Skip to main content
Top
Published in:

Open Access 07-12-2024 | Original Paper

The Role of Shared Decision-Making in Promoting Family Participation in Treatment for Adolescents and Young Adults with First-Episode Psychosis

Authors: Nicole L. Davies, Paige E. Cervantes, Mary C. Acri, Kimberly E. Hoagwood

Published in: Community Mental Health Journal | Issue 2/2025

Login to get access

Abstract

We aimed to examine the role of shared decision-making (SDM) in family participation in the treatment of adolescents and young adults with first-episode psychosis (FEP). Based on responses of 144 family members of OnTrackNY (OTNY) participants, we divided the sample into low participators and high participators. We calculated the total SDM score for each participant by summing the ratings across items inquiring about SDM and assessed the extent to which loved ones encouraged family participation in their care. Our results indicated that the level of loved ones’ encouragement was significantly related to family participation. When controlling for loved ones’ encouragement, we found that the total SDM score was significantly higher in the high participator group. These findings suggest that SDM may be influenced by loved ones’ attitudes towards family involvement in treatment and SDM may play a role in promoting family participation in care for individuals with FEP.
Literature
go back to reference Bello, I., Lee, R., Malinovsky, I., Malinovsky, I., Watkins, L., Nossel, I., Smith, T., Ngo, H., Birnbaum, M., Marino, L., Sederer, L. I., Radigan, M., Gu, G., Essock, S., & Dixon, L. S. (2017). OnTrackNY: The development of a coordinated specialty care program for individuals experiencing early psychosis. Psychiatric Services., 68(4), 318–320.CrossRefPubMed Bello, I., Lee, R., Malinovsky, I., Malinovsky, I., Watkins, L., Nossel, I., Smith, T., Ngo, H., Birnbaum, M., Marino, L., Sederer, L. I., Radigan, M., Gu, G., Essock, S., & Dixon, L. S. (2017). OnTrackNY: The development of a coordinated specialty care program for individuals experiencing early psychosis. Psychiatric Services., 68(4), 318–320.CrossRefPubMed
go back to reference Deegan, P. E., & Drake, R. E. (2006). Shared decision making and medication management in the recovery process. Psychiatric Services., 57(11), 1636–1639.CrossRefPubMed Deegan, P. E., & Drake, R. E. (2006). Shared decision making and medication management in the recovery process. Psychiatric Services., 57(11), 1636–1639.CrossRefPubMed
go back to reference Dixon, L. B., Glynn, S. M., Cohen, A. N., et al. (2014). Outcomes of a brief program, REORDER, to promote consumer recovery and family involvement in care. Psychiatric Services., 65(1), 116–120.CrossRefPubMed Dixon, L. B., Glynn, S. M., Cohen, A. N., et al. (2014). Outcomes of a brief program, REORDER, to promote consumer recovery and family involvement in care. Psychiatric Services., 65(1), 116–120.CrossRefPubMed
go back to reference Doyle, R., Turner, N., Fanning, F., Brennan, D., Renwick, L., Lawlor, E., & Clarke, M. (2014). First-episode psychosis and disengagement from treatment: A systematic review. Psychiatric Services., 65(5), 603–611.CrossRefPubMed Doyle, R., Turner, N., Fanning, F., Brennan, D., Renwick, L., Lawlor, E., & Clarke, M. (2014). First-episode psychosis and disengagement from treatment: A systematic review. Psychiatric Services., 65(5), 603–611.CrossRefPubMed
go back to reference Elwyn, G., Laitner, S., Coulter, A., Walker, E., Watson, P., & Thomson, R. (2010) Implementing shared decision making in the NHS. BMJ, 341 (Oct 2), c5146. Elwyn, G., Laitner, S., Coulter, A., Walker, E., Watson, P., & Thomson, R. (2010) Implementing shared decision making in the NHS. BMJ, 341 (Oct 2), c5146.
go back to reference Engle, R. L., Mohr, D. C., Holmes, S. K., Seibert, M. N., Afable, M., Leyson, J., & Meterko, M. (2021). Evidence-based practice and patient-centered care: Doing both well. Health Care Management Review, 46(3), 174–184.CrossRefPubMed Engle, R. L., Mohr, D. C., Holmes, S. K., Seibert, M. N., Afable, M., Leyson, J., & Meterko, M. (2021). Evidence-based practice and patient-centered care: Doing both well. Health Care Management Review, 46(3), 174–184.CrossRefPubMed
go back to reference Fiorillo, A., Stefano Barlati, Bellomo, A., Giulio Corrivetti, Nicolò, G., Sampogna, G., Stanga, V., Franco Veltro, Maina, G., & Vita, A. (2020). The role of shared decision-making in improving adherence to pharmacological treatments in patients with schizophrenia: a clinical review. Annals of General Psychiatry, 19(1). https://doi.org/10.1186/s12991-020-00293-4 Fiorillo, A., Stefano Barlati, Bellomo, A., Giulio Corrivetti, Nicolò, G., Sampogna, G., Stanga, V., Franco Veltro, Maina, G., & Vita, A. (2020). The role of shared decision-making in improving adherence to pharmacological treatments in patients with schizophrenia: a clinical review. Annals of General Psychiatry19(1). https://​doi.​org/​10.​1186/​s12991-020-00293-4
go back to reference Ingoldsby, E. M. (2010). Review of Interventions to Improve Family Engagement and Retention in Parent and Child Mental Health Programs. Journal of Child and Family Studies., 19(5), 629–645.CrossRefPubMedPubMedCentral Ingoldsby, E. M. (2010). Review of Interventions to Improve Family Engagement and Retention in Parent and Child Mental Health Programs. Journal of Child and Family Studies., 19(5), 629–645.CrossRefPubMedPubMedCentral
go back to reference Karnieli-Miller, O., Werner, P., Neufeld-Kroszynski, G., & Eidelman, S. (2012). Are you talking to me?! An exploration of the triadic physician–patient–companion communication within memory clinics encounters. Patient Education and Counseling, 88(3), 381–390.CrossRefPubMed Karnieli-Miller, O., Werner, P., Neufeld-Kroszynski, G., & Eidelman, S. (2012). Are you talking to me?! An exploration of the triadic physician–patient–companion communication within memory clinics encounters. Patient Education and Counseling, 88(3), 381–390.CrossRefPubMed
go back to reference Kirkbride, J. B., Errazuriz, A., Croudace, T. J., Morgan, C., Jackson, D., Boydell, J., Murray, R. M., & Jones, P. B. (2012). Incidence of Schizophrenia and other psychoses in England, 1950–2009: A Systematic Review and Meta-Analyses. PLoS ONE, 7 (3), e31660. Kirkbride, J. B., Errazuriz, A., Croudace, T. J., Morgan, C., Jackson, D., Boydell, J., Murray, R. M., & Jones, P. B. (2012). Incidence of Schizophrenia and other psychoses in England, 1950–2009: A Systematic Review and Meta-Analyses. PLoS ONE, 7 (3), e31660.
go back to reference Lucksted, A., Essock, S. M., Stevenson, J., Mendon, S. P., Nossel, I. R., Goldman, H. H., Goldstein, A. B., & Dixon, L. B. (2015). Client views of engagement in the RAISE connection program for early psychosis recovery. Psychiatric Services., 66(7), 699–704.CrossRefPubMed Lucksted, A., Essock, S. M., Stevenson, J., Mendon, S. P., Nossel, I. R., Goldman, H. H., Goldstein, A. B., & Dixon, L. B. (2015). Client views of engagement in the RAISE connection program for early psychosis recovery. Psychiatric Services., 66(7), 699–704.CrossRefPubMed
go back to reference Robson, E., & Greenwood, K. (2022). Rates and predictors of disengagement and strength of engagement for people with a first episode of psychosis using early intervention services: A systematic review of predictors and meta-analysis of disengagement rates. Schizophrenia Bulletin Open, 3(1). https://doi.org/10.1093/schizbullopen/sgac012 Robson, E., & Greenwood, K. (2022). Rates and predictors of disengagement and strength of engagement for people with a first episode of psychosis using early intervention services: A systematic review of predictors and meta-analysis of disengagement rates. Schizophrenia Bulletin Open3(1). https://​doi.​org/​10.​1093/​schizbullopen/​sgac012
go back to reference Schimmelmann, B. G., Conus, P., Schacht, M., McGorry, P., & Lambert, M. (2006). Predictors of service disengagement in first-admitted adolescents with psychosis. Journal of the American Academy of Child & Adolescent Psychiatry., 45(8), 990–999.CrossRef Schimmelmann, B. G., Conus, P., Schacht, M., McGorry, P., & Lambert, M. (2006). Predictors of service disengagement in first-admitted adolescents with psychosis. Journal of the American Academy of Child & Adolescent Psychiatry., 45(8), 990–999.CrossRef
go back to reference Stowkowy, J., Addington, D., Liu, L., Hollowell, B., & Addington, J. (2012). Predictors of disengagement from treatment in an early psychosis program. Schizophrenia Research., 136(1–3), 7–12.CrossRefPubMed Stowkowy, J., Addington, D., Liu, L., Hollowell, B., & Addington, J. (2012). Predictors of disengagement from treatment in an early psychosis program. Schizophrenia Research., 136(1–3), 7–12.CrossRefPubMed
go back to reference Thomas, E. C., Ben-David, S., Treichler, E., et al. (2021). A systematic review of shared decision-making interventions for service users with serious mental illnesses: state of the science and future directions. Psychiatric Services., 72(11), 1288–1300.CrossRefPubMed Thomas, E. C., Ben-David, S., Treichler, E., et al. (2021). A systematic review of shared decision-making interventions for service users with serious mental illnesses: state of the science and future directions. Psychiatric Services., 72(11), 1288–1300.CrossRefPubMed
go back to reference Vos, T., Barber, R. M., Bell, B., et al. (2015). Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990–2013: A systematic analysis for the global burden of disease study 2013. The Lancet., 386(9995), 743–800.CrossRef Vos, T., Barber, R. M., Bell, B., et al. (2015). Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990–2013: A systematic analysis for the global burden of disease study 2013. The Lancet., 386(9995), 743–800.CrossRef
go back to reference Zisman-Ilani, Y., Barnett, E., Harik, J., Pavlo, A., & O’Connell, M. (2017). Expanding the concept of shared decision making for mental health: Systematic search and scoping review of interventions. Mental Health Review Journal, 22(3), 191–213.CrossRef Zisman-Ilani, Y., Barnett, E., Harik, J., Pavlo, A., & O’Connell, M. (2017). Expanding the concept of shared decision making for mental health: Systematic search and scoping review of interventions. Mental Health Review Journal, 22(3), 191–213.CrossRef
go back to reference Zisman-Ilani, Y., Lysaker, P. H., & Hasson-Ohayon, I. (2021a). Shared risk taking: Shared decision making in serious mental illness. Psychiatric Services (Washington, D.C.), 72(4), 461–463. Zisman-Ilani, Y., Lysaker, P. H., & Hasson-Ohayon, I. (2021a). Shared risk taking: Shared decision making in serious mental illness. Psychiatric Services (Washington, D.C.), 72(4), 461–463.
Metadata
Title
The Role of Shared Decision-Making in Promoting Family Participation in Treatment for Adolescents and Young Adults with First-Episode Psychosis
Authors
Nicole L. Davies
Paige E. Cervantes
Mary C. Acri
Kimberly E. Hoagwood
Publication date
07-12-2024
Publisher
Springer US
Published in
Community Mental Health Journal / Issue 2/2025
Print ISSN: 0010-3853
Electronic ISSN: 1573-2789
DOI
https://doi.org/10.1007/s10597-024-01363-7