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BMC Health Services Research
Published in: BMC Health Services Research 1/2020

Open Access 01-12-2020 | Research article

A scoping review to characterize bridging tasks in the literature on aging with disability

Authors: Emily Joan Nalder, Tyler M. Saumur, Zinnia Batliwalla, Luis Salvador-Carulla, Michelle Putnam, Andria Spindel, Erica Lenton, Hamdi Hussein

Published in: BMC Health Services Research | Issue 1/2020

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Abstract

Background

Bridging involves improving knowledge sharing and collaboration across different fields, such as aging and disability. The objectives of this review were to describe: 1) the contexts where bridging has occurred in relation to delivery of health services for adults aging with neurological or developmental conditions; and 2) characterize and map bridging tasks, stakeholders involved, and outcomes discussed in peer-reviewed literature.

Methods

Seven databases were searched around the core concepts of “bridging,” “aging,” and “disability.” In total, 10,819 articles were screened with 49 meeting the inclusion criteria of discussing aging with developmental or neurological disability, explicitly describing bridging tasks, published in English and a peer-reviewed publication. Bibliographic information, sample characteristics, and data on bridging was extracted and included in the qualitative synthesis.

Results

Intellectual and/or Developmental disabilities were the most studied population (76% of articles), and most articles were published in the United States (57%). Twenty-two bridging tasks were identified, and categorized into three domains: health and social service delivery (e.g., care coordination tasks), policy (e.g., policy change), and research and training (e.g., mentoring). Stakeholders involved ranged from health care professionals to policy makers and organizations in aging and disability services.

Conclusions

The resulting matrix will assist in the specification of bridging in research and practice. Future work should evaluate specific models of bridging and their effects on health service delivery.
Appendix
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Literature
1.
Campbell M, Putnam M. Reducing the shared burden of chronic conditions among persons aging with disability and older adults in the United States through bridging Aging and Disability. Healthcare. 2017;5(3):56–68.CrossRefPubMedCentral
2.
Verbrugge LM, Brown DC, Zajacova A. Disability rises gradually for a cohort of older Americans. J Gerontol B Psychol Sci Soc Sci. 2017;72(1):151–61.CrossRefPubMed
3.
Bickenbach J, Bigby C, Salvador-Carulla L, Heller T, Leonardi M, LeRoy B, et al. The Toronto declaration on bridging kowledge, policy and practice in aging and disability. Int J Integr Care. 2012;12(8):1–4.CrossRef
4.
Leonardi M, Bickenbach J, LeRoy B. International initiatives on bridging knowledge, poliy and practice. Int J Integr Care. 2012;12(8):1–4.CrossRef
5.
Sheets DJ. Aging with disability: ageism and more. Generations. 2005;24(3):37–41.
6.
Janicki M, Dalton AJ, Michael Henderson C, Davidson PW. Mortality and morbidity among older adults with intellectual disability: health services considerations. Disabil Rehabil. 1999;21(5–6):284–94.CrossRefPubMed
7.
Putnam M. Bridging network divides: building capacity to support aging with disability populations through research. Disabil Health J. 2014;7(1):S51–S9.CrossRefPubMed
8.
Coyle CE, Putman M, Kramer J, Mutchler JE. The role of aging and disability resource centers in serving adults aging with intellectual disabilities and their families: findings from seven states. J Aging Soc Policy. 2016;28(1):1–14.CrossRefPubMedPubMedCentral
9.
Salvador-Carulla L, Fernandez A, Madden R, Lukersmith S, Colagiuri R, Torkfar G, et al. Framing of scientific knowledge as a new category of health care research. J Eval Clin Pract. 2014;20(6):1045–55.CrossRefPubMed
10.
Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.CrossRef
11.
12.
Nalder EJ, Putnam M, Salvador-Carulla L, Spindel A, Batliwalla Z, Lenton E. Bridging knowledge, policies and practices across the ageing and disability fields: a protocol for a scoping review to inform the development of a taxonomy. BMJ Open. 2017;7(10):e016741.CrossRefPubMedPubMedCentral
13.
Analytics C. Endnote X9. Philadelphia: Clarivate Analytics; 2018.
14.
Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88.CrossRefPubMed
15.
Castelpietra G, Salvador-Carulla L, Almborg AH, Fernandez A, Madden R. Working draft: classifications of interventions in mental health care. An expert review. Eur J Psychiatry. 2017;31(4):127–44.CrossRef
16.
Fortune N, Madden R, Almborg AH. Use of a New International Classification of Health Interventions for Capturing Information on Health Interventions Relevant to People with Disabilities. Int J Environ Res Public Health. 2018;15(1):145-55.
17.
Lukersmith S, Fernandez A, Millington M, Salvador-Carulla L. The brain injury case management taxonomy (BICM-T); a classification of community-based case management interventions for a common language. Disabil Health J. 2016;9(2):272–80.CrossRefPubMed
18.
Boyd J, Krupnick A. Using ecological production theory to define and select environmental commodities for nonmarket valuation. J Agric Resour Econ. 2013;42(1):1–32.CrossRef
19.
Tansella M, Thornicroft G. A conceptual framework for mental health services: the matrix model. Psychol Med. 1998;28(3):503–8.CrossRefPubMed
20.
McEwan KL, Goldner EM. Accountability and performance indicators for mental health services and supports: A resource kit. Ottawa, Canada: Health Canada; 2001. Report No.: 0662298667.
21.
Ansello EF. The intersecting of aging and disabilities. Educ Gerontol. 1988;14(5):351–63.CrossRef
22.
Bigby C. Later life for adults with intellectual disability: a time of opportunity and vulnerability. J Intellect Dev Dis. 1997;22(2):97–108.CrossRef
23.
Bigby C. Shifting responsibilities: the patterns of formal service use by older people with intellectual disability in Victoria. J Intellect Dev Dis. 1998;23(3):229–43.CrossRef
24.
Bigby C. Ageing people with a lifelong disability: challenges for the aged care and disability sectors. J Intellect Dev Dis. 2002;27(4):231–41.CrossRef
25.
Bigby C. Comparative program options for aging people with intellectual disabilities. J Policy Pract Intellect Disabil. 2005;2(2):75–85.CrossRef
26.
Bigby C. Beset by obstacles: a review of Australian policy development to support ageing in place for people with intellectual disability. J Intellect Dev Dis. 2008;33(1):76–86.CrossRef
27.
Bigby C. A five-country comparative review of accommodation support policies for older people with intellectual disability. J Policy Pract Intellect Disabil. 2010;7(1):3–15.CrossRef
28.
Bigby C, Wilson NJ, Stancliffe RJ, Balandin S, Craig D, Gambin N. An effective program design to support older workers with intellectual disability to participate individually in community groups. J Policy Pract Intellect Disabil. 2014;11(2):117–27.CrossRef
29.
Borson S. Cognition, aging, and disabilities: conceptual issues. Phys Med Rehabil Clin. 2010;21(2):375–82.CrossRef
30.
Chng J, Stancliffe RJ, Wilson NJ, Anderson K. Engagement in retirement: an evaluation of the effect of active mentoring on engagement of older adults with intellectual disability in mainstream community groups. J Intellect Disabil Res. 2013;57(12):1130–42.PubMed
31.
Clark PG. Understanding aging and disability perspectives on home care: uncovering facts and values in public-policy narratives and discourse. Can J Aging. 2007;26(S1):47–62.CrossRefPubMed
32.
Coogle C, Ansello EF, Wood J, Cotter J. Serving older persons with developmental disabilities: obstacles and inducements to collaboration among agencies. J Appl Gerontol. 1995;14(3):275–88.CrossRef
33.
Cotten PD, Spirrison CL. Development of services for elderly persons with mental retardation in a rural state. Ment Retard. 1988;26(4):187–90.PubMed
34.
Dawson P, Sykes C, McLean P, Zanko M, Marciano H. Stories affoding new pathways: bridging the divide between aged and disability care. J Organ Chang Manag. 2014;27(5):819–38.CrossRef
35.
Doody C, Markey K, Doody O. Health of ageing people with intellectual disability and the role of the nurse in Ireland. J Intellect Disabil. 2012;16(4):275–86.CrossRefPubMed
36.
Doody C, Markey K, Doody O. The experiences of registered intellectual disability nurses caring for the older person with intellectual disability. J Clin Nurs. 2013;22(7–8):1112–23.CrossRefPubMed
37.
Fahey-McCarthy E, McCarron M, Connaire K, McCallion P. Developing an education intervention for staff supporting persons with an intellectual disability and advanced dementia. J Policy Pract Intellect Disabil. 2009;6(4):267–75.CrossRef
38.
Friedman SL, Helm DT, Woodman AC. Unique and universal barriers: hospice care for aging adults with intellectual disability. Am J Intellect Dev Disabil. 2012;117(6):509–32.CrossRefPubMed
39.
Gibson JW, Rabkin J, Munson R. Critical issues in serving the developmentally disabled elderly. J Gerontol Soc Work. 1992;19(1):35–49.CrossRef
40.
Hartley D, Blumenthal T, Carrillo M, DiPaolo G, Esralew L, Gardiner K, et al. Down syndrome and Alzheimer's disease: common pathways, common goals. Alzheimers Dement. 2015;11(6):700–9.CrossRefPubMed
41.
Hassiotis A, Strydom A, Allen K, Walker Z. A memory clinic for older people with intellectual disabilities. Aging Ment Health. 2003;7(6):418–23.CrossRefPubMed
42.
Hawkins BA, Eklund SJ. Aging and developmental disabilities: interagency planning for an emerging population. J Appl Gerontol. 1989;8(2):168–74.CrossRefPubMed
43.
Hegland A. Aging mentally retarded: are we keeping up? Contemp Longterm Care. 1991;14(1):58–60.PubMed
44.
Hobson B, Webb D, Sprague L, Grizzell M, Hawkins C, Benbow SM. Establishing a database for proactive screening of adults with Down's syndrome: when services work together. Adv Ment Health Intellect Disabil. 2012;6(2):99–105.CrossRef
45.
Iezzoni LI. Policy concerns raised by the growing US population aging with disability. Disabil Health J. 2014;7(1):S64–S8.CrossRefPubMed
46.
Janicki M, McCallion P, Force LT, Bishop K, Lepore P. Area agency on aging outreach and assistance for households with older carers of an adult with a developmental disability. J Aging Soc Policy. 1998;10(1):1–24.CrossRef
47.
Keys CB, Factor AR. Building community coalitions with people with disabilities and their families: an empowerment approach. J Prev Interv Community. 2001;21(2):91–112.CrossRef
48.
Kropf NP, Malone M, Welke D. Teaching about older people with mental retardation: an educational model. Educ Gerontol. 1993;19(7):635–49.CrossRef
49.
McCallion P, Janicki M. Area agencies on aging: meeting the needs of persons with developmental disability and their aging families. J Appl Gerontol. 1997;16(3):270–84.CrossRef
50.
McCarron M, Lawlor BA. Responding to the challenges of ageing and dementia in intellectual disability in Ireland. Aging Ment Health. 2003;7(6):413–7.CrossRefPubMed
51.
McCarron M, McCallion P, Fahey-McCarthy E, Connaire K, Dunn-Lane J. Supporting persons with Down syndrome and advanced dementia: challenges and care concerns. Dementia. 2010;9(2):285–98.CrossRef
52.
McDaid D, Cieza A, Gomez AR. Bridging knowledge: reflections on crossing the boundaries between long-term care and support. Int J Integr Care. 2009;9:e60.PubMedPubMedCentral
53.
McGinley JM. From nonissue to healthcare crisis: a historical review of aging and dying with an intellectual and developmental disability. Intellect Dev Disabil. 2016;54(2):151–6.CrossRefPubMed
54.
Parish SL, Lutwick ZE. A critical analysis of the emerging crisis in long-term care for people with developmental disabilities. Soc Work. 2005;50(4):345–54.CrossRefPubMed
55.
Parkinson CB, Howard M. Chapter VII: Older persons with mental retardation/developmental disabilities. J Gerontol Soc Work. 1996;25(1–2):91–104.CrossRef
56.
Robinson LM, Dauenhauer J, Bishop KM, Baxter J. Growing health disparities for persons who are aging with intellectual and developmental disabilities: the social work linchpin. J Gerontol Soc Work. 2012;55(2):175–90.CrossRefPubMed
57.
Ronneberg CR, Peters-Beumer L, Marks B, Factor A. Promoting collaboration between hospice and palliative care providers and adult day services for individuals with intellectual and developmental disabilities. Omega. 2015;70(4):380–403.CrossRefPubMed
58.
Seltzer MM, Krauss MW, Litchfield LC, Modlish NJ. Utilization of aging network services by elderly persons with mental retardation. Gerontologist. 1989;29(2):234–8.CrossRefPubMed
59.
Sheets DJ, Liebig P. The intersection of aging, disability, and supportive environments: issues and policy implications. Hallym Int J Aging. 2005;7(2):143–63.CrossRef
60.
Sheets DJ, Wray LA, Torres-Gil FM. Geriatric rehabilitation: linking aging, health, and disability policy. Top Geriatr Rehabil. 1993;9(2):1–17.CrossRef
61.
Sutherland Smith GP, Thyer BA, Clements C, Kropf NP. An evaluation of coalition building training for aging and developmental disability service providers. Educ Gerontol. 1997;23(2):105–14.CrossRef
62.
Tedrick T. Chapter 10: aging, developmental disabilites and leisure: policy and service delivery issues. Act Adapt Aging. 1990;15(1–2):141–52.
63.
Wark S, Hussain R, Edwards H. Rural and remote area service provision for people aging with intellectual disability. J Policy Pract Intellect Disabil. 2013;10(1):62–70.CrossRef
64.
Washko MM, Campbell M, Tilly J. Accelerating the translation of research into practice in long term services and supports: a critical need for federal infrastructure at the nexus of aging and disability. J Gerontol Soc Work. 2012;55(2):112–25.CrossRefPubMed
65.
Webber R, Bowers B, McKenzie-Green B. Staff responses to age-related health changes in people with an intellectual disability in group homes. Disabil Soc. 2010;25(6):657–71.CrossRef
66.
Mimouni M, Cismariu-Potash K, Ratmansky M, Shaklai S, Amir H, Mimouni-Bloch A. Trends in physical medicine and rehabilitation publications over the past 16 years. Arch Phys Med Rehabil. 2016;97(6):1030–3.CrossRefPubMed
67.
68.
Weber G, Wolfmayr F. The Graz declaration on disability and ageing. J Policy Pract Intellect Disabil. 2006;3(4):271–6.CrossRef
69.
Salvador-Carulla L, Balot J, Weber G, Zelderloo L, Parent A-S, McDaid D, et al. The Barcelona declaration on bridging knowledge in long-term care and support. Barcelona (Spain), March 7, 2009. Int J Integr Care. 2009;9(Suppl):e179–e.PubMedPubMedCentral
70.
Bertelli MO, Salerno L, Rondini E, Salvador-Carulla L. Integrated care for people with intellectual disability. In: Almelung V, Stein V, Goodwin N, Balicer R, Nolte E, Suter E, editors. Vol 28. Handb Integr Care: Springer; 2017. p. 449–68.
71.
Coppus A. People with intellectual disability: what do we know about adulthood and life expectancy? Dev Disabil Res Rev. 2013;18(1):6–16.CrossRefPubMed
72.
Salvador-Carulla L, Bertelli M, Martinez-Leal R. The road to 11th edition of the international classification of diseases: trajectories of scientific consensus and contested science in the classification of intellectual disability/intellectual developmental disorders. Curr Opin Psychiatry. 2018;31(2):79–87.CrossRefPubMed
73.
Peters MD, Godfrey CM, Khalil H, McInerney P, Parker D, Soares CB. Guidance for conducting systematic scoping reviews. Int J Evid Based Healthc. 2015;13(3):141–6.CrossRefPubMed
Metadata
Title
A scoping review to characterize bridging tasks in the literature on aging with disability
Authors
Emily Joan Nalder
Tyler M. Saumur
Zinnia Batliwalla
Luis Salvador-Carulla
Michelle Putnam
Andria Spindel
Erica Lenton
Hamdi Hussein
Publication date
01-12-2020
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2020
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-020-5046-5

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