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Open Access 26-07-2023 | Telemedicine | Current Opinion

A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community

Authors: Bonnie Addario, Violeta Astratinei, Louise Binder, Jan Geissler, Marcia K. Horn, Linda U. Krebs, Bryan Lewis, Kathy Oliver, Andrew Spiegel

Published in: The Patient - Patient-Centered Outcomes Research | Issue 5/2023

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Abstract

The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to be universally available to all patients with cancer, nor to be appropriate for every healthcare interaction; additionally, not all patients prefer it. Now that coronavirus disease restrictions have essentially ended and an opportunity to re-assess telehealth provision in cancer care presents, we offer a framework that aims to ensure that the needs and preferences of the patient community are included in the development of telehealth provision. Stakeholders in this process include patients, patient advocates, healthcare providers, healthcare services commissioners, managers, and policy makers. The framework outlines how patient advocates can work with other stakeholders as equal partners at all stages of telehealth service development. The patient advocate community has a unique understanding of the patient perspective as well as expertise in healthcare design and delivery. This enables advocates to contribute to shaping telehealth provision, from policy and guideline formulation to patient navigation. Appropriate resources, education and training may be needed for all stakeholders to support the development of an effective telehealth system. Together with other stakeholders, patient advocates can make an important contribution to optimizing appropriate patient-centred telehealth provision in cancer care.
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Metadata
Title
A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community
Authors
Bonnie Addario
Violeta Astratinei
Louise Binder
Jan Geissler
Marcia K. Horn
Linda U. Krebs
Bryan Lewis
Kathy Oliver
Andrew Spiegel
Publication date
26-07-2023
Publisher
Springer International Publishing
Published in
The Patient - Patient-Centered Outcomes Research / Issue 5/2023
Print ISSN: 1178-1653
Electronic ISSN: 1178-1661
DOI
https://doi.org/10.1007/s40271-023-00642-x

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