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Journal of Clinical Psychology in Medical Settings

Published in:

01-09-2013

A Quality of Life Survey of Individuals with Urinary Incontinence Who Visit a Self-Help Website: Implications for those Seeking Healthcare Information

Authors: Ronald H. Rozensky, Steven M. Tovian, Cheryle B. Gartley, Thom R. Nichols, Matthew Layton

Published in: Journal of Clinical Psychology in Medical Settings | Issue 3/2013

Abstract

Urinary Incontinence (UI) affects 200 million people worldwide with annual direct costs in the US alone estimated at $16.3 billion. Those with UI have reported a decrease in general quality of life with symptoms of depression, anxiety, low self-esteem, poor body image, and social stigmatization. The purpose of this study was to examine the feasibility of collecting self-reported quality of life data in a self-selected sample of individuals who visited a website providing information, education, and management suggestions regarding UI. Participants included 374 individuals with UI who responded to a solicitation for enrollment in a “Continence Comprehensive Health and Life Assessment” survey posted on The Simon Foundation for Continence website (www.simonfoundation.org). Types of problems and events associated with UI, including social connectivity and quality of life, are discussed along with limitations of the study and implications for future research. Given that 13.01 % of respondents had not spoken to a healthcare provider about their UI symptoms, 24.73 % had never seen a healthcare professional who “specializes in bladder problems,” and 75 % said they were not currently using any active approach to managing symptoms, use of such information is discussed in terms of how to construct internet healthcare information to maximize seeking appropriate healthcare services and preparing internet-based information regarding incontinence diagnosis and treatment.

Ashworth, P. D., & Hagan, M. T. (1993). The meaning of incontinence: A qualitative study of non-geriatric urinary incontinence sufferers. Journal of Advanced Nursing, 18, 1415–1423. doi:10.1046/j.1365-2648.1993.18091415.x.PubMedCrossRef

Atkinson, N. L., Saperstein, S. L., & Pleis, J. (2009). Using the Internet for health-related activities: Findings from a national probability sample. Journal of Medical Internet Research, 11(1), e4. doi:10.2196/jmir.1035.PubMedCrossRef

Bodie, G. D., & Dutta, M. J. (2008). Understanding health literacy for strategic health marketing: Health literacy, health disparities, and the digital divide. Health Marketing Quarterly, 25, 175–203. doi:10.1080/07359680802126301.PubMedCrossRef

Bushnell, D. M., Martin, M. L., Summers, K. H., Svihra, J., Lionis, C., & Patrick, D. (2005). Quality of life of women with urinary incontinence: Cross cultural performance of 15 language versions of the I-QOL. Quality of Life Research, 14, 1573–2649. doi:10.1007/s11136-005-5266-5.CrossRef

Corcos, J., Beaulieu, S., Donovan, J., Naughton, M., Gotoh, M., & Symptom Quality of Life Assessment Committee of the First International Consultation on Incontinence. (2002). Quality of life assessment in men and women with urinary incontinence. The Journal of Urology, 168, 896–905. doi:10.1097/01.ju.0000024401.79394.21.PubMedCrossRef

Coyne, K. S., Kvasz, M., Ireland, A. M., Milsom, I., Kopp, Z. S., & Chapple, C. R. (2012). Urinary incontinence and its relationship to mental health and health-related quality of life in men and women in Sweden, the United Kingdom, and the United States. European Urology, 6, 88–95.CrossRef

Fantl, J.A., Newman D.K., Colling J., DeLancey, J.O.L., Keeys, C., & Loughery, R (1996). Managing acute and chronic urinary incontinence. Clinical practice guideline. Quick reference guide for clinicians, No. 2, 1996 Update. AHCPR Pub. No. 96-0686. Rockville, MD: U.S. Department of Health and Human Services, Public Health Service, Agency for Health Care policy and research.

Fultz, N. H., & Herzog, A. R. (2001). Self-reported social and emotional impact of urinary incontinence. Journal of American Geriatric Society, 49, 892–899. doi:10.1046/j.1532-5415.2001.49179.x.CrossRef

Garley, A., & Unwin, J. (2006). A case series to pilot cognitive behaviour therapy for women with urinary incontinence. British Journal of Health Psychology, 11, 373–386. doi:10.1348/135910705X53876.PubMedCrossRef

Gartley, C. B., Klein, M. R., Norton, C., & Saltmarche, A. (Eds.). (2012). Managing life with incontinence. Willmette: Simon Foundation.

Griebling, T. L., Titler, M. G., Forest, P., & Kreder, K. J. (1999). Urinary incontinence and quality of life: Development and validation of a multidimensional assessment instrument. Association for Health Services Research Meeting Abstract. Book Association Health Services Research Meeting, 16, 80.

Hagglund, D., Walker-Engstrom, M. L., Larsson, G., & Leppert, J. (2003). Reasons why women with long-term urinary incontinence do not seek professional help: A cross-sectional population-based cohort study. International Urogynecological Journal of Pelvic Floor Dysfunction, 14, 296–304. doi:10.1007/s00192-003-1077-9.CrossRef

Hannestad, Y. S., Rortveit, G., Sandvik, H., & Hunskaar, S. (2000). A community based epidemiological survey of female urinary incontinence: The Norwegian EPINCONT study. Epidemiology of Incontinence in the County of Nord-Trondelag. Journal of Clinical Epidemiology, 53, 1150–1157. doi:10.1016/S0895-4356(00)00232-8.PubMedCrossRef

Hawthorne, G. (2006). Measuring social isolation in older adults: Development and initial validation of the friendship scale. Social Indicators Research, 77, 521–548. doi:10.1007/s11205-005-7746-y.CrossRef

Hunskaar, S., & Vinsnes, A. (1991). The quality of life in women with urinary incontinence as measured by the sickness impact profile. The American Geriatrics Society, 39, 378–382.

Kinchen, K. S., Burgio, K., Diokno, A. C., Fultz, N. H., Bump, R., & Obenchain, R. (2003). Factors associated with women’s decisions to seek treatment for urinary incontinence. Journal of Women’s Health, 12, 687–698. doi:10.1089/154099903322404339.PubMedCrossRef

Koch-Weser, S., Bradshaw, Y. S., Gualtieri, L., & Gallagher, S. S. (2010). The Internet as a health information source: Findings from the 2007 Health Information National Trends Survey and implications for health communication. Journal of Health Communication, 15, 279–293. doi:10(1080/10810730).2010.522700.PubMedCrossRef

Kwon, B. E., Kim, G. Y., Son, Y. J., Roh, Y. S., & You, M. A. (2010). Quality of life of women with urinary incontinence: A systematic literature review. International Neurourology Journal, 14, 133–138. doi:10.5213/inj.2010.14.3.133.PubMedCrossRef

Landefeld, C. S., Bowers, B. J., Feld, A. D., Hartman, K. E., Hoffman, E., Ingber, M. J., et al. (2008). National Institutes of Health state-of-the-science conference statement: Prevention of fecal and urinary incontinence in adults. Annals of Internal Medicine, 148, 449–460.PubMedCrossRef

Li, Y., Cai, X., Glance, L. G., & Mukamel, D. B. (2007). Gender differences in healthcare-seeking behavior for urinary incontinence and the impact of socioeconomic status: A study of the Medicare managed care population. Medical Care, 45, 1116–1122. doi:10.1097/MLR.0b013e31812da820.PubMedCrossRef

Linn A.J., Vervloet M., van Dijk L., Smit E.G., & van Weert J.C.M. (2011). Effects of eHealth interventions on medication adherence: A systematic review of the literature. Journal of Medical Internet Research, 13, 103. doi:10.2196/jmir.1738. Retrieved from http://www.jmir.org/2011/4/e103/.

Lorence, D. P., Park, H., & Fox, S. (2006). Assessing health consumerism on the web: A demographic profile of information-seeking behaviors. Journal of Medical Systems, 30, 251–258. doi:10.1007/s10916-005-9004-x.PubMedCrossRef

Montague, E. & Perchonok, J. (2012) Health and wellness technology use by historically underserved health consumers: Systematic review. Journal of Medical Internet Research, 14, e78. doi:10.2196/jmir.2095. Retrieved from http://www.jmir.org/2012/3/e78/.

Moore, K. N., & Gray, M. (2004). Urinary incontinence in men: Current status and future directions. Nursing Research, 53, S36–S41. doi:10.1097/00006199-200411006-00006.PubMedCrossRef

Nichols, T. R., & Layton, M. (2012). Life management and quality of life issues for those with urinary incontinence. International Journal of Urological Nursing, 6, 66–71. doi:10.1111/j.1749-771X.2012.01141.x.CrossRef

Norton, P., & Brubaker, L. (2006). Urinary incontinence in women. The Lancet, 367, 57–67. doi:10.1016/S0140-6736(06)67925-7.CrossRef

Nygaard, I., Thom, D. H., & Calhoun, E. A., (2007). Urinary incontinence in women. In M. S. Litwin & C. S.Saigal (Eds.), Urologic diseases in America. DHHS, PHS, NIH, NIDDK. Washington, DC: GPO; 2007. NIH publication 07–5512:157–191.

Palmer, M. H. (2004). Use of health behavior change theories to guide urinary incontinence research. Nursing Research, 53, S49–S55. doi:10.1097/00006199-200411006-00008.PubMedCrossRef

Riss, P., & Kargi, J. (2011). Quality of life and urinary incontinence in women. Marutias, 68, 137–142. doi:10.1016/j.maturitas.2010.11.006.

Roe, O., Milne, J., Ostaszkiewicz, J., & Wallace, S. (2007). Systematic reviews of bladder training and voiding programmes in adults: A synopsis of findings on theory and methods using metastudy techniques. Journal of Advanced Nursing, 57, 3–14.PubMedCrossRef

Roe, B., Watson, N. M., Palmer, M. H., Mueller, C., Vinsnes, A. G., & Wells, M. (2004). Translating research on incontinence into practice. Nursing Research, 53, S56–S60. doi:10.1097/00006199-200411006-00009.PubMedCrossRef

Royer, A. (1998). Life with chronic illness: Social and psychological dimensions. Westport: Praeger.

Rozensky, R. H., Tovian, S. M., & Dubyak, P. (2012). How we view our bodies. In C. B. Gartley, M. R. Klein, C. Norton, & A. Saltmarche (Eds.), Managing life with incontinence (pp. 71–84). Willmette: Simon Foundation.

Seim, A., Hermstad, R., & Hunskaar, S. (1997). Management in general practice significantly reduced psychosocial consequences of female urinary incontinence. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 6, 257–264.CrossRef

Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32, 705–714. doi:10.1016/0277-9536(91)90150-B.CrossRef

Sims, J., Browning, C., Lundgren-Lindquist, B., & Kendig, H. (2011). Urinary incontinence in a community sample of older adults: Prevalence and impact on quality of life. Disability and Rehabilitation, 33, 1389–1398. doi:10.3109/09638288.2010.532284.PubMedCrossRef

Stothers L, Thom DH, & Calhoun EA. (2007). Urinary incontinence in men. In Litwin MS & Saigal CS. (Eds). Urologic diseases in America. DHHS, PHS, NIH, NIDDK. Washington, DC: GPO; 2007. NIH publication 07--5512:193–221.

Subak, L. L., Brown, J. S., Kraus, S. R., Brubaker, L., Lin, F., Richter, H. E., et al. (2006). The “costs” of urinary incontinence of women. Obstetrics and Gynecology, 107, 908–916. doi:10.1097/01.AOG.0000206213.48334.09.PubMedCrossRef

Tovian, S. M., & Rozensky, R. H. (1985). Building inner confidence. In C. Gartley (Ed.), Managing incontinence. Ottawa: Jameson Books.

Tovian, S. M., Rozensky, R. H., Sloan, T. B., & Slotnick, G. M. (1994). Adult urinary incontinence: Assessment, intervention, and the role of clinical health psychology in program development. Journal of Clinical Psychology in Medical Settings, 1, 339–361. doi:10.1007/BF01991078.CrossRef

Tustin, N. (2010). The role of patient satisfaction in online health information seeking. Journal of Health Communication: International Perspectives, 15, 3–17. doi:10.1080/10810730903465491.CrossRef

Wilson, L., Brown, J. S., Shin, G. P., Luc, K. O., & Subak, L. L. (2001). Annual direct cost of urinary incontinence. Obstetrics and Gynecology, 98, 398–406. doi:10.1016/S0029-7844(01)01464-8.PubMedCrossRef

Wyman, J. F., Harkins, S., Choi, S., Taylor, J. R., & Fantl, A. (1987). Psychosocial impact of urinary incontinence in women. Obstetrics and Gynecology, 70, 378–381.PubMed

Title: A Quality of Life Survey of Individuals with Urinary Incontinence Who Visit a Self-Help Website: Implications for those Seeking Healthcare Information
Authors: Ronald H. Rozensky
Steven M. Tovian
Cheryle B. Gartley
Thom R. Nichols
Matthew Layton
Publication date: 01-09-2013
Publisher: Springer US
Published in: Journal of Clinical Psychology in Medical Settings / Issue 3/2013
Print ISSN: 1068-9583
Electronic ISSN: 1573-3572
DOI: https://doi.org/10.1007/s10880-013-9361-4

2024 ASCO Annual Meeting

Springer Medicine

A Quality of Life Survey of Individuals with Urinary Incontinence Who Visit a Self-Help Website: Implications for those Seeking Healthcare Information

Abstract

2024 ASCO Annual Meeting

Springer Medicine

Abstract

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