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Future provision of home end-of-life care: Family carers’ willingness for caregiving and needs for support

Published online by Cambridge University Press:  09 December 2020

Wallace Chi Ho Chan Open the ORCID record for Wallace Chi Ho Chan [Opens in a new window]
Wallace Chi Ho Chan*
Affiliation:
Department of Social Work, The Chinese University of Hong Kong, Hong Kong
*
Author for correspondence: Wallace Chi Ho Chan, Department of Social Work, Room 407A, T.C. Cheng Building, United College, The Chinese University of Hong Kong, Hong Kong. E-mail: chchan@swk.cuhk.edu.hk
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Abstract

Objective

This study aimed to examine family carers’ willingness, perceived difficulties and confidence in providing home end-of-life care to family members in future and their needs for support for doing so. Specific focus was on whether significant differences were found between carers of low and high levels of psychological distress.

Method

Family carers who had been providing care to family members living in the community were recruited via a local elderly agency in Hong Kong. A survey was conducted. Carers were asked to complete a questionnaire which included self-developed items, the Hospital Anxiety and Depression Scale, and the Carers’ Support Need Assessment Tool.

Results

Of the 89 participants, 63.8% reported willingness to provide end-of-life care in future (increased to 78.5% if support needs were met), but most perceived it as difficult, and over half were not confident about doing so. The three greatest needs for support in end-of-life care are understanding the relative's illness, knowing what to expect in future, and knowing who to contact if concerned. Participants of the high psychological distress group experienced a significantly greater need for support in “dealing with your feelings and worries” and “looking after your own health.”

Significance of Results

Current family carers may not be ready for future provision of home end-of-life care. Meeting their support needs in providing end-of-life care is crucial to ensure the continuity of care provision. Psychologically distressed carers may often ignore self-care and may need helping professionals’ additional support.

Keywords

Carers’ support needsEnd-of-life caregivingContinuity of care provision
Type
Original Article
Information
Palliative & Supportive Care , Volume 19 , Issue 5 , October 2021 , pp. 580 - 586
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Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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