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01-06-2012 | Original Paper

American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purposes

Authors: Melissa K. Filippi, Kristin L. Young, Niaman Nazir, Chandler Williams, Travis Brown, Won S. Choi, K. A. Greiner, Christine M. Daley

Published in: Journal of Community Health | Issue 3/2012

Abstract

This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results (N = 998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input in the research process.

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Title: American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purposes
Authors: Melissa K. Filippi
Kristin L. Young
Niaman Nazir
Chandler Williams
Travis Brown
Won S. Choi
K. A. Greiner
Christine M. Daley
Publication date: 01-06-2012
Publisher: Springer US
Published in: Journal of Community Health / Issue 3/2012
Print ISSN: 0094-5145
Electronic ISSN: 1573-3610
DOI: https://doi.org/10.1007/s10900-011-9502-3

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American Indian/Alaska Native Willingness to Provide Biological Samples for Research Purposes

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