Skip to main content
Top
Published in:

Open Access 01-12-2023 | Research

“I literally had no support”: barriers and facilitators to supporting the psychosocial wellbeing of young people with mental illness in Tasmania, Australia

Authors: Melissa Savaglio, Marie B. H. Yap, Toni Smith, Ash Vincent, Helen Skouteris

Published in: Child and Adolescent Psychiatry and Mental Health | Issue 1/2023

Login to get access

Abstract

Background

There has been limited focus on understanding the barriers and facilitators to meeting the broader psychosocial needs of young people with mental illness from the perspectives of young people. This is required to advance the local evidence base and inform service design and development. The aim of this qualitative study was to explore young people’s (10–25 years) and carers’ experiences of mental health services, focusing on barriers and facilitators to services supporting young people’s psychosocial functioning.

Methods

This study was conducted throughout 2022 in Tasmania, Australia. Young people with lived experience of mental illness were involved in all stages of this research. Semi-structured interviews were conducted with 32 young people aged 10–25 years with experience of mental illness, and 29 carers (n = 12 parent–child dyads). Qualitative analysis was guided by the Social-Ecological Framework to identify barriers and facilitators at the individual (young person/carer level), interpersonal, and service/systemic level.

Results

Young people and carers identified eight barriers and six facilitators across the various levels of the Social-Ecological Framework. Barriers included, at the individual level: (1) the complexity of young people’s psychosocial needs and (2) lack of awareness/knowledge of services available; at the interpersonal level: (3) negative experiences with adults and (4) fragmented communication between services and family; and at the systemic level: (5) lack of services; (6) long waiting periods; (7) limited service accessibility; and (8) the missing middle. Facilitators included, at the individual level: (1) education for carers; at the interpersonal level: (2) positive therapeutic relationships and (3) carer advocacy/support; and at the systemic level: (4) flexible or responsive services, (5) services that address the psychosocial factors; and (6) safe service environments.

Conclusions

This study identified key barriers and facilitators to accessing and utilising mental health services that may inform service design, development, policy and practice. To enhance their psychosocial functioning, young people and carers want lived-experience workers to provide practical wrap-around support, and mental health services that integrate health and social care, and are flexible, responsive and safe. These findings will inform the co-design of a community-based psychosocial service to support young people experiencing severe mental illness.
Literature
7.
go back to reference Savaglio M, Yap M, Vincent A, Skouteris H. Mapping community-based youth mental health services in Tasmania, Australia. Australian Journal of Primary Health. 2023; under review. Savaglio M, Yap M, Vincent A, Skouteris H. Mapping community-based youth mental health services in Tasmania, Australia. Australian Journal of Primary Health. 2023; under review.
8.
go back to reference Radez J, Reardon T, Creswell C, et al. Why do children and adolescents (not) seek and access professional help for their mental health problems? A systematic review of quantitative and qualitative studies. Eur Child Adolesc Psychiatry. 2021;30:183–211.CrossRefPubMed Radez J, Reardon T, Creswell C, et al. Why do children and adolescents (not) seek and access professional help for their mental health problems? A systematic review of quantitative and qualitative studies. Eur Child Adolesc Psychiatry. 2021;30:183–211.CrossRefPubMed
9.
go back to reference Islam I, Khanam R, Kabir E. The use of mental health services by Australian adolescents with mental disorders and suicidality: Findings from a nationwide cross-sectional survey. PLoS ONE. 2020;15(4):e0231180.CrossRefPubMedPubMedCentral Islam I, Khanam R, Kabir E. The use of mental health services by Australian adolescents with mental disorders and suicidality: Findings from a nationwide cross-sectional survey. PLoS ONE. 2020;15(4):e0231180.CrossRefPubMedPubMedCentral
10.
go back to reference Mulraney M, Coghill D, Bishop C, et al. A systematic review of the persistence of childhood mental health problems into adulthood. Neurosci Biobehav Rev. 2021;129:182–205.CrossRefPubMed Mulraney M, Coghill D, Bishop C, et al. A systematic review of the persistence of childhood mental health problems into adulthood. Neurosci Biobehav Rev. 2021;129:182–205.CrossRefPubMed
11.
go back to reference MacDonald K, Ferrari M, Fainman-Adelman N, Iyer S. Experiences of pathways to mental health services for young people and their carers: a qualitative meta-synthesis review. Soc Psychiatry Psychiatr Epidemiol. 2021;56:339–61.CrossRefPubMed MacDonald K, Ferrari M, Fainman-Adelman N, Iyer S. Experiences of pathways to mental health services for young people and their carers: a qualitative meta-synthesis review. Soc Psychiatry Psychiatr Epidemiol. 2021;56:339–61.CrossRefPubMed
12.
go back to reference Brown A, Rice S, Rickwood D, Parker A. Systematic review of barriers and facilitators to accessing and engaging with mental health care among at-risk young people. Asia Pac Psychiatry. 2016;8:3–22.CrossRefPubMed Brown A, Rice S, Rickwood D, Parker A. Systematic review of barriers and facilitators to accessing and engaging with mental health care among at-risk young people. Asia Pac Psychiatry. 2016;8:3–22.CrossRefPubMed
13.
go back to reference Reardon T, Harvey K, Baranowska M, O’Brien D, Smith L, Creswell C. What do parents perceive are the barriers and facilitators to accessing psychological treatment for mental health problems in children and adolescents? A systematic review of qualitative and quantitative studies. Eur Child Adolesc Psychiatry. 2017;26:623–47.CrossRefPubMedPubMedCentral Reardon T, Harvey K, Baranowska M, O’Brien D, Smith L, Creswell C. What do parents perceive are the barriers and facilitators to accessing psychological treatment for mental health problems in children and adolescents? A systematic review of qualitative and quantitative studies. Eur Child Adolesc Psychiatry. 2017;26:623–47.CrossRefPubMedPubMedCentral
14.
go back to reference Yap MBH, Reavley N, Jorm AF. Where would young people seek help for mental disorders and what stops them? Findings from an Australian national survey. J Affect Disord. 2013;147(1–3):255–61.CrossRefPubMed Yap MBH, Reavley N, Jorm AF. Where would young people seek help for mental disorders and what stops them? Findings from an Australian national survey. J Affect Disord. 2013;147(1–3):255–61.CrossRefPubMed
15.
go back to reference Yap MBH, Reavley NJ, Jorm AF. Associations between stigma and help-seeking intentions and beliefs: findings from an Australian national survey of young people. Psychiatry Res. 2013;210(3):1154–60.CrossRefPubMed Yap MBH, Reavley NJ, Jorm AF. Associations between stigma and help-seeking intentions and beliefs: findings from an Australian national survey of young people. Psychiatry Res. 2013;210(3):1154–60.CrossRefPubMed
16.
go back to reference Ganie A, Thirumoorthy A, Jangman K, Sagar K. Psychosocial functioning and associated socio-environmental factors of children with severe mental illness: findings from the tertiary mental health centre in India. Soc Work Ment Health. 2023;21(3):243–68.CrossRef Ganie A, Thirumoorthy A, Jangman K, Sagar K. Psychosocial functioning and associated socio-environmental factors of children with severe mental illness: findings from the tertiary mental health centre in India. Soc Work Ment Health. 2023;21(3):243–68.CrossRef
17.
go back to reference Bronfenbrenner U. Reality and research in the ecology of human development. Proc Am Philos Soc. 1975;119(6):439–69. Bronfenbrenner U. Reality and research in the ecology of human development. Proc Am Philos Soc. 1975;119(6):439–69.
18.
go back to reference Eriksson M, Ghazinour M, Hammarstrom A. Different uses of Bronfenbrenner’s ecological theory in public mental health research: what is their value for guiding public mental health policy and practice? Soc Theory Health. 2018;16:414–33.CrossRef Eriksson M, Ghazinour M, Hammarstrom A. Different uses of Bronfenbrenner’s ecological theory in public mental health research: what is their value for guiding public mental health policy and practice? Soc Theory Health. 2018;16:414–33.CrossRef
19.
go back to reference Mawn L, Welsh P, Kirkpatrick L, Webster L, Stain H. Getting it right! Enhancing youth involvement in mental health research. Health Expect. 2016;19(4):908–19.CrossRefPubMed Mawn L, Welsh P, Kirkpatrick L, Webster L, Stain H. Getting it right! Enhancing youth involvement in mental health research. Health Expect. 2016;19(4):908–19.CrossRefPubMed
20.
go back to reference McCabe E, Amarbayan M, Rabi S, et al. Youth engagement in mental health research: a systematic review. Health Expect. 2023;26(1):30–50.CrossRefPubMed McCabe E, Amarbayan M, Rabi S, et al. Youth engagement in mental health research: a systematic review. Health Expect. 2023;26(1):30–50.CrossRefPubMed
21.
go back to reference Yap MBH, Lawrence KA, Rapee RM, Cardmone-Bree MC, Green J, Jorm AF. Partners in parenting: a multi-level web-based approach to support parents in prevention and early intervention for adolescent depression and anxiety. JMIR Mental Health. 2017;4(4):e59.CrossRefPubMedPubMedCentral Yap MBH, Lawrence KA, Rapee RM, Cardmone-Bree MC, Green J, Jorm AF. Partners in parenting: a multi-level web-based approach to support parents in prevention and early intervention for adolescent depression and anxiety. JMIR Mental Health. 2017;4(4):e59.CrossRefPubMedPubMedCentral
22.
go back to reference Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–57.CrossRefPubMed Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–57.CrossRefPubMed
23.
go back to reference Armat MR, Assarroudi A, Rad M, Sharifi H, Heydari A. Inductive and deductive: ambiguous labels in qualitative content analysis. Qual Rep. 2018;23(1):219–21. Armat MR, Assarroudi A, Rad M, Sharifi H, Heydari A. Inductive and deductive: ambiguous labels in qualitative content analysis. Qual Rep. 2018;23(1):219–21.
24.
go back to reference McGorry PD, Mei C. Unmet needs in youth mental health: transforming models of care to improve outcomes. In: Pompili M, McIntyre R, Fiorillo A, Startorious N, editors. New directions in psychiatry. Cham: Springer; 2020. McGorry PD, Mei C. Unmet needs in youth mental health: transforming models of care to improve outcomes. In: Pompili M, McIntyre R, Fiorillo A, Startorious N, editors. New directions in psychiatry. Cham: Springer; 2020.
25.
go back to reference Hetrick SE, Bailey AP, Smith KE, et al. Integrated (one-stop-shop) youth health care: best available evidence and future directions. Med J Aust. 2017;207(S10):S5–18.CrossRefPubMed Hetrick SE, Bailey AP, Smith KE, et al. Integrated (one-stop-shop) youth health care: best available evidence and future directions. Med J Aust. 2017;207(S10):S5–18.CrossRefPubMed
26.
go back to reference Settipani CA, Hawke LD, Cleverley K, et al. Key attributes of integrated community-based youth service hubs for mental health: a scoping review. Int J Ment Heal Syst. 2019;13(52):2–26. Settipani CA, Hawke LD, Cleverley K, et al. Key attributes of integrated community-based youth service hubs for mental health: a scoping review. Int J Ment Heal Syst. 2019;13(52):2–26.
27.
go back to reference Garrett S, Pullon S, Morgan S, McKinlay E. Collaborative care in ‘youth one stop shops’ in New Zealand: hidden, time-consuming, essential. J Child Health Care. 2019;24(2):1–12. Garrett S, Pullon S, Morgan S, McKinlay E. Collaborative care in ‘youth one stop shops’ in New Zealand: hidden, time-consuming, essential. J Child Health Care. 2019;24(2):1–12.
28.
go back to reference Henderson JL, Chiodo D, Varatharasan N, et al. Youth wellness hubs Ontario: development and initial implementation of integrated youth services in Ontaria, Canada. Early Interv Psychiatry. 2023;17(1):107–14.CrossRefPubMed Henderson JL, Chiodo D, Varatharasan N, et al. Youth wellness hubs Ontario: development and initial implementation of integrated youth services in Ontaria, Canada. Early Interv Psychiatry. 2023;17(1):107–14.CrossRefPubMed
29.
go back to reference O’Reilly A, O’Brien G, Moore J, et al. Evolution of Jigsaw—a national youth mental health services. Early Intervention in Physiatry. 2022;16(5):561–7.CrossRef O’Reilly A, O’Brien G, Moore J, et al. Evolution of Jigsaw—a national youth mental health services. Early Intervention in Physiatry. 2022;16(5):561–7.CrossRef
30.
go back to reference Savaglio M, O’Donnell Hatzikiriakidis K, Vicary D, Skouteris H. The impact of community mental health programs for Australian youth: a systematic review. Clin Child Fam Psychol Rev. 2022;25:573–90.CrossRefPubMedPubMedCentral Savaglio M, O’Donnell Hatzikiriakidis K, Vicary D, Skouteris H. The impact of community mental health programs for Australian youth: a systematic review. Clin Child Fam Psychol Rev. 2022;25:573–90.CrossRefPubMedPubMedCentral
32.
go back to reference Anderson JK, Howarth E, Vainre M, Jones PB, Humphrey A. A scoping literature review of service-level barriers for access and engagement with mental health services for children and young people. Child Youth Serv Rev. 2017;77:164–76.CrossRef Anderson JK, Howarth E, Vainre M, Jones PB, Humphrey A. A scoping literature review of service-level barriers for access and engagement with mental health services for children and young people. Child Youth Serv Rev. 2017;77:164–76.CrossRef
33.
go back to reference Bell I, Nicholas J, Broomhall A, et al. The impact of COVID-19 on youth mental health: a mixed methods survey. Psychiatry Res. 2021;321:1–9. Bell I, Nicholas J, Broomhall A, et al. The impact of COVID-19 on youth mental health: a mixed methods survey. Psychiatry Res. 2021;321:1–9.
34.
go back to reference Liverpool S, Mota C, Sales C, Cus A, Carletto S, Hancheva C. Engaging children and young people in digital mental health interventions: systematic review of modes of delivery, facilitators and barriers. J Med Internet Res. 2020;22(6):e16317.CrossRefPubMedPubMedCentral Liverpool S, Mota C, Sales C, Cus A, Carletto S, Hancheva C. Engaging children and young people in digital mental health interventions: systematic review of modes of delivery, facilitators and barriers. J Med Internet Res. 2020;22(6):e16317.CrossRefPubMedPubMedCentral
35.
go back to reference Hartley S, Redmond T, Berry K. Therapeutic relationships within child and adolescent mental health inpatient services: A qualitative exploration of the experiences of young people, family members and nursing staff. PLoS ONE. 2022;17(1):e0262070.CrossRefPubMedPubMedCentral Hartley S, Redmond T, Berry K. Therapeutic relationships within child and adolescent mental health inpatient services: A qualitative exploration of the experiences of young people, family members and nursing staff. PLoS ONE. 2022;17(1):e0262070.CrossRefPubMedPubMedCentral
36.
go back to reference Ellinghaus C, Truss K, Siling J, et al. “I’m tired of being pulled from pillar to post”: a qualitative analysis of barriers to mental health care for trauma-exposed young people. Early Interv Psychiatry. 2021;15(1):113–22.CrossRefPubMed Ellinghaus C, Truss K, Siling J, et al. “I’m tired of being pulled from pillar to post”: a qualitative analysis of barriers to mental health care for trauma-exposed young people. Early Interv Psychiatry. 2021;15(1):113–22.CrossRefPubMed
37.
go back to reference Ryan R, Berry K, Law H, Hartley S. Therapeutic relationships in child and adolescent mental health services: A Delphi study with young people, carers, and clinicians. Int J Ment Health Nurs. 2021;30(4):1010–21.CrossRefPubMed Ryan R, Berry K, Law H, Hartley S. Therapeutic relationships in child and adolescent mental health services: A Delphi study with young people, carers, and clinicians. Int J Ment Health Nurs. 2021;30(4):1010–21.CrossRefPubMed
39.
go back to reference Barton J, Henderson J. Peer support and youth recovery: a brief review of the theoretical underpinnings and evidence. Can J Family Youth. 2016;8(1):1–10. Barton J, Henderson J. Peer support and youth recovery: a brief review of the theoretical underpinnings and evidence. Can J Family Youth. 2016;8(1):1–10.
40.
go back to reference Halsall T, Daley M, Hawke L, Henderson J. Exploring peer support services for youth experiencing multiple health and social challenges in Canada: a hybrid realist-participatory evaluation model. Int J Qual Methods. 2021;20:1–13.CrossRef Halsall T, Daley M, Hawke L, Henderson J. Exploring peer support services for youth experiencing multiple health and social challenges in Canada: a hybrid realist-participatory evaluation model. Int J Qual Methods. 2021;20:1–13.CrossRef
41.
go back to reference Davison K, Charles J, Khandpur N, Nelson T. Fathers’ perceived reasons for their underrepresentation in child health research and strategies to increase their involvement. Mat Child Health J. 2017;21(2):267–74.CrossRef Davison K, Charles J, Khandpur N, Nelson T. Fathers’ perceived reasons for their underrepresentation in child health research and strategies to increase their involvement. Mat Child Health J. 2017;21(2):267–74.CrossRef
Metadata
Title
“I literally had no support”: barriers and facilitators to supporting the psychosocial wellbeing of young people with mental illness in Tasmania, Australia
Authors
Melissa Savaglio
Marie B. H. Yap
Toni Smith
Ash Vincent
Helen Skouteris
Publication date
01-12-2023
Publisher
BioMed Central
Published in
Child and Adolescent Psychiatry and Mental Health / Issue 1/2023
Electronic ISSN: 1753-2000
DOI
https://doi.org/10.1186/s13034-023-00621-y

Other articles of this Issue 1/2023

Child and Adolescent Psychiatry and Mental Health 1/2023 Go to the issue