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Open Access 11-11-2022 | Care

A multinational investigation of healthcare needs, preferences, and expectations in supportive cancer care: co-creating the LifeChamps digital platform

Authors: Rebecca Marshall-McKenna, Grigorios Kotronoulas, Emmanouil Kokoroskos, Andrea Gil Granados, Panagiotis Papachristou, Nikolaos Papachristou, Gonzalo Collantes, Georgios Petridis, Antonis Billis, Panagiotis D. Bamidis, on behalf of the LifeChamps consortium

Published in: Journal of Cancer Survivorship | Issue 4/2023

Abstract

Purpose

This study is to evaluate healthcare needs, preferences, and expectations in supportive cancer care as perceived by cancer survivors, family caregivers, and healthcare professionals.

Methods

Key stakeholders consisted of cancer survivors diagnosed with breast cancer, prostate cancer, or melanoma; adult family caregivers; and healthcare professionals involved in oncology. Recruitment was via several routes, and data were collected via either online surveys or telephone interviews in Greece, Spain, Sweden, and the UK. Framework analysis was applied to the dataset.

Results

One hundred and fifty-five stakeholders participated: 70 cancer survivors, 23 family caregivers, and 62 healthcare professionals (13 clinical roles). Cancer survivors and family caregivers’ needs included information and support on practical/daily living, as frustration was apparent with the lack of follow-up services. Healthcare professionals agreed on a multidisciplinary health service with a “focus on the patient” and availability closer to home. Most healthcare professionals acknowledged that patient-reported outcomes may provide “better individualised care”. Cancer survivors and family caregivers generally felt that the digital platform would be useful for timely personalised support and aided communication. Healthcare professionals were supportive of the “proactive” functionality of the platform and the expected advantages. Anticipated challenges were integration obstacles such as workload/infrastructure and training/support in using the new technology.

Conclusions

Obtaining key stakeholders’ insights provided a foundation for action to further co-create the LifeChamps digital platform to meet needs and priorities and deliver enhanced supportive care to “older” cancer survivors.

Implications for cancer survivors

Co-creation provided insight into gaps where digital support may enhance health and well-being.

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Title: A multinational investigation of healthcare needs, preferences, and expectations in supportive cancer care: co-creating the LifeChamps digital platform
Authors: Rebecca Marshall-McKenna
Grigorios Kotronoulas
Emmanouil Kokoroskos
Andrea Gil Granados
Panagiotis Papachristou
Nikolaos Papachristou
Gonzalo Collantes
Georgios Petridis
Antonis Billis
Panagiotis D. Bamidis
on behalf of the LifeChamps consortium
Publication date: 11-11-2022
Publisher: Springer US
Keyword: Care
Published in: Journal of Cancer Survivorship / Issue 4/2023
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI: https://doi.org/10.1007/s11764-022-01289-7

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Abstract

Purpose

Methods

Results

Conclusions

Implications for cancer survivors

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