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Open Access 16-05-2024 | Hemophilia | Original Research

florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe

Authors: Ester Zapotocka, Angelika Batorova, Ernest Bilic, Ana Boban, Carmen Escuriola Ettingshausen, Barbara Faganel Kotnik, Radomira Hrdlickova, Pawel Laguna, Jan Máchal, Laszlo Nemes, Irena Preloznik Zupan, Gediminas Puras, Marianna Zombori

Published in: Advances in Therapy | Issue 7/2024

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Abstract

Introduction

florio® HAEMO is a hemophilia treatment monitoring application (app) offering activity tracking and wearable device connectivity. Its use might support everyday activities for people with hemophilia. The aim of this study was to evaluate user satisfaction, long-term usage and the impact on data entry when pairing a wearable with a hemophilia monitoring app.

Methods

This is a follow-up of a two-part user survey conducted in Central Europe. People with hemophilia and parents/caregivers of children with hemophilia using florio HAEMO and who completed part one were invited to complete a second online questionnaire at least 4 months later.

Results

Fifty participants (83.3%) who completed part one of the survey continued to use the florio HAEMO app and completed part two. Of 14 participants who chose to use the app with a wearable, more than half (57.1%) were aged between 13 and 25 years. Overall, the results demonstrated that florio HAEMO is very easy or rather easy to use, especially for individuals pairing the app with a wearable. Most people using a wearable indicated that florio HAEMO was very or rather important in bringing certainty to daily activities (85.7%). Notably, 14 of 36 (38.9%) non-wearable users indicated that they would prefer to pair the app with a wearable in the future.

Conclusions

Adherence to the florio HAEMO app is maintained over an extended period of use. Pairing the app with a wearable might enable easier access to app features, increase data entry motivation and provide more certainty about daily activities for people with hemophilia.
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Metadata
Title
florio® HAEMO: A Longitudinal Survey of Patient Preference, Adherence and Wearable Functionality in Central Europe
Authors
Ester Zapotocka
Angelika Batorova
Ernest Bilic
Ana Boban
Carmen Escuriola Ettingshausen
Barbara Faganel Kotnik
Radomira Hrdlickova
Pawel Laguna
Jan Máchal
Laszlo Nemes
Irena Preloznik Zupan
Gediminas Puras
Marianna Zombori
Publication date
16-05-2024
Publisher
Springer Healthcare
Keyword
Hemophilia
Published in
Advances in Therapy / Issue 7/2024
Print ISSN: 0741-238X
Electronic ISSN: 1865-8652
DOI
https://doi.org/10.1007/s12325-024-02872-3

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