Skip to main content
Log in

Using an Aging Services Agency/University Partnership to Study Informal Caregiver Respite Programs

  • Published:
Ageing International Aims and scope Submit manuscript

Abstract

By the year 2030, 13 % of the world’s population will be aged 65 years or older. At some point, many of these older adults will require some form of informal caregiving from family members and/or friends. Furthermore, 40 % of the caregivers caring for these elders currently are between the ages of 50 and 64, making caregiving an important productive aging activity. As a result of the doubling of the 65 + age group globally by the year 2050, caregiving will become an important social and public health concern. And, the labor and services provided by caregivers will continue to be a critical activity of productive aging. For this reason, it is imperative that research examining the impact of caregiver respite programs on caregiver outcomes, including caregiver strain, general health, and emotional well-being, be conducted in order to meet the needs of future informal caregivers. In this paper, the authors answer the following question: How can researchers effectively partner with community-based agencies to carry out caregiver respite program studies that bridge academia and every day practice, and inform policymakers about the values of community-based caregiver respite programs for the caregivers of frail older adults? The question is answered by: 1) describing the factors that contributed to the success of one university/community-based partnership, 2) describing, and reporting, the results of two caregiver respite program studies conducted by the partnership, and 3) discussing the lessons learned as well as the future research opportunities that resulted from the university/community-based agency research partnership.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • AARP International. (2008). United Nations international day of the older person: Global perspectives on family caregiving. Washington, DC: AARP International.

    Google Scholar 

  • Administration on Aging. (2000). Older Americans Act. Retrieved October 1, 2005, from http://www.aoa.gov/about/legbudg_oaa.asp

  • Balaswamy, S., & Dabelko, H. (2002). Using a stakeholder participatory model in a community-wide service needs assessment of elderly residents: a case study. Journal of Community Practice, 10, 55–69.

    Article  Google Scholar 

  • Barboza, D. (12 January 2011). China in a shift takes on its Alzheimer’s problem. New York Times Online.

  • Barrios-Paoli, L. (2011). NYC Department for the Aging Annual Plan Summary April 1,2012 – March 31, 2013. New York: New York City Department for the Aging.

    Google Scholar 

  • Bédard, M., Molloy, W., Squire, L., Dubois, S., Lever, J. A., et al. (2001). The Zarit burden interview: a new short version and screening version. Gerontologist, 41, 652–657.

    Article  Google Scholar 

  • Bellamy, J., Bledsoe, S., Mullen, E., Fang, L., & Manuel, J. (2008). Agency-university partnership for evidence-based practice in social work. Journal of Social Work Education, 44, 55–75.

    Article  Google Scholar 

  • Berg-Weger, M., Tebb, S., Cook, C., Gallagher, M., Flory, B., & Cruce, A. (2004). The collaborative education partnership: community, faculty, and student partnerships in practice evaluation. Journal of Community Practice, 12, 141–162.

    Article  Google Scholar 

  • Boyd, S., Morrow, D., Shobe, M., & Tack, F. (2006). Lessons learned from an innovative university-community collaboration: the development of a direct practice training for child welfare and mental health social workers. Professional Development, 9, 140–152.

    Google Scholar 

  • Chen, H. (2002). Designing and conducting participatory outcome evaluation of community-based organizations’ HIV prevention programs. AIDS Education and Prevention, 14, 18–26.

    Article  Google Scholar 

  • Feinberg, L., Wolkwitz, K., & Goldstein, C. (2006). Ahead of the curve: Emerging trends and practices in family caregiver support. Washington, DC: AARP.

    Google Scholar 

  • Gilliam, G., David, D., Barrington, T., Lacson, R., Uhl, G., & Phoenix, U. (2002). The value of engaging stakeholders in planning and implementing evaluation. AIDS Education and Prevention, 14, 5–17.

    Article  Google Scholar 

  • Gomes, M., Rizzo, V., & Dunner, I. (2009). Studying caregiver respite programs. Las Vegas: Poster presentation. NCOA/ASA Annual Program Meeting.

    Google Scholar 

  • Hashimoto, A., & Ikels, C. (2005). Filial piety in changing Asian societies. In M. L. Johnson (Ed.), The Cambridge handbook of age and ageing. New York: Cambridge University Press.

    Google Scholar 

  • Hoffmann, F., Rodriguies, R. (2010). Informal carers: who takes care of them? Policy Brief. European Centre.

  • Hyde, C., & Meyer, M. (2004). A collaborative approach to service, learning, and scholarship: a community-based research course. Journal of Community Practice, 12, 71–88.

    Article  Google Scholar 

  • Kroenke, K., & Spitzer, R. L. (2002). The PHQ9: a new depression diagnostic and severity measure. Psychiatry Annal, 32, 509–515.

    Google Scholar 

  • McKay, M., et al. (2007). Creating mechanisms for meaningful collaboration between members of urban communities and university-based HIV prevention researchers. Social Work in Mental Health, 5, 147–168.

    Article  Google Scholar 

  • Montgomery, R., Kwak, J., & Rowe, J. (2011). Advancing social work practice with family caregivers. Indian Journal of Gerontology, 25, 553–575. Doi: http://www.gerontologyindia.com/journal.htm.

    Google Scholar 

  • Mrsnik, M. (7 October 2011). Global aging 2010: An irreversible truth. Standard and Poor’s Global Credit Portal. Retrieved on June 10, 2011 from http://www.globalaging.org/health/World/2011/Global%20Aging%20is%20Irreversible.pdf

  • National Family Caregiver Alliance. (2011a). Caregivers. Retrieved on June 6, 2011 from http://www.caregiver.org/caregiver/jsp/content_node.jsp?noeid=439

  • National Family Caregiver Alliance. (2011b). Caregiver statistics: Statistics on family caregivers and caregiving. Retrieved on June 6, 2011 from http://www.ncfacares.org/ who_are_family_caregivers/care_giving_statistics.cfm

  • National Institute on Aging, U.S. National Institutes of Health. (2007). Why population aging matters: A global perspective. Washington, DC: U.S. Department of Health and Human Services.

    Google Scholar 

  • Rizzo, V., & Gomes, M. (2010). Measuring program outcomes: using standardized instruments to enhance evidence-based practice. Chicago: NCOA/ASA Annual Program Meeting.

    Google Scholar 

  • Rizzo, V., Berman, J., Kiefer, L. (16 Septemer 2009). Using standardized instruments to strengthen case management assessment, intervention, and client outcomes (two-part workshop). The 16th Annual New York State Adult Abuse Training Institute.

  • Robinson, B. (1983). Validation of a caregiver strain index. Journal of Gerontology, 38, 344–348.

    Article  Google Scholar 

  • Sullivan, M. (2002). Caregiver strain index. Try this: best practices in nursing care to older adults 14:1–2.

  • Ware, J. E., Kosinski, M., & Keller, S. D. (1996). A 12-item short form health survey: construction of scales and preliminary tests of reliability and validity. Medical Care, 34, 220–233.

    Article  Google Scholar 

  • Ware, J. E., Kosinski, M., Gandek, B., Sundaram, H., Bjomer, J., Turner-Bowler, D., et al. (2002). User’s manual for the SF-12v2 Health Survey. Lincoln: QualityMetric.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Victoria M. Rizzo.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Rizzo, V.M., Gomes, A. & Chalfy, A. Using an Aging Services Agency/University Partnership to Study Informal Caregiver Respite Programs. Ageing Int 38, 71–81 (2013). https://doi.org/10.1007/s12126-012-9172-1

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s12126-012-9172-1

Keywords

Navigation