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Quality of Life Research

18-12-2024

Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study

Authors: Thao Thai, Lidia Engel, Sandra Eades, Lena Sanci, Robyn William, Pippa Gregory, Justine Whitby, Cathrine Mihalopoulos

Published in: Quality of Life Research

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Abstract

Background

Mainstream preference-based quality of life (QoL) measures have been traditionally based on Western principles of health. It is critical to examine whether existing preference-based QoL measures capture what is important to Indigenous people while being comprehensive and culturally acceptable. This study aims to assess the content and face validity of the EuroQol-5 dimensions 5-levels (EQ-5D-5 L), 12-item short form survey (SF-12), assessment of quality of life–6 dimensions (AQoL-6D), and recovering quality of life 10-item (ReQoL-10) within the context of indigenous youth mental health.

Methods

Eight individual yarns and five yarning circles were conducted with 20 indigenous young people aged 15˗25 years, with a history of at least 1 mental health problem in the Perth and Bunbury regions of Western Australia. The measures were explored in random order using the yarning approach, and then ranked by relevance by participants. Data were analysed using thematic and constant comparative approaches.

Results

The face and content validity of each preference-based QoL instrument was summarised into four themes: (1) appropriateness, (2) comprehensiveness, (3) comprehensibility, and (4) layout and format. The ReQoL-10 emerged as a more suitable measure due to its mental health focus, clear response options, and well-designed layout and format. While some positive comments were made about the other measures, there were critical issues around their content and face validity. Our data revealed a clear preference for the ReQoL.

Conclusion

The ReQoL-10 appears to be a promising measure in the context of indigenous youth mental health, and was explicitly preferred by indigenous youth.
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Metadata
Title
Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study
Authors
Thao Thai
Lidia Engel
Sandra Eades
Lena Sanci
Robyn William
Pippa Gregory
Justine Whitby
Cathrine Mihalopoulos
Publication date
18-12-2024
Publisher
Springer International Publishing
Published in
Quality of Life Research
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-024-03870-2