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08-06-2024 | Ankylosing Spondylitis | Patient Opinion

Social media has become a mainstream source of medical information for patients with rheumatic diseases: a cross-sectional survey of patients

Authors: Beom Joon Myeoung, Ju Hyun Park, Byung Joo Lee, Hyeok Jun Jeong, Aran Kim, Min Wook So, Seung-Geun Lee

Published in: Rheumatology International

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Abstract

This study analyzed the status of medical information acquisition through social media (SM) and its impact on healthcare utilization among patients with rheumatic diseases (RDs) who visited the rheumatology department of a tertiary hospital. We consecutively evaluated 102 patients with RDs in this single-center cross-sectional survey. Using a face-to-face survey, patients were asked about the sources they used to acquire medical information, factors influencing their visits to tertiary hospitals, and the potential impact of acquiring medical information on RDs through SM. SM refers to YouTube, Facebook, Instagram, Kakao Channel, Naver Band, and X. The mean age was 42.3 years and 39% were female. The most common disease was ankylosing spondylitis (45.1%), followed by rheumatoid arthritis (20.6%). The most frequent method for acquiring medical information regarding RDs, except for rheumatologists, was internet portal sites (47.8%), followed by SM (40.2%). The most important factor influencing the decision to visit a tertiary hospital was medical doctors (51%); only 1% of the patients responded that SM was the most crucial factor in determining their visit. Most patients (77.5%) responded that acquiring medical information through SM would help them manage their diseases. Our data revealed that a substantial proportion of patients with RDs obtained medical information through SM. However, the impact of SM on visiting a tertiary hospital was minimal, suggesting that SM has become a mainstream source of medical information, yet the reliability of SM remains relatively low. Rheumatology societies should establish SM platforms capable of providing high-quality medical information.
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Metadata
Title
Social media has become a mainstream source of medical information for patients with rheumatic diseases: a cross-sectional survey of patients
Authors
Beom Joon Myeoung
Ju Hyun Park
Byung Joo Lee
Hyeok Jun Jeong
Aran Kim
Min Wook So
Seung-Geun Lee
Publication date
08-06-2024
Publisher
Springer Berlin Heidelberg
Published in
Rheumatology International
Print ISSN: 0172-8172
Electronic ISSN: 1437-160X
DOI
https://doi.org/10.1007/s00296-024-05634-0
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