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Published in: Health and Quality of Life Outcomes 1/2021

Open Access 01-12-2021 | Care | Research

Validation of the German version of the needs assessment tool: progressive disease-heart failure

Authors: Valentina Gonzalez-Jaramillo, Jelena Guyer, Nora Luethi, Piotr Sobanski, Rut Zbinden, Eveline Rodriguez, Lukas Hunziker, Steffen Eychmüller, Maud Maessen

Published in: Health and Quality of Life Outcomes | Issue 1/2021

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Abstract

Background

The Needs Assessment Tool: Progressive Disease-Heart Failure (NAT: PD-HF) is a tool created to assess the needs of people living with heart failure and their informal caregivers to assist delivering care in a more comprehensive way that addresses actual needs that are unmet, and to improve quality of life. In this study, we aimed to (1) Translate the tool into German and culturally adapt it. (2) Assess internal consistency, inter-rater reliability, and test–retest reliability of the German NAT: PD-HF. (3) Evaluate whether and how patients and health care personnel understand the tool and its utility. (4) Assess the tool’s face validity, applicability, relevance, and acceptability among health care personnel.

Methods

Single-center validation study. The tool was translated from English into German using a forward–backward translation. To assess internal consistency, we used Cronbach´s alpha. To assess inter-rater reliability and test–retest reliability, we used Cohen´s kappa, and to assess validity we used face validity.

Results

The translated tool showed good internal consistency. Raters were in substantial agreement on a majority of the questions, and agreement was almost perfect for all the questions in the test–retest analysis. Face validity was rated high by health care personnel.

Conclusion

The German NAT: PD-HF is a reliable, valid, and internally consistent tool that is well accepted by both patients and health care personnel. However, it is important to keep in mind that effective use of the tool requires training of health care personnel.
Appendix
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Literature
1.
go back to reference Savarese G, Lund LH. Global public health burden of heart failure. Card Fail Rev. 2017;3(1):7–11.CrossRef Savarese G, Lund LH. Global public health burden of heart failure. Card Fail Rev. 2017;3(1):7–11.CrossRef
2.
go back to reference Bekelman DB, Havranek EP, Becker DM, Kutner JS, Peterson PN, Wittstein IS, et al. Symptoms, depression, and quality of life in patients with heart failure. J Cardiac Fail. 2007;13(8):643–8.CrossRef Bekelman DB, Havranek EP, Becker DM, Kutner JS, Peterson PN, Wittstein IS, et al. Symptoms, depression, and quality of life in patients with heart failure. J Cardiac Fail. 2007;13(8):643–8.CrossRef
3.
go back to reference Mbakwem A, Aina F, Amadi C. Expert opinion-depression in patients with heart failure: is enough being done? Card Fail Rev. 2016;2(2):110–2.PubMedPubMedCentral Mbakwem A, Aina F, Amadi C. Expert opinion-depression in patients with heart failure: is enough being done? Card Fail Rev. 2016;2(2):110–2.PubMedPubMedCentral
4.
go back to reference Cowie MR, Anker SD, Cleland JGF, Felker GM, Filippatos G, Jaarsma T, et al. Improving care for patients with acute heart failure: before, during and after hospitalization. ESC Heart Fail. 2014;1(2):110–45.CrossRef Cowie MR, Anker SD, Cleland JGF, Felker GM, Filippatos G, Jaarsma T, et al. Improving care for patients with acute heart failure: before, during and after hospitalization. ESC Heart Fail. 2014;1(2):110–45.CrossRef
5.
go back to reference Heo S, Lennie TA, Okoli C, Moser DK. Quality of life in patients with heart failure: ask the patients. Heart Lung: J Crit Care. 2009;38(2):100–8.CrossRef Heo S, Lennie TA, Okoli C, Moser DK. Quality of life in patients with heart failure: ask the patients. Heart Lung: J Crit Care. 2009;38(2):100–8.CrossRef
6.
go back to reference Remawi BN, Gadoud A, Murphy IMJ, Preston N. Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis. Heart Fail Rev. 2021;26(1):137–55.CrossRef Remawi BN, Gadoud A, Murphy IMJ, Preston N. Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis. Heart Fail Rev. 2021;26(1):137–55.CrossRef
7.
go back to reference Ament SM, Couwenberg IM, Boyne JJ, Kleijnen J, Stoffers HE, van den Beuken MH, et al. Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: a systematic review. Palliat Med. 2021;35(1):45–58.CrossRef Ament SM, Couwenberg IM, Boyne JJ, Kleijnen J, Stoffers HE, van den Beuken MH, et al. Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: a systematic review. Palliat Med. 2021;35(1):45–58.CrossRef
8.
go back to reference Waller A, Girgis A, Davidson PM, Newton PJ, Lecathelinais C, Macdonald PS, et al. Facilitating needs-based support and palliative care for people with chronic heart failure: preliminary evidence for the acceptability, inter-rater reliability, and validity of a needs assessment tool. J Pain Symptom Manage. 2013;45(5):912–25.CrossRef Waller A, Girgis A, Davidson PM, Newton PJ, Lecathelinais C, Macdonald PS, et al. Facilitating needs-based support and palliative care for people with chronic heart failure: preliminary evidence for the acceptability, inter-rater reliability, and validity of a needs assessment tool. J Pain Symptom Manage. 2013;45(5):912–25.CrossRef
9.
go back to reference Kissler MJ, Kissler K, Burden M. Toward a medical “ecology of attention.” N Engl J Med. 2021;384(4):299–301.CrossRef Kissler MJ, Kissler K, Burden M. Toward a medical “ecology of attention.” N Engl J Med. 2021;384(4):299–301.CrossRef
10.
go back to reference Piven ML, Ammarell N, Lekan-Rutledge D, Utley-Smith Q, Corazzini KN, Colon-Emeric CS, et al. Paying attention: a leap toward quality care. Director (Cincinnati, Ohio). 2007;15(1):58–60. Piven ML, Ammarell N, Lekan-Rutledge D, Utley-Smith Q, Corazzini KN, Colon-Emeric CS, et al. Paying attention: a leap toward quality care. Director (Cincinnati, Ohio). 2007;15(1):58–60.
11.
go back to reference Janssen DJ, Boyne J, Currow DC, Schols JM, Johnson MJ, La Rocca HB. Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease-Heart Failure (NAT:PD-HF). Eur J Cardiovasc Nurs. 2019;18(5):375–88.CrossRef Janssen DJ, Boyne J, Currow DC, Schols JM, Johnson MJ, La Rocca HB. Timely recognition of palliative care needs of patients with advanced chronic heart failure: a pilot study of a Dutch translation of the Needs Assessment Tool: Progressive Disease-Heart Failure (NAT:PD-HF). Eur J Cardiovasc Nurs. 2019;18(5):375–88.CrossRef
13.
go back to reference Bonett DG. Sample size requirements for testing and estimating coefficient alpha. J Educ Behav Stat. 2002;27(4):335–40.CrossRef Bonett DG. Sample size requirements for testing and estimating coefficient alpha. J Educ Behav Stat. 2002;27(4):335–40.CrossRef
14.
go back to reference Cohen J. Weighted kappa: nominal scale agreement with provision for scaled disagreement or partial credit. Psychol Bull. 1968;70(4):213–20.CrossRef Cohen J. Weighted kappa: nominal scale agreement with provision for scaled disagreement or partial credit. Psychol Bull. 1968;70(4):213–20.CrossRef
15.
go back to reference Marasini D, Quatto P, Ripamonti E. Assessing the inter-rater agreement for ordinal data through weighted indexes. Stat Methods Med Res. 2016;25(6):2611–33.CrossRef Marasini D, Quatto P, Ripamonti E. Assessing the inter-rater agreement for ordinal data through weighted indexes. Stat Methods Med Res. 2016;25(6):2611–33.CrossRef
16.
go back to reference Byrt T, Bishop J, Carlin JB. Bias, prevalence and kappa. J Clin Epidemiol. 1993;46(5):423–9.CrossRef Byrt T, Bishop J, Carlin JB. Bias, prevalence and kappa. J Clin Epidemiol. 1993;46(5):423–9.CrossRef
17.
go back to reference Viera AJ, Garrett JM. Understanding interobserver agreement: the kappa statistic. Fam Med. 2005;37(5):360–3. Viera AJ, Garrett JM. Understanding interobserver agreement: the kappa statistic. Fam Med. 2005;37(5):360–3.
18.
go back to reference Thoonsen B, Engels Y, van Rijswijk E, Verhagen S, van Weel C, Groot M, et al. Early identification of palliative care patients in general practice: development of RADboud indicators for PAlliative Care Needs (RADPAC). Br J Gen Pract. 2012;62(602):e625–31.CrossRef Thoonsen B, Engels Y, van Rijswijk E, Verhagen S, van Weel C, Groot M, et al. Early identification of palliative care patients in general practice: development of RADboud indicators for PAlliative Care Needs (RADPAC). Br J Gen Pract. 2012;62(602):e625–31.CrossRef
19.
go back to reference Gastelurrutia P, Zamora E, Domingo M, Ruiz S, Gonzalez-Costello J, Gomez-Batiste X. Palliative Care Needs in Heart Failure. A multicenter study using the NECPAL Questionnaire. Rev Esp Cardiol. 2019;72(10):870–2. Gastelurrutia P, Zamora E, Domingo M, Ruiz S, Gonzalez-Costello J, Gomez-Batiste X. Palliative Care Needs in Heart Failure. A multicenter study using the NECPAL Questionnaire. Rev Esp Cardiol. 2019;72(10):870–2.
20.
go back to reference Aaronson EL, George N, Ouchi K, Zheng H, Bowman J, Monette D, et al. The surprise question can be used to identify heart failure patients in the emergency department who would benefit from palliative care. J Pain Symptom Manag. 2019;57(5):944–51.CrossRef Aaronson EL, George N, Ouchi K, Zheng H, Bowman J, Monette D, et al. The surprise question can be used to identify heart failure patients in the emergency department who would benefit from palliative care. J Pain Symptom Manag. 2019;57(5):944–51.CrossRef
21.
go back to reference Sobanski PZ, Alt-Epping B, Currow DC, Goodlin SJ, Grodzicki T, Hogg K, et al. Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement. Cardiovasc Res. 2020;116(1):12–27.CrossRef Sobanski PZ, Alt-Epping B, Currow DC, Goodlin SJ, Grodzicki T, Hogg K, et al. Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement. Cardiovasc Res. 2020;116(1):12–27.CrossRef
22.
go back to reference Reigada C, Papadopoulos A, Boland JW, Yorke J, Ross J, Currow DC, et al. Implementation of the needs assessment tool for patients with interstitial lung disease (NAT:ILD): facilitators and barriers. Thorax. 2017;72(11):1049–51.CrossRef Reigada C, Papadopoulos A, Boland JW, Yorke J, Ross J, Currow DC, et al. Implementation of the needs assessment tool for patients with interstitial lung disease (NAT:ILD): facilitators and barriers. Thorax. 2017;72(11):1049–51.CrossRef
23.
go back to reference Waller A, Girgis A, Lecathelinais C, Scott W, Foot L, Sibbritt D, et al. Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer. Psychooncology. 2010;19(7):726–33.CrossRef Waller A, Girgis A, Lecathelinais C, Scott W, Foot L, Sibbritt D, et al. Validity, reliability and clinical feasibility of a Needs Assessment Tool for people with progressive cancer. Psychooncology. 2010;19(7):726–33.CrossRef
24.
go back to reference Groenewegen A, Rutten FH, Mosterd A, Hoes AW. Epidemiology of heart failure. Eur J Heart Fail. 2020;22(8):1342–56.CrossRef Groenewegen A, Rutten FH, Mosterd A, Hoes AW. Epidemiology of heart failure. Eur J Heart Fail. 2020;22(8):1342–56.CrossRef
25.
go back to reference Lam CSP, Arnott C, Beale AL, Chandramouli C, Hilfiker-Kleiner D, Kaye DM, et al. Sex differences in heart failure. Eur Heart J. 2019;40(47):3859.CrossRef Lam CSP, Arnott C, Beale AL, Chandramouli C, Hilfiker-Kleiner D, Kaye DM, et al. Sex differences in heart failure. Eur Heart J. 2019;40(47):3859.CrossRef
26.
go back to reference Ponikowski P, Voors AA, Anker SD, Bueno H, Cleland JGF, Coats AJS, et al. 2016 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure. Eur Heart J. 2016;37(27):2129-U130.CrossRef Ponikowski P, Voors AA, Anker SD, Bueno H, Cleland JGF, Coats AJS, et al. 2016 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure. Eur Heart J. 2016;37(27):2129-U130.CrossRef
27.
go back to reference World Medical A. World medical association declaration of helsinki: Ethical principles for medical research involving human subjects. JAMA. 2013;310(20):2191–4.CrossRef World Medical A. World medical association declaration of helsinki: Ethical principles for medical research involving human subjects. JAMA. 2013;310(20):2191–4.CrossRef
Metadata
Title
Validation of the German version of the needs assessment tool: progressive disease-heart failure
Authors
Valentina Gonzalez-Jaramillo
Jelena Guyer
Nora Luethi
Piotr Sobanski
Rut Zbinden
Eveline Rodriguez
Lukas Hunziker
Steffen Eychmüller
Maud Maessen
Publication date
01-12-2021
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2021
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-021-01817-6

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