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Consumer Health Informatics: Engaging and Empowering Patients and Families

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Abstract

Technological advances, coupled with a shift toward patient-centered care and unprecedented consumer access to information, have created a new era of consumer engagement, empowerment, and activation. This transformation has striking implications and opportunities for clinical informaticians, including the emergence and evolution of the interdisciplinary field of Consumer Health Informatics. In this chapter, we explore the fundamentals based on a sociotechnical perspective, major drivers, factors which influence consumer adoption and use, and key elements and strategies associated with implementation. We provide an overview of evidence in the literature and methods for assessing impact, and conclude with a discussion of emerging trends.

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Authors and Affiliations

  1. Department of Veterans Affairs, Veterans and Consumer Health Informatics Office, Office of Informatics and Analytics, c/o Stratton VA Medical Center, 113 Holland Avenue, Albany, NY, 12208, USA

    Kim M. Nazi PhD, FACHE

  2. Department of Veterans Affairs, Center for Healthcare Organization and Implementation Research, Edith Nourse Rogers Memorial Veterans Hospital, Bedford, MA, USA

    Timothy P. Hogan PhD

  3. Division of Health Informatics and Implementation Science, Department of Quantitative Health Sciences, University of Massachusetts Medical School, Worcester, MA, USA

    Timothy P. Hogan PhD

  4. Informatics and Research, VA Maine Healthcare System, Augusta, ME, USA

    Susan S. Woods MD, MPH

  5. General Internal Medicine, Veterans Affairs Boston Healthcare System, Boston, MA, USA

    Steven R. Simon MD, MPH

  6. Group Health Research Institute, Group Health Cooperative, Seattle, WA, USA

    James D. Ralston MD, MPH

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  1. Kim M. Nazi PhD, FACHE
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  2. Timothy P. Hogan PhD
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  3. Susan S. Woods MD, MPH
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  4. Steven R. Simon MD, MPH
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  5. James D. Ralston MD, MPH
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Correspondence to Kim M. Nazi PhD, FACHE .

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Editors and Affiliations

  1. Department of Emergency Medicine, Indiana University, Indianapolis, Indiana, USA

    John T. Finnell

  2. Richard M. Fairbank School of Public Health, Indiana University, Indianapolis, USA

    Brian E. Dixon

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Nazi, K.M., Hogan, T.P., Woods, S.S., Simon, S.R., Ralston, J.D. (2016). Consumer Health Informatics: Engaging and Empowering Patients and Families. In: Finnell, J., Dixon, B. (eds) Clinical Informatics Study Guide. Springer, Cham. https://doi.org/10.1007/978-3-319-22753-5_19

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