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Open Access 11-12-2021 | Bilateral Vestibulopathy | Original Communication

Bilateral vestibulopathy patients’ perspectives on vestibular implant treatment: a qualitative study

Authors: Lisa van Stiphout, Florence Lucieer, Nils Guinand, Angélica Pérez Fornos, Maurice van de Berg, Vincent Van Rompaey, Josine Widdershoven, Herman Kingma, Manuela Joore, Raymond van de Berg

Published in: Journal of Neurology | Issue 10/2022

Abstract

Objectives

The aim of this study was to explore expectations of patients with bilateral vestibulopathy regarding vestibular implant treatment. This could advance the definition of recommendations for future core outcome sets of vestibular implantation and help to determine on which characteristics of bilateral vestibulopathy future vestibular implant research should focus.

Methods

Semi-structured interviews were conducted with 50 patients diagnosed with bilateral vestibulopathy at Maastricht UMC + . Interviews followed a semi-structured interview guide and were recorded and transcribed. Transcripts were analyzed thematically by two independent researchers. A consensus meeting took place to produce a joint interpretation for greater dimensionality and to confirm key themes.

Results

Overall, patient expectations centralized around three key themes: (physical) symptom reduction, functions and activities, and quality of life. These themes appeared to be interrelated. Patient expectations focused on the activity walking (in a straight line), reducing the symptom oscillopsia and being able to live the life they had before bilateral vestibulopathy developed. In general, patients indicated to be satisfied with small improvements.

Conclusion

This study demonstrated that patient expectations regarding a vestibular implant focus on three key themes: symptom reduction, functions and activities, and quality of life. These themes closely match the functional improvements shown in recent vestibular implantation research. The results of this study provide a clear guideline from the patient perspective on which characteristics of bilateral vestibulopathy, future vestibular implant research should focus.

Trial registration

NL52768.068.15/METC

Available only for authorised users

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Title: Bilateral vestibulopathy patients’ perspectives on vestibular implant treatment: a qualitative study
Authors: Lisa van Stiphout
Florence Lucieer
Nils Guinand
Angélica Pérez Fornos
Maurice van de Berg
Vincent Van Rompaey
Josine Widdershoven
Herman Kingma
Manuela Joore
Raymond van de Berg
Publication date: 11-12-2021
Publisher: Springer Berlin Heidelberg
Keyword: Bilateral Vestibulopathy
Published in: Journal of Neurology / Issue 10/2022
Print ISSN: 0340-5354
Electronic ISSN: 1432-1459
DOI: https://doi.org/10.1007/s00415-021-10920-z

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Bilateral vestibulopathy patients’ perspectives on vestibular implant treatment: a qualitative study

Abstract

Objectives

Methods

Results

Conclusion

Trial registration

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Objectives

Methods

Results

Conclusion

Trial registration

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