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Published in: Social Psychiatry and Psychiatric Epidemiology 10/2018

01-10-2018 | Original Paper

‘Between a rock and a hard place’: family members’ experiences of supporting a relative with bipolar disorder

Authors: Ella Baruch, Nancy Pistrang, Chris Barker

Published in: Social Psychiatry and Psychiatric Epidemiology | Issue 10/2018

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Abstract

Purpose

Clinical guidelines emphasise the central role of family members in supporting people with bipolar disorder. However, there has been little focus on the challenges family members face in supporting their relative. This qualitative study explored the challenges of providing support to a relative with bipolar disorder, and how family members attempted to meet these challenges. Factors that helped or hindered their efforts were also explored, including experiences of professional support.

Methods

Semi-structured interviews were conducted with 18 family members (partners, parents, adult children, and siblings). Transcripts were analysed using the Framework approach.

Results

Participants faced numerous challenges pertaining to the nature of the disorder and specific illness phases, their relative’s responses to their attempts to help, and the limitations of support from healthcare professionals. Although participants were resourceful in managing these challenges, they strongly valued professional input. Six themes were identified: ‘Not knowing: like being in a minefield’, ‘It’s out of my control: sitting waiting for the next thing to happen’, ‘Treading on eggshells’, ‘Picking up on signs’, ‘Times of crisis: between a rock and a hard place’, and ‘I have to make my voice heard’.

Conclusions

Family members supporting a relative with bipolar disorder face significant challenges but show considerable resourcefulness in managing them. The findings underline the importance of input from healthcare professionals to help family members effectively support their relative and manage the challenges they face. Professional support should be strengths-based, and tailored to family members’ needs.
Footnotes
1
The term ‘carer’ is often used to describe those who provide informal support. However, carers are predominantly family members [1], and the term can be perceived negatively by people with mental health problems and their families [2]. The term ‘family member’ will, therefore, be used where possible, and the person with bipolar disorder referred to as their ‘relative’. Family members include parents, partners, adult children and siblings.
 
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Metadata
Title
‘Between a rock and a hard place’: family members’ experiences of supporting a relative with bipolar disorder
Authors
Ella Baruch
Nancy Pistrang
Chris Barker
Publication date
01-10-2018
Publisher
Springer Berlin Heidelberg
Published in
Social Psychiatry and Psychiatric Epidemiology / Issue 10/2018
Print ISSN: 0933-7954
Electronic ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-018-1560-8

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