reference Kim H, Capezuti E, Boltz M, Fairchild S, Fulmer T, Mezey M. Factor structure of the geriatric care environment scale. Nurs Res. 2007;56(5):339–47.CrossRef Kim H, Capezuti E, Boltz M, Fairchild S, Fulmer T, Mezey M. Factor structure of the geriatric care environment scale. Nurs Res. 2007;56(5):339–47.CrossRef
36.
go back to reference Edvardsson D, Koch S, Nay R. Psychometric evaluation of the English language person-centred climate questionnaire--staff version. J Nurs Manag. 2010;18(1):54–60.CrossRef Edvardsson D, Koch S, Nay R. Psychometric evaluation of the English language person-centred climate questionnaire--staff version. J Nurs Manag. 2010;18(1):54–60.CrossRef
37.
go back to reference Bergland A, Kirkevold M, Edvardsson D. Psychometric properties of the Norwegian person-centred climate questionnaire from a nursing home context. Scand J Caring Sci. 2012;26(4):820–8.CrossRef Bergland A, Kirkevold M, Edvardsson D. Psychometric properties of the Norwegian person-centred climate questionnaire from a nursing home context. Scand J Caring Sci. 2012;26(4):820–8.CrossRef
38.
go back to reference Choi J-S, Lee M. Psychometric properties of a Korean measure of person-directed Care in Nursing Homes. Res Soci Work Pract. 2014;24(6):676–84.CrossRef Choi J-S, Lee M. Psychometric properties of a Korean measure of person-directed Care in Nursing Homes. Res Soci Work Pract. 2014;24(6):676–84.CrossRef
39.
go back to reference Hwang JI. Development and testing of a patient-centred care competency scale for hospital nurses. Int J Nurs Pract. 2015;21(1):43–51.CrossRef Hwang JI. Development and testing of a patient-centred care competency scale for hospital nurses. Int J Nurs Pract. 2015;21(1):43–51.CrossRef
40.
go back to reference Sutton E, Eborall H, Martin G. Patient involvement in patient safety: current experiences, insights from the wider literature, promising opportunities? Public Management Review. 2015;17(1):72–89.CrossRef Sutton E, Eborall H, Martin G. Patient involvement in patient safety: current experiences, insights from the wider literature, promising opportunities? Public Management Review. 2015;17(1):72–89.CrossRef
41.
go back to reference Jacobs LM, Brindis CD, Hughes D, Kennedy CE, Schmidt LA. Measuring consumer engagement: a review of tools and findings. JHQ. 2018;40(3):139–46.PubMed Jacobs LM, Brindis CD, Hughes D, Kennedy CE, Schmidt LA. Measuring consumer engagement: a review of tools and findings. JHQ. 2018;40(3):139–46.PubMed
43.
go back to reference Skagerström J, Ericsson C, Nilsen P, Ekstedt M, Schildmeijer K. Patient involvement for improved patient safety: a qualitative study of nurses’ perceptions and experiences. Nursing Open. 2017;4(4):230–9.CrossRef Skagerström J, Ericsson C, Nilsen P, Ekstedt M, Schildmeijer K. Patient involvement for improved patient safety: a qualitative study of nurses’ perceptions and experiences. Nursing Open. 2017;4(4):230–9.CrossRef
45.
go back to reference Bate P, Robert G. Experience-based design: from redesigning the system around the patient to co-designing services with the patient. Qual Saf Health care. 2006;15(5):307–10.CrossRef Bate P, Robert G. Experience-based design: from redesigning the system around the patient to co-designing services with the patient. Qual Saf Health care. 2006;15(5):307–10.CrossRef
47.
go back to reference Davies E, Cleary PD. Hearing the patient’s voice? Factors affecting the use of patient survey data in quality improvement. Qual Saf Health Care. 2005;14(6):428–32.CrossRef Davies E, Cleary PD. Hearing the patient’s voice? Factors affecting the use of patient survey data in quality improvement. Qual Saf Health Care. 2005;14(6):428–32.CrossRef
48.
go back to reference Shaller D. Patient-centered care: what does it take? New York: Commonwealth Fund; 2007. Shaller D. Patient-centered care: what does it take? New York: Commonwealth Fund; 2007.
49.
go back to reference Sheard L, Marsh C, O'Hara J, Armitage G, Wright J, Lawton R. The patient feedback response framework – understanding why UK hospital staff find it difficult to make improvements based on patient feedback: a qualitative study. Soc Sci Med. 2017;178:19–27.CrossRef Sheard L, Marsh C, O'Hara J, Armitage G, Wright J, Lawton R. The patient feedback response framework – understanding why UK hospital staff find it difficult to make improvements based on patient feedback: a qualitative study. Soc Sci Med. 2017;178:19–27.CrossRef
50.
go back to reference Edvardsson D, Sjögren K, Lindkvist M, Taylor M, Edvardsson K, Sandman PO. Person-centred climate questionnaire (PCQ-S): establishing reliability and cut-off scores in residential aged care. J Nurs Manag. 2015;23(3):315–23.CrossRef Edvardsson D, Sjögren K, Lindkvist M, Taylor M, Edvardsson K, Sandman PO. Person-centred climate questionnaire (PCQ-S): establishing reliability and cut-off scores in residential aged care. J Nurs Manag. 2015;23(3):315–23.CrossRef
51.
go back to reference Sjögren K, Lindkvist M, Sandman PO, Zingmark K, Edvardsson D. Psychometric evaluation of the Swedish version of the person-centered care assessment tool (P-CAT). Int Psychogeriatr. 2012;24(3):406–15.CrossRef Sjögren K, Lindkvist M, Sandman PO, Zingmark K, Edvardsson D. Psychometric evaluation of the Swedish version of the person-centered care assessment tool (P-CAT). Int Psychogeriatr. 2012;24(3):406–15.CrossRef
52.
go back to reference Zhong XB, Lou VWQ. Person-centered care in Chinese residential care facilities: a preliminary measure. Aging Ment Health. 2013;17(8):952–8.CrossRef Zhong XB, Lou VWQ. Person-centered care in Chinese residential care facilities: a preliminary measure. Aging Ment Health. 2013;17(8):952–8.CrossRef
Metadata
Title
How is patient involvement measured in patient centeredness scales for health professionals? A systematic review of their measurement properties and content
Authors
Eline Ree
Siri Wiig
Tanja Manser
Marianne Storm
Publication date
01-12-2019
Publisher
BioMed Central
Keyword
Care
Published in
BMC Health Services Research / Issue 1/2019
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-018-3798-y

Other articles of this Issue 1/2019

BMC Health Services Research 1/2019 Go to the issue