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Open Access 01-12-2024 | Research article

MS brain health quality standards: a survey on the reality in clinical practice in Germany

Authors: Isabel Voigt, Katja Akgün, Hernan Inojosa, Judith Haas, Herbert Temmes, Sven G. Meuth, Gavin Giovannoni, Tjalf Ziemssen

Published in: Neurological Research and Practice | Issue 1/2024

Abstract

Background

The quality of treatment is especially critical in the context of complex and chronic diseases such as multiple sclerosis (MS). The Brain Health Initiative, an independent international consortium of neurologists, reached a consensus on time-based quality standards prioritizing brain health-focused care for people with MS.

Objectives

To gain deeper insights into the transferability of these quality standards to a specific area, we conducted a survey among MS experts across various MS centers in Germany.

Methods

Participants were asked about time frames considered high standards and those currently being implemented in daily routine based on their experience.

Results

The results reveal a large gap between ideal conceptions and their adaptation in the real world, mostly due to a lack of resources.

Conclusions

Nevertheless, these guidelines and recommendations can be aspired to as ideals. Consensual and inclusive clinical pathways complemented by measurable quality indicators are needed to improve care and approach these ideals. Neither exists in the current management of MS.

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Title: MS brain health quality standards: a survey on the reality in clinical practice in Germany
Authors: Isabel Voigt
Katja Akgün
Hernan Inojosa
Judith Haas
Herbert Temmes
Sven G. Meuth
Gavin Giovannoni
Tjalf Ziemssen
Publication date: 01-12-2024
Publisher: BioMed Central
Published in: Neurological Research and Practice / Issue 1/2024
Electronic ISSN: 2524-3489
DOI: https://doi.org/10.1186/s42466-024-00333-4

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MS brain health quality standards: a survey on the reality in clinical practice in Germany

Abstract

Background

Objectives

Methods

Results

Conclusions

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Imbalance of the von Willebrand Factor — ADAMTS-13 axis in patients with retinal vasculopathy with cerebral leukoencephalopathy and systemic manifestations (RVCL-S)

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Conclusions

Please log in to get access to this content

Imbalance of the von Willebrand Factor — ADAMTS-13 axis in patients with retinal vasculopathy with cerebral leukoencephalopathy and systemic manifestations (RVCL-S)

Use of ketamine in Super Refractory Status Epilepticus: a systematic review

Determination of brain death using 99mTc-HMPAO scintigraphy and transcranial duplex sonography in a patient on veno-arterial ECMO

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